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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Getting Too Comfortable
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29 posts in this topic

Sometimes, I get too comfortable and am not as vigilant as I should be. A few days ago, the restaurant I work at got a different type of potato chips and I grabbed a bag, just totally not thinking anything. an hour later, I had a screaming headache and when I got home, I took a nap. Later that night at my daughter's cheer practice, I whipped out a second bag that I brought home and started eating. Bored, I read the bag. Where it says Allergen information, it only started soy..nothing about wheat or gluten like a lot of products will say. so I read the actual ingredients, and there it was...Malt (Barley extract). I spit the chips out and threw them away. 

I was sick all that night and all the next day and night. 

 

Which brings me to today. I am still a little groggy feeling but much, much better. Almost a year gluten-free and I am still making rookie mistakes. I have to stop being too comfortable with what I "think" to be gluten-free. 

 

Just a reminder to all the still newly diagnosed like myself, always be vigilant!

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Oops, yeah always read the label like you said.  The last one I missed was bottled water.  I found eventually that it had added ingredients, but thankfully none disagreed with me.  Shew! 

 

I had seen one brand of  bottled water with wheat added several months back.  Just to clarify, I haven't found any since, so I think it is unusual.

D

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Oops, yeah always read the label like you said.  The last one I missed was bottled water.  I found eventually that it had added ingredients, but thankfully none disagreed with me.  Shew!  I had seen bottled water with wheat added before.

 

D

Bottled water with wheat? My goodness, I'm never come across that one before! Thanks for the warning!

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 I had seen bottled water with wheat added before.

 

D

diana.  what brand of bottled water has wheat in it.  ???????????????????????????  

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Oops, yeah always read the label like you said.  The last one I missed was bottled water.  I found eventually that it had added ingredients, but thankfully none disagreed with me.  Shew!  I had seen bottled water with wheat added before.

 

D

 

 

what?? holy smokes.....that's not at all "usual."....are you sure?? name the brand please!!

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Sometimes, I get too comfortable and am not as vigilant as I should be. A few days ago, the restaurant I work at got a different type of potato chips and I grabbed a bag, just totally not thinking anything. an hour later, I had a screaming headache and when I got home, I took a nap. Later that night at my daughter's cheer practice, I whipped out a second bag that I brought home and started eating. Bored, I read the bag. Where it says Allergen information, it only started soy..nothing about wheat or gluten like a lot of products will say. so I read the actual ingredients, and there it was...Malt (Barley extract). I spit the chips out and threw them away. 

I was sick all that night and all the next day and night. 

 

Which brings me to today. I am still a little groggy feeling but much, much better. Almost a year gluten-free and I am still making rookie mistakes. I have to stop being too comfortable with what I "think" to be gluten-free. 

 

Just a reminder to all the still newly diagnosed like myself, always be vigilant!

 

 

Congrats!!--you went a whole year without making a doofus rookie mistake! I think that's admirable.

I know I can't say I went the first year without hitting myself. 

Might actually be a record around here or sumthin' :)

Sorry you got hit, though. ((huggles)) feel better soon

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Oops, yeah always read the label like you said. The last one I missed was bottled water. I found eventually that it had added ingredients, but thankfully none disagreed with me. Shew! I had seen bottled water with wheat added before.

D

If that is true, I think you need to tell us the brand! I can't imagine plain water could have wheat added. Why? It wouldn't be clear any longer! It wouldn't taste clear and fresh like bottled water is supposed to taste.

Please, everyone! Lets use a little common sense here!

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 I had seen bottled water with wheat added before.

 

D

Me too, and not being a celiac, the only bottled water I drink that has wheat in it

.

It's called beer.

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Me too, and not being a celiac, the only bottled water I drink that has wheat in it

.

It's called beer.

Exactly what I was going to say.

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Me too, and not being a celiac, the only bottled water I drink that has wheat in it

.

It's called beer.

Oh! It was a joke.....maybe? But it wasn't clear that it was and so it may have led one poster to think there is wheat in water and be worried needlessly.
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If that is true, I think you need to tell us the brand! I can't imagine plain water could have wheat added. Why? It wouldn't be clear any longer! It wouldn't taste clear and fresh like bottled water is supposed to taste.

