Dairy Allergy And Now Calcium Supplements

[seraphim]

Just opened the link..about to read but wanted to say now that i think about it.....i used the washroom while at the allergists as did my husband and in both the bathrooms we were in they had air freshener...this is a place for asthma and allergies. When we went into her office for consultation..even though the sign said no food or drink...there were crumbs on our chairs. Nothing said about perfumes and a woman came in bathed in it. The nurse who took my blood pressure had a strong mint gum she was chewing. Would these be bad signs? Because we didn't know what to think.

[seraphim]

Interesting read I gotta say but scary confusing. I don't know what to think. Either way i should stay away from milk at least for now IF it's an intolerance but...between that cramping and the foot swelling. What do you make of that? I gave up dairy a year ago because i figured it might be a problem...was dizzy etc. But no cramping at that time not until i tried it again.

 

I was also going to get skin pricked with lip gloss that caused me issues to see if i am actually allergic to it...i assume that's different from pricking for food though?

[kareng]

Open Original Shared Link

 

This is the most recent (I believe). It talks about when to test and so on.

Thanks for that link. A very good resource. I'm learning a lot from it.

[notme]

Just opened the link..about to read but wanted to say now that i think about it.....i used the washroom while at the allergists as did my husband and in both the bathrooms we were in they had air freshener...this is a place for asthma and allergies. When we went into her office for consultation..even though the sign said no food or drink...there were crumbs on our chairs. Nothing said about perfumes and a woman came in bathed in it. The nurse who took my blood pressure had a strong mint gum she was chewing. Would these be bad signs? Because we didn't know what to think.

you probably need a good in-patient evaluation.   has anyone else suggested this to you?   in a controlled environment, where you won't come into contact with all these contaminants.

[seraphim]

No they haven't. Seems ridiculous anyone would have to go to such lengths I dunno why they couldn't just run the place better than that...it's an allergy specialist I mean...SHEESH! I went to see her originally about my lipgloss reaction but she decided to send me for food and environmental panels and while i was in the waiting room one of my reactions happened. It could have been a coincidence I guess because that happened on and off for weeks even when i was at home. But there was a lot coming our way in there I have to say. Because I have a possible salicylate intolerance they exist in smells as well and at the time i thought the red apple lipstick lip gloss may have overflowed my load that my body could handle and so i was reacting to everything. Now I'm not sure. No idea.

[seraphim]

By reactions I mean intense prickly itching on my fingers causing me to rub them together and a couple fingers swelling slightly. Same reaction I had with the lipgloss. And like the swelling on the bottom of my foot with the milk.

[1desperateladysaved]

Aside from celiac I have a dairy allergy that's considered to be moderate on my blood test. I don't know about intolerance i just know i'm allergic. I was wondering if anyone else here has an ALLERGY to dairy and takes NOW food supplements? They said it's gluten and dairy free on the calcium carbonate powder i'm taking...i'm unsure at the moment but i wound up introducing calcium powder and turnip into my diet at the same time. I know that's a bad idea and i'll be testing this out one and a time over the next week or so. Either way...I'm just concerned the calcium powder might be an issue. Before i found out i have a dairy allergy i tried a small bit of butter and wound up with IBS like cramping....the past few days i've had that again. I'm leaning more toward the turnip for one reason or another but i need a calcium powder with no additives..completely mineral based..dairy and gluten free due to a possible salicylate intolerance on top of all of this. Over all i've felt physically better aside from occasional cramping maybe once a day. I dunno what to think but I'm concerned because allergies are serious business. they say they have good manufacturing practices and i used glutentox to test the calcium powder as low as 5 ppm's and it was fine..so I'm hoping the dairy is just as safe? I don't know much about allergies...so if anyone can be of any help? I would assume even intolerant people might be able to answer this question since casein intolerance you can be extremely sensitive to an allergen. I really need a calcium powder that's also salicylate free so i'm hoping it's just the turnip. Or neither.

I recall my Functional Medicine nurse being happy when I admitted to ignoring the advice my doctor gave me 25 years ago to take calcium supplements.  I tried, but they made me sick.  She was happy, because she told me the calcium supplements can make celiac symptoms worse  I think that may be something for you to consider.

 

My calcium is quite high, now.  I am gluten free about 18 months.  I am dairy free.  I have been using nuts for flour.  I am not sure what all is causing my levels to go up, but I know that absorbing nutrients is a BIG HELP!

