Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

My Symptoms Rant.
0

7 posts in this topic

I have not been tested for Celiac disease yet. But I decided to start a new topic about some of the symptoms I have so that I can learn.

 

Not sure if this is a symptom of Celiac or not but it's something that is an annoyance to me. Tinging. I get tingling in my left upper thigh mostly. It happened while I was sitting down eating my pasta and it happens a lot when I lay down. I also get tingling in my hands, but not as frequent as the thigh tingling has been.

0

Share this post


Link to post
Share on other sites


Another poster here gave me a great tip a few months ago - hopefully she'll be along to say more about it herself. The tip was that tingling can be caused by magnesium deficiency. I had awful tingling in one leg and sometimes in my arms for years and years, and I'd been to several specialists about it but they couldn't find the cause. It kept me awake at night and was constantly distracting. Well, by my third day on magnesium supplements the tingling was hugely improved! It was mostly gone after about a month on 600mg of magnesium per day. I went back and looked at some of my old blood tests from a few years ago, and lo and behold I did have low magnesium (plus low potassium and calcium) then, but my doctor at the time had said not to worry about it and never mentioned that it could cause the tingling. I was just retested and my magnesium is now in the normal range. 

 

I'm sure there are other causes of tingling too, but magnesium deficiency is one possible cause. I've since learned that anyone who's had diarrhea for years (whether from celiac or anything else) is quite likely to be low in magnesium, so it's definitely worth investigating. I never would have thought of it if someone hadn't mentioned it here. 

0

Share this post


Link to post
Share on other sites

Another poster here gave me a great tip a few months ago - hopefully she'll be along to say more about it herself. The tip was that tingling can be caused by magnesium deficiency. I had awful tingling in one leg and sometimes in my arms for years and years, and I'd been to several specialists about it but they couldn't find the cause. It kept me awake at night and was constantly distracting. Well, by my third day on magnesium supplements the tingling was hugely improved! It was mostly gone after about a month on 600mg of magnesium per day. I went back and looked at some of my old blood tests from a few years ago, and lo and behold I did have low magnesium (plus low potassium and calcium) then, but my doctor at the time had said not to worry about it and never mentioned that it could cause the tingling. I was just retested and my magnesium is now in the normal range. 

 

I'm sure there are other causes of tingling too, but magnesium deficiency is one possible cause. I've since learned that anyone who's had diarrhea for years (whether from celiac or anything else) is quite likely to be low in magnesium, so it's definitely worth investigating. I never would have thought of it if someone hadn't mentioned it here. 

Thanks Green. I actually didn't know that. Are there any food that can help increase my magnesium levels?

And also wanted to ask, I once had a thyroid test done but it was in the ER years ago and I am sure that they did it the quickest way possible. I wanted to know what tests I should be asking my dr for in order to get an accurate result whether negative or positive?

0

Share this post


Link to post
Share on other sites

Thanks Green. I actually didn't know that. Are there any food that can help increase my magnesium levels?

And also wanted to ask, I once had a thyroid test done but it was in the ER years ago and I am sure that they did it the quickest way possible. I wanted to know what tests I should be asking my dr for in order to get an accurate result whether negative or positive?

 

Dark leafy greens, nuts, and seeds tend to be high in magnesium (I'm sure there must be a more specific list online somewhere). I was already eating lots of those things but apparently wasn't absorbing them well, though. 

 

I'm not sure about thyroid tests. My doctor wouldn't order more than a basic TSH for me. But I've seen a lot of discussion on here about thyroid issues, so you may be able to find more info by using the "Search forum via Google" box at the top.

0

Share this post


Link to post
Share on other sites

Here's a list of foods that are high in magnesium: http://ods.od.nih.gov/factsheets/Magnesium-HealthProfessional/

 

 

I'm not sure about thyroid tests. My doctor wouldn't order more than a basic TSH for me. But I've seen a lot of discussion on here about thyroid issues, so you may be able to find more info by using the "Search forum via Google" box at the top.

 

Here is a comprehensive list of thyroid blood tests you can request: http://thyroid.about.com/od/gettestedanddiagnosed/a/testdiagnose.htm

 

Please take this with a grain of salt as I'm not a medical professional, but I would recommend requesting these 4 if you're unable to get all of the above tests done and strongly suspect a thyroid issue: 

TSH, free T3, free T4 and antibodies test (anti-TPO/TgAb, TSI/TRAb)

 

With the exception of congenital hypothyroidism, thyroid cancer or a pituitary gland problem - most of us have a family history of thyroid disease and it is usually autoimmune in nature (Hashimoto's thyroiditis or Graves disease). Like Celiac disease, it can be notoriously hard to diagnose especially if you are not a clear-cut case. For e.g. many people will have "normal" TSH results but textbook thyroid disease symptoms - remaining undiagnosed for years since it does not show up on labwork, while accumulating non-specific symptoms such as weight gain and depression. Usually, in this case, their antibodies are high (i.e. so the body is actively attacking the thyroid) but have not completely deteriorated the thyroid gland, so the other tests look ok. Many doctors do not treat thyroid disease based on antibodies alone, and wait until the diseases results in full-blown hypothyroidism or hyperthyroidism. It's also important to remember that the TSH is not a thyroid hormone, but is in fact, a pituitary gland hormone that works to tell the thyroid gland how much to produce - to know how much thyroid hormones is actually being produced, doing the T4/T3 test is important.The scale for TSH (0.3 - 3.00), as well as T4/T3 is also very subjective. My friend feels great at a TSH of 1, whereas I start having hyperthyroidism symptoms (heart palpitations, blurry vision, etc.) at that number. You can also have hypothyroid symptoms even when your results are in 'range', especially if they are in the mid to lower-end of that range. 

