By reactions I mean intense prickly itching on my fingers causing me to rub them together and a couple fingers swelling slightly. Same reaction I had with the lipgloss. And like the swelling on the bottom of my foot with the milk.
Dairy Allergy And Now Calcium Supplements
Posted 21 August 2013 - 04:09 AM
Aside from celiac I have a dairy allergy that's considered to be moderate on my blood test. I don't know about intolerance i just know i'm allergic. I was wondering if anyone else here has an ALLERGY to dairy and takes NOW food supplements? They said it's gluten and dairy free on the calcium carbonate powder i'm taking...i'm unsure at the moment but i wound up introducing calcium powder and turnip into my diet at the same time. I know that's a bad idea and i'll be testing this out one and a time over the next week or so. Either way...I'm just concerned the calcium powder might be an issue. Before i found out i have a dairy allergy i tried a small bit of butter and wound up with IBS like cramping....the past few days i've had that again. I'm leaning more toward the turnip for one reason or another but i need a calcium powder with no additives..completely mineral based..dairy and gluten free due to a possible salicylate intolerance on top of all of this. Over all i've felt physically better aside from occasional cramping maybe once a day. I dunno what to think but I'm concerned because allergies are serious business. they say they have good manufacturing practices and i used glutentox to test the calcium powder as low as 5 ppm's and it was fine..so I'm hoping the dairy is just as safe? I don't know much about allergies...so if anyone can be of any help? I would assume even intolerant people might be able to answer this question since casein intolerance you can be extremely sensitive to an allergen. I really need a calcium powder that's also salicylate free so i'm hoping it's just the turnip. Or neither.
I recall my Functional Medicine nurse being happy when I admitted to ignoring the advice my doctor gave me 25 years ago to take calcium supplements. I tried, but they made me sick. She was happy, because she told me the calcium supplements can make celiac symptoms worse I think that may be something for you to consider.
My calcium is quite high, now. I am gluten free about 18 months. I am dairy free. I have been using nuts for flour. I am not sure what all is causing my levels to go up, but I know that absorbing nutrients is a BIG HELP!
Posted 21 August 2013 - 06:41 AM
I'm glad the link is helpful to some of you. It's a thick read but I think it sums things up pretty nicely, now if all the Dr's would just read it
As for the office...Yeah...you would think an office dealing with allergies would be a little more keen on keeping patients safe but unfortunately they are like any other office. We've been through 6-7 allergists and they are all pretty much the same. They do clean down the rooms before though but that doesn't help in the waiting areas.
I get skin reactions from cutting squash. It's strange and crazy but something in them cause me a bad skin reaction. I can eat them fine though so who knows. There is also something called oral allergy syndrome that you may want to check out for lip issues like you mentioned.
Posted 21 August 2013 - 11:45 AM
That's the weird thing though...it did nothing to my lips but my fingers and feet got swellings and i got hives. Then they kept coming back every so many days after the initial attack for about 3 weeks. It happened about 20 minutes after using the lip gloss. Sure has me scratching my head.
Posted 22 August 2013 - 01:10 PM
As for whether I have celiac....I don't know if I do..i think i do based off what i've been going through and that gluten was definitely an issue before i cut it out. But IrishHeart you told me in private messages ages ago that i didn't have celiac.Flat out "you don't have celiac hon" Which could be true but you don't know anymore than I do.And again i felt defensive. I could be celiac and just not have an official diagnosis. And perhaps this is what you meant but you need to pick your words more carefully.
And you need to be very careful about selecting certain words from a long conversation and painting me in a bad light. I was out of town for a few days and just read this post and feel it necessary to respond to your remarks.
I think it is unfair of you to say that this is all that I said to you because it makes it sound like I just randomly private messaged you and told you "you don't have celiac, hon".
What actually occurred was ......you asked my opinion about salicylates and an elimination diet and other things after 25+ exchanges over a few days I tried to help you sort it all out and very patiently went over all the things you said doctors told you and what your test results were.
I gave you many links to many reliable sources, didn't I? Your own doctors do not think you have celiac.
You've never been to a gastroenterologist, your celiac panel was negative and you did not have a biopsy done.
You said you were diagnosed by fecal fat testing and I said
Based on that "You do not have celiac, hon".
here it is-- right here--copied from my saved messages:
You do not have celiac, hon.
It is not diagnosed by fecal fat testing, sorry.
What's wrong with saying that? It's the truth!.
So, if you are going to talk openly on a thread about what I may have said to you, be sure to tell the whole story, please, rather than make me appear to be so uncharacteristically rude and judgmental and using personal messaging to diagnose people. I do not do that.
You can't twist things to make you appear to be "picked on". I find this to be a bit of a slam on my character, truth be told.
"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir
"It isn't for the moment you are struck that you need courage, but for the long uphill climb back to sanity, faith and security." Anne Morrow Lindbergh
"Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love."
"The strongest of all warriors are these two - time and patience." Leo Tolstoy
Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
Celiac.com - Celiac Disease Board Moderator
Posted 22 August 2013 - 05:39 PM
Wasn't implying that you didn't help me at all. And I never had a celiac panel done. Therefore may I just be gluten intolerant yes. I can't say I have celiac but I nor you can say I don't either. We don't know. I didn't pick or choose anything. You can say i might not have celiac. You cannot say "you do not". I've never had testing. And when did I say my doctors don't think I have celiac? My doctor has celiac disease down on his system based off of me, symptoms and enterolab. I didn't ask him to. I also told you that at the time. I also never said it was just fecal fat testing. I said that showed malabsorption and i had antibodies in the feces according to enterolab.
Posted 22 August 2013 - 05:42 PM
So if you and your Dr. think you may have Celiac, why haven't you had the testing done?
Posted 22 August 2013 - 05:47 PM
Because I'd been gluten free already and too sick I didn't think at the time that it mattered. It was long before I ever learned a lot more about it and how you can't test properly after the fact. I couldn't fathom stuffing my face with gluten with how sick i was so I never did the gluten challenge. The official diagnosis isn't important to me now. The outcome is the same in this instance.
Posted 22 August 2013 - 05:55 PM
Ahhhh. Did you ever think about the genetic test? If you do/plan on having kids I would want to know for that reason alone if I was passing on the genetics so I would know what to look for.
Posted 22 August 2013 - 06:00 PM
I'm doing 23andme test at the moment which is genetic testing but I have no idea if they look for celiac genes. What would I request for a blood test for that?
Posted 27 August 2013 - 05:56 AM
Except, allergies are not the same as food intolerances and we have told you this many, many times.
this is from the MAYO CLINIC:
Milk allergy or milk intolerance?
It's important to differentiate a true milk allergy from milk protein intolerance or lactose intolerance. Unlike a milk allergy, intolerance doesn't involve the immune system.
Hahaha. Mayo know best and everything in such subtle and unexplored issue as allergy and intolerances...
My son NEVER tested positive for allergy to gluten or milk or soy but he is horribly "intolerant" to them - in his case this is an autoimmune response in form of nephrotic syndrom (proteinuria)
Just wondering where Mayo would classify this
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