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Question About Break Outs...
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Hello!  Quick question, hopefully ;)  I have not been diagnosed with DH, but am very suspicious of it.  Started with a strange rash, went gluten free and rash went away.  Went back to eating gluten and it came back and I have had new bumps each day since going back to eating gluten.  I had one cluster that I recently posted pics of which was far more severe than any others have been.  I am still eating gluten but over the last few days really haven't noticed anything new.  Does this happen with DH?  Can you break out with new bumps every day for over a month and then stop for a few days, weeks, etc?

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The short answer is yes. But there are many rashes associated with celiac disease &/or gluten/wheat. People can be allergic to wheat & at the same time be celiac.

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I will add that with dh you can be eating gluten & completely clear up -- totally -- for maybe months at the time but with dh ..... ONE DAY it will break out like crazy & not go away.

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I will add that with dh you can be eating gluten & completely clear up -- totally -- for maybe months at the time but with dh ..... ONE DAY it will break out like crazy & not go away.

Thank you so much!  One thing I have noticed is that though I haven't really gotten anything new the last few days, the spots that are starting to heal keep getting inflamed again.  I also think ibuprofen may have been a trigger for the more severe outbreak as I was taking it every 6 hours or so for a few days.

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Yup, Ibuprofen will do it -- it does it to me. They will do that....start to heal & then get inflamed again. Stuff has a mind of it's own. :angry:  :angry:  :ph34r:

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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