0

Share this post


Link to post
Share on other sites

Thank you for such detailed answers Green and 0range. I will look into foods with magnesium and also ask my dr about a possible thyroid issue.

 

Another question I had was, do any of you have an issue with bladder infections? I get many of them for some reason. Also, I have had on and off kidney pain (not now thank goodness) but have had a history of calcium buildup on my kidney which was painful. The CT scan didn't show stones...just a buildup of calcium. Is that normal?

0

Share this post


Link to post
Share on other sites

No problem! Regarding the UTI's: I know this is anecdotal evidence, but many women with Hashi's report having recurrent UTI's before their diagnosis. I have had 2 (once before my dx and one after) and hopefully never again! I'm really sorry to hear that you are getting them often. Could your recurrent ones be related to any of these factors?: http://www.healthcentral.com/encyclopedia/408/774.html?ic=506048

 

Did the doctor ever explain why there was a build-up of calcium in your kidneys? if it is a chronic problem, high levels of calcium deposits or levels in your blood can be indicative of hyperparathyroidism. Not to scare you! But something to look into. Best of luck and keep us posted =)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      102,669
    • Total Posts
      914,341
  • Topics

  • Posts

    • Even gluten-free Foods Triggering Reaction After Initial Glutening?
      I was glutened in July.  Badly.  I have NO clue as to what got me.  I suspect two things 1) a gluten free store- brand, product that might have been mis-labeled and 2) a prescription generic medication (contacted the manufacturer to confirm a gluten-free status but got the old liability statement of no guarantees).  Both items were NEVER consumed by my gluten free hubby who acts as my canary.     I probably got glutened again by eating out while on vacation even though I only at at restaurants recommended by other celiacs.  The rest of the time I was at my parent's house and I have a dedicated kitchen there for us.   Who knows?  But I was sick with anxiety, tummy issues, vomiting, the works.  It was strange since anemia was my original symptom and I really did not have tummy issues at the time of my diagnosis.  So, celiac symptoms can evolve at least for me!  Six weeks after my first sign of a glutening, I was tested by my new GI because I was not getting well.  He thought I had SIBO or bile duct issues. I asked for celiac blood testing.    Turns out it was gluten all along!   During my glutening, I became lactose intolerant again, could only eat stewed foods because everything hurt to get through my digestive tract.   I was a basket case for three months.    Did I mention new problems resulting from my glutening?  Hives, itching, vomiting, passing out and tummy aches almost daily.  Anti-histamines helped.    My GP thinks I am her most "allergic" patient.  Except it was more like a histamine intolerance or a mast cell issue not allergies.   Who knows?  The hives eventually resolved as I healed from my glutening.    I refuse to test the two items that were suspect.    No way!    Three months later, I got dairy back.  Six months later I am eating gluten free anything....without any issues.  I also do not take any meds (except for Armour Thyroid) , supplements, eat out and I avoid even processed gluten-free items.  But, I feel great.     I suppose that I will eventually slip up and get glutened again.  But I am working hard not too.  I like feeling well.   So, really look to your diet.  I bet you just keep getting glutened.  Stick to whole foods, follow the FODMAP diet and wait.  Wait.  Wait.    
    • Lower left abdominal, left pelvic & other random pains
      Chiro?  Hubby went to one with a shoulder injury as recommended by our GP. It was a great experience.    I always resisted.  Why?  Just a "gut" feeling.  Good thing.  My bones started fracturing on their own.  I can not imagine anyone manipulating me now.  If you have celiac disease, get a bone scan first.  Just saying.......
    • Gluten or SIBO; Should I gluten challenge to find out?
      Noobette, sure did use gluten-free oats! I even had to test the oats alone before the test as they sometimes give me problems, probably due to fodmap.  As an update, my symptoms became bad enough that we aborted the challenge. My colleague revealed I was eating the gluten! So I skipped the decoy sample to just get this over with. I'm not sure that my symptoms were celiac, but they were bad either way. Headaches, blurpy noisy gut, fatigue, fogginess, bloating, gas, pains. But those are vague, I'll find out for sure in a few more weeks. 
    • Gluten free diet, positive celiac screen...what should I eat now?
      After my blood test (DGP IgA positive), I went crazy eating gluten until my endoscopy.  Because of work issues, I waited for seven weeks.  Seven weeks of saying goodbye to my favorite gluteny foods!  I knew what was coming going gluten free since my hubby has been gluten free for over 14 years.  I was eating a loaf of sourdough a day besides cakes and cookies.  Yum!  But the bad news was that by the time my endoscopy rolled around, I was experiencing tummy issues (just had anemia before).  So, my advice is to take time to say goodbye to gluten, but do not be a glutton (like me!)  
    • Gluten free diet, positive celiac screen...what should I eat now?
      It's okay if you have more than 1 cracker a day; the challenge is saying you must have at least 1 cracker a day so if you want to have more that's absolutely fine. In fact, if you want to gorge on all your favorite gluten goodies from now until the endoscopy then have at it because it looks like you'll be saying goodbye to it all after the endoscopy. You say it's about a month till you see the GI doc..... it will be longer until an endoscopy because the GI will have to order it & it will have to get scheduled.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      59,684
    • Most Online
      1,763

    Newest Member
    Nikkishine
    Joined