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Anxiety And Coeliac
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4 posts in this topic

If anyone could help or advise I would be eternally grateful, access to information is extremely limited in the UK and from what I am increasingly discovering doctors from GP’s to specialists are pretty clueless.

 

I originally posted my symptoms on here three months ago. Background, I was slowly recovering from the diagnosis of Coeliac Disease in March, I’d just enjoyed a fantastic weekend with my girlfriend when I was randomly hit by a huge bout of anxiety that took me off my feet. Never had a history of anxiety, had no reason to be hit by it.

 

Symptoms that have followed include: Anxiety that is worse in the mornings, fade in the afternoon and die off after 6pm – dizziness, confusion, displacement – acid feelings in my legs, jelly arms, intercostal pain in ribs and numb limbs. It’s like ground hog day every day and this has been my life for the last 12 weeks.

 

I have had every test imaginable Vitamins, brain scan etc and the only resulting factor is cortisol levels are too high – I have been tested for Cushings and that doesn’t appear to be conclusive. The doctors have advised taking anti anxiety meds to curb the problem but I refuse to take them as I know its not the root of the problem. I dose out on Kalms (over the counter herbal remedy) each day just to take the edge of the feelings.

 

I am aware there are links between Coeliac and anxiety, I would be interested if anyone has experienced the same symptoms and recovered?

 

I have taken the following to date which has had little to no success: Vitamins B, C, D – other complex vits like Berroca. I have just started taking Magnesium but a little too early to say whether this has worked or not.

 

Any help or advice would be really appreciated. 

 

Many thanks

 

Chris

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Hi Chris - I have increased feelings of anxiety when I've been glutened (increased heart rate, being on edge, etc) but otherwise the rest of my anxiety seems to be separate from my Celiac disease. Have you met with a psychiatrist?

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Same here- anxiety for me is directly tied to gluten intake.  I was seeing a therapist (who used to fall asleep because my issues were so boring- for real) before I got a proper diagnosis.  Slowly, the residual feelings of anxiety subsided as I stayed on the diet.  Mine was always worse at night.  I stopped seeing the therapist soon after dx.  The next step with her was anti-anxiety drugs.  How long have you been gluten free?  5 months?  Have you considered another intolerance causing this reaction?  Are you having panic attacks?

 

I hope you find some relief, English Chris.  Sorry I can't be of more help.

American Shellie

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Although I don't have anxiety I do get very angry when I have too many carbohydrates. I keep my carb intake very low and this helps my mood issues. My two sons have the same issue. A really good book is  called The Mood Cure by Julia Ross. She deals with many mood issues and what supplements can help along with diet. It has been very helpful in getting my son's issues under control.

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    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
    • I was tested for the full panel, I believe. I had normal values for t-transglutaminase (ttg) igg,t-transglutaminase (ttg) iga, deamidated gliadin abs igg, deamidated gliadin abs iga, and immunoglobulin a qn serum.  
    • Would you review this on Find Me Gluten free?  You can  use the app or just go to it on line. If the restaurant isn't listed, there is a way to suggest it.  I have done that and it works.  Many of us look at that site/ app
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