 

D

[StephanieL]

I'm glad the link is helpful to some of you.  It's a thick read but I think it sums things up pretty nicely, now if all the Dr's would just read it  

 

As for the office...Yeah...you would think an office dealing with allergies would be a little more keen on keeping patients safe but unfortunately they are like any other office.  We've been through 6-7 allergists and they are all pretty much the same. They do clean down the rooms before though but that doesn't help in the waiting areas.  

 

I get skin reactions from cutting squash. It's strange and crazy but something in them cause me a bad skin reaction. I can eat them fine though so who knows.  There is also something called oral allergy syndrome that you may want to check out for lip issues like you mentioned. 

[seraphim]

That's the weird thing though...it did nothing to my lips but my fingers and feet got swellings and i got hives. Then they kept coming back every so many days after the initial attack for about 3 weeks. It happened about 20 minutes after using the lip gloss. Sure has me scratching my head.

[IrishHeart]

 

As for whether I have celiac....I don't know if I do..i think i do based off what i've been going through and that gluten was definitely an issue before i cut it out. But IrishHeart you told me in private messages ages ago that i didn't have celiac.Flat out "you don't have celiac hon" Which could be true but you don't know anymore than I do.And again i felt defensive. I could be celiac and just not have an official diagnosis. And perhaps this is what you meant but you need to pick your words more carefully.

 

 

 

And you need to be very careful about selecting certain words from a long conversation and painting me in a bad light. I was out of town for a few days and just read this post and feel it necessary to respond to your remarks.

 

I think it is unfair of you to say that this is all that I said to you because it makes it sound like I just randomly private messaged you and told you "you don't have celiac, hon".

 

What actually occurred was ......you asked my opinion about salicylates and an elimination diet and other things after  25+ exchanges over a few days  I tried to help you sort it all out and very patiently went over all the things you said doctors told you and what your test results were.

I gave you many links to many reliable sources, didn't I? Your own doctors do not think you have celiac.

 

You've never been to a gastroenterologist, your celiac panel was negative and you did not have a biopsy done.

 

You said you were diagnosed by fecal fat testing and I said

 

Based on that "You do not have celiac, hon".

 

here it is-- right here--copied from my saved messages:

 

You do not have celiac, hon.

It is not diagnosed by fecal fat testing, sorry.

 

What's wrong with saying that? It's the truth!.

 

 

So, if you are going to talk openly on a thread about what I may have said to you, be sure to tell the whole story, please, rather than make me appear to be so uncharacteristically rude and judgmental and using personal messaging to diagnose people. I do not do that.

 

You can't twist things to make you appear to be "picked on". I find this to be a bit of a slam on my character, truth be told.

[seraphim]

Wasn't implying that you didn't help me at all. And I never had a celiac panel done. Therefore may I just be gluten intolerant yes. I can't say I have celiac but I nor you can say I don't either. We don't know. I didn't pick or choose anything. You can say i might not have celiac. You cannot say "you do not". I've never had testing. And when did I say my doctors don't think I have celiac? My doctor has celiac disease down on his system based off of me, symptoms and enterolab. I didn't ask him to. I also told you that at the time. I also never said it was just fecal fat testing. I said that showed malabsorption and i had antibodies in the feces according to enterolab.

[StephanieL]

So if you and your Dr. think you may have Celiac, why haven't you had the testing done?  

[seraphim]

Because I'd been gluten free already and too sick I didn't think at the time that it mattered. It was long before I ever learned a lot more about it and how you can't test properly after the fact. I couldn't fathom stuffing my face with gluten with how sick i was so I never did the gluten challenge. The official diagnosis isn't important to me now. The outcome is the same in this instance.

[StephanieL]

Ahhhh.  Did you ever think about the genetic test? If you do/plan on having kids I would want to know for that reason alone if I was passing on the genetics so I would know what to look for. 

 

[seraphim]

I'm doing  23andme test at the moment which is genetic testing but I have no idea if they look for celiac genes. What would I request for a blood test for that?

[ValeriaZ]

 

  Except, allergies are not the same as food intolerances and we have told you this many, many times.

 

this is from the MAYO CLINIC:

 

Milk allergy or milk intolerance?

It's important to differentiate a true milk allergy from milk protein intolerance or lactose intolerance. Unlike a milk allergy, intolerance doesn't involve the immune system.

 

 

 

Hahaha. Mayo know best and everything in such subtle and unexplored issue as allergy and intolerances...

 

My son NEVER tested positive for allergy to gluten or milk or soy but he is horribly "intolerant" to them - in his case this is an autoimmune response in form of nephrotic syndrom (proteinuria)

Just wondering where Mayo would classify this

[StephanieL]

It would be an intolerance.