Please, everyone! Lets use a little common sense here!

I am sorry, I don't remember the brand.  I bought it from a vending machine, read the label, and tried to give it away.  However, my friend wouldn't take it, so I set it down by the machine and left.  Most brands of water do not add it.  But really my only point is to read every label which should not hurt.  If anyone does know a brand name, let us know.

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I am sorry, I don't remember the brand.  I bought it from a vending machine, read the label, and tried to give it away.  However, my friend wouldn't take it, so I set it down by the machine and left.  Most brands of water do not add it.  But really my only point is to read every label which should not hurt.  If anyone does know a brand name, let us know.

 

sorry, but I cannot believe that any brand of plain bottled water would add wheat  to it. Just does not make sense.

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I was just too intrigued by this and had to research it. I came across a blog on which the poster said that while on a road trip, she drank bottled water provided by her hotel. The poster has a wheat allergy and went into anaphylaxis. She apparently went online and read about the process used to add minerals back INTO the water, and one of the ingredients for that is something called "tocopherol," a wheat derivative. 

 

That's the first I've heard of something like this, but it honestly wouldn't surprised me. There are weird ingredients in all kinds of places they shouldn't be lurking! 

 

Anyway, here is a link to the blog if you'd like to check it out: http://clarerowley.wordpress.com/tag/wheat/

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And here I was going to start buying bottled water. I will look for "tocopherol" in water from now on in water. I have never had a reaction to bottled water tho. Yesterday I was reading this thread and then did a search and I should of saved it. Because I read somewhere that flavored water could have a wheat product in it. Pretty sure it said Lemon water. Like I said wish I'd of saved it. 

 

Back on topic tho , yea I assumed some corn chips at this one restaurant was Gluten free, but it wasn't I kept wondering what was making me react every time I went there and then I asked. They gave me their Gluten free menu and their chips were not on it. Pffttt!! Come on really???? Corn chips!! Corn chips have Gluten!! Anyhoo I know not all corn chips do. The ones I buy do not have it. I assumed these did not.  

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I was just too intrigued by this and had to research it. I came across a blog on which the poster said that while on a road trip, she drank bottled water provided by her hotel. The poster has a wheat allergy and went into anaphylaxis. She apparently went online and read about the process used to add minerals back INTO the water, and one of the ingredients for that is something called "tocopherol," a wheat derivative.

That's the first I've heard of something like this, but it honestly wouldn't surprised me. There are weird ingredients in all kinds of places they shouldn't be lurking!

Anyway, here is a link to the blog if you'd like to check it out: http://clarerowley.wordpress.com/tag/wheat/

I don't give too much credence to other people's blogs, unless i know the person is well qualified in their field. For one thing she said, she 'went into anaphylaxis and had to pull over to pass out'! You don't 'pass out' with anaphylaxis, your organs shut down and need an adrenalin injection to stop you from dying! Also, she said tocopherol is a wheat derivitive, this too is not strictly true. You can get tocopherol (also known as vitamin E) from wheat, but you can also get it from other sources, for example, sunflower oil. I use products with tocopherol in them, I just check with the manufacturer to see if it's gluten free tocopherol (i.e. a non- wheat source vitamin E).
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Regarding tocopherols. Read the science, not anecdotal evidence from a blogger.

People who say "i heard" or "I can't remember the name"--are not helpful at all.

It just serves to create a sense of paranoia that is groundless.

 

Read this article by Tricia Thompson, a registered dietician and celiac specialist, please:

 

http://www.glutenfreedietitian.com/newsletter/vitamin-e-from-wheat-germ-oil/

 

There are too many myths and an abundance of misinformation on the internet.

Do the homework before you believe everything you read. :)

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Obviously, you would want to read the ingredients on a flavored or "vitamin" water.  I haven't seen any of those with wheat or any type of gluten  - but I guess one could turn up.  Some random person's blog or assertion on a forum about something that doesn't make sense - likely isn't true.

 

Please use some common sense!  Most Celiacs live in the world and are not "glutened" all the time from odd "hidden" things.

