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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Glutened Or Gastritis Flare?
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7 posts in this topic

I went on a road trip this past weekend, and had my first ever drink of alcohol on Sunday night. It was Arbor Mist wine, which from my research appeared to be gluten free. I didn't have much, maybe 2, 2 and half little glasses. I didn't really feel the fun part of it, all it did was flare my rosacea and make my brain fog worse and my stomach a little burny. (It was disappointing, really, after all that build up!) I knew it was a bad idea as I was diagnosed with chronic gastritis in December and have been doing so much better lately because I've been babying my stomach, but I'm turning 22 in 4 months and it was bothering me that I'd never tried anything at my age. Anyway, I felt ok the next morning, my stomach felt a little irritated but nothing too bad, and it got better after I ate breakfast. Late afternoon I started feeling weird and out of it the way I had when I was eating gluten, but at the time I figured I was just exhausted. I got home Monday night and felt a little sick after eating dinner. When I woke up Tuesday, I felt TERRIBLE. Weak, shaky limbs, dizziness, brain fog like I haven't had in months, anxiety and strong depressive outbursts, extreme nausea, urgent BMs. I took charcoal pills which I think prevented me from throwing up, and I've been sticking with broth and mashed bananas and easy foods like that. But now I'm not sure what caused it! I packed all of my own food for the road trip, but there were definitely opportunities for me to get glutened. Among other things, the friend I was riding with was eating fried chicken at the wheel and I was not nearly as careful as I could have been, especially towards the end. She also took a drink out of my glass after eating pasta and we shared a bag of grapes after she'd eaten a bagel.

In your opinion, is it possible this is all just due to a gastritis flare up from the wine, or have I been glutened? Or could it a weird, delayed reaction to something in the wine? The mental and shaky symptoms seem odd for just gastritis alone, but I can't really be sure. I haven't really been glutened since going gluten-free so I'm not sure how sensitive I am, or how I react.

 

It really sucks, I'm getting my wisdom teeth out tomorrow morning and I have all this on top of it! No good at all.

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i'd say glutened, too - my (full-on, hit by a truck) gluten reaction is delayed til day 2 after i ingest gluten.  i get really, really irritable, get a headache, not too bad and then POW day 2 forget it.  i'll be in the bed (or the bathroom)  hope you feel better soon

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Eclara,

Prior to my Dx, 7 months ago, drinking two glasses of wine gave me a relaxed " buzz". At present two glasses of wine have no intoxicating effect at all. In fact what follows is a sleepless night and several days of symptoms similar to having ingested gluten. Organic wine and " gluten free " beer have the same effect.

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Sounds like glutening from the road trip rather than wine...actually sounds like you may have had a couple glutenings...road trips are great, but do need extra care and a bit of steering wheel/gearshift cleanings if driving is shared with a gluteneater.

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Thank you all for the replies! I agree that it was probably the gluten, although the wine probably didn't help with the stomach pain. I guess I've learned my lesson about slacking now! I'm doing a little better today, the drugs from my wisdom tooth extraction are masking most of the other symptoms, so there's a plus! Weirdly, the glutening actually turned out to be a bit of a life saver for me today, as the stomach discomfort made going without food for 12 hours before the extraction much easier and the brain fog (which, among other things, dulls most of my emotions and make things feel unreal) pretty much killed any pre-surgery jitters I would absolutely have had otherwise and made it all go even faster. And now the painkillers have wiped out my muscle pain, so I guess if I was going to get glutened, now was a pretty good time to do it. Especially seeing as I've got the next few days off from life and solid foods anyhow. Killed two birds with one stone, as it were!

 

Thanks again!

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Weirdly, the glutening actually turned out to be a bit of a life saver for me today, as the stomach discomfort made going without food for 12 hours before the extraction much easier and the brain fog (which, among other things, dulls most of my emotions and make things feel unreal) pretty much killed any pre-surgery jitters I would absolutely have had otherwise and made it all go even faster.

 

Now that's what I call a positive attitude! Never thought there could be a bright(er) side to glutening lol.... Hope you keep feeling better...

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    • Will my doctor test me? So many symptoms...
      Remember that you have to be eating a normal gluten diet for the testing so don't cut back & don't stop eating it. Make sure they do the full, current celiac panel: Anti-Gliadin (AGA) IgA
      Anti-Gliadin (AGA) IgG
      Anti-Endomysial (EMA) IgA
      Anti-Tissue Transglutaminase (tTG) IgA
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      Total Serum IgA   
      Also can be termed this way: Endomysial Antibody IgA
      Tissue Transglutaminase IgA 
      GLIADIN IgG
      GLIADIN IgA
      Total Serum IgA 
      Deamidated Gliadin Peptide (DGP) IgA and IgG
    • Will my doctor test me? So many symptoms...
      Yep, get tested for celiac.  You have plenty of digestive symptoms to indicate it.
    • Weird Reaction
      Hi Richie, It definitely sounds like you got glutened.  Over here in the USA they can't label foods gluten-free if they are made from gluten ingredients, period.  So your barley drink would not be labeled gluten-free here.  A while back I read something about the testing for gluten in foods not being as accurate for detecting barley hordein as it is for wheat gliaden.  So the gluten-free testing (if they do any) that your drink maker does may not be reliable. Celiac disease is an autoimmune condition.  So the immune system starts reacting when it detects gluten and damages the gut lining.  An immune reaction is not like a food poisoning event, where most of the damage is only while the food is actually in your system and then ends.  An immune reaction can continue for weeks to months.  The immune system is really quite serious about protecting our bodies.  And since it is designed to detect and attack micro-organisms it reacts to tiny amounts of gluten. Wheat, barley, and rye are the main gluten grains that affect celiacs.  But some celiacs also react to oat gluten.  
    • Weird Reaction
      Hi Richie,  Glad you are feeling better. I wondered have you been officially diagnosed with coeliac disease? Just wondering as you say you are anaemic, that is one of the symptoms of coeliac disease, along with other general malnutrition. You don't need to eat meat for iron though, you can get it from non-heme foods, like spinach or parsley. Just be careful with the drink with barley, it may be that you only start to have symptoms if you consume a lot of it, but if you have coeliac disease the damage is still been done to your gut regardless of whether you have symptoms or not, which will ultimately lead to malnutrition as well as other things.
    • Weird Reaction
      I think, if all this is caused by glutening, it could be that it takes a while to work its way out of your system. I should explain about what I said about organic broccoli.   I don't have a problem with organic food,  in fact, I buy organic milk and carrots all the time, but I don't want to try organic broccoli in case it is the broccoli that is the problem, not the insecticide.    I meant to ask, are you a coeliac or is it non-coeliac gluten intolerance that you have?   I wonder what sort of support you get in Australia for these conditions once diagnosed?   Here in the UK I think the understanding is that if new gastro symptoms have lasted for more than six weeks it needs to be investigated.   I have found this very helpful advice because I do get odd twinges of pain and sometimes changes in bowel movements (sorry if tmi) but they rarely last more than a couple of weeks.   If they do persist I mention it to my gastroenteroligist and he follows it up.  I recently had a sigmoidoscopy for left sided pain and they found nothing.  Turns out it was to do with lactose intolerance, but I always imagine the worse!    
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