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The Canadian Celiac Association lists tocopherols as a safe food ingredient, without qualification. While wheat germ oil is a possible source, the resulting product is gluten-free.

Here's an article by Tricia Thompson about Vitamin E and tocopherol.

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I wasn't saying that the information that I found was fact...just pointing it out as the only info I could find regarding the idea of wheat additives in bottled water.  :)

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I wasn't saying that the information that I found was fact...just pointing it out as the only info I could find regarding the idea of wheat additives in bottled water.  :)

 

 

We get that part, hon---but  then we all have to try to explain to readers of the thread why it was not really valid  :) that's what we do.

People look to this forum for solid information about celiac and negotiating the gluten free diet. 

A random blog entry? Not really valid.

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We get that part, hon---but  then we all have to try to explain to readers of the thread why it was not really valid  :) that's what we do.

People look to this forum for solid information about celiac and negotiating the gluten free diet. 

A random blog entry? Not really valid.

 

Fair 'nuf.  :)

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Holy tangent, batman.

I'm thinking that there are plenty of water products out there that contain gluten, but not so much for plain water. I'd read the label on anything that had flavorings, vitamins, or even colorings added. And I don't consider the "Vitamin Water" brand to be water myself, but I bet others do.

To the original poster, so sorry to hear that you got busted on such a simple thing. Hope you're feeling better soon.

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Sometimes, I get too comfortable and am not as vigilant as I should be. A few days ago, the restaurant I work at got a different type of potato chips and I grabbed a bag, just totally not thinking anything. an hour later, I had a screaming headache and when I got home, I took a nap. Later that night at my daughter's cheer practice, I whipped out a second bag that I brought home and started eating. Bored, I read the bag. Where it says Allergen information, it only started soy..nothing about wheat or gluten like a lot of products will say. so I read the actual ingredients, and there it was...Malt (Barley extract). I spit the chips out and threw them away. 

I was sick all that night and all the next day and night. 

 

Which brings me to today. I am still a little groggy feeling but much, much better. Almost a year gluten-free and I am still making rookie mistakes. I have to stop being too comfortable with what I "think" to be gluten-free. 

 

Just a reminder to all the still newly diagnosed like myself, always be vigilant!

I know what you mean.  I make careless mistakes after 18 months gluten free.  Thankfully, sometimes I get by with it.  Like I don't read the label, but it was safe anyway.

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And here I was going to start buying bottled water. I will look for "tocopherol" in water from now on in water. I have never had a reaction to bottled water tho. Yesterday I was reading this thread and then did a search and I should of saved it. Because I read somewhere that flavored water could have a wheat product in it. Pretty sure it said Lemon water. Like I said wish I'd of saved it. 

 

Back on topic tho , yea I assumed some corn chips at this one restaurant was Gluten free, but it wasn't I kept wondering what was making me react every time I went there and then I asked. They gave me their Gluten free menu and their chips were not on it. Pffttt!! Come on really???? Corn chips!! Corn chips have Gluten!! Anyhoo I know not all corn chips do. The ones I buy do not have it. I assumed these did not.  

Regarding corn chips and gluten-free, I went to a restaurant once where their corn chips weren't gluten-free because they were made at the restaurant, and they had a shared fryer. 

 

Actually, that's also the source of my "best" (and by best I mean worst, LOL) gluten-free restaurant story. I ordered a meal that would normally have come with bread, and I asked them if I could get corn chips instead. They came back and told me their corn chips weren't gluten-free because of their shared fryer, so I said never mind to the chips, and just figured I'd eat my meal without them. When my food came, I had a side of chips. I said to the waiter "oh, did you find some gluten free chips?" thinking that maybe they had a bag in the kitchen for some reason, and the waiter said "no, I just thought you might want them anyway." Sigh. Other than that, the meal was fine; I didn't get sick or anything, but I won't be going back to that place any time soon.

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I can relate. I've been completely gluten-free for 10 years. A good few months back I grabbed a bag of Rudi's (Rudy's?) hot dog buns.... not knowing they also made non-gluten-free products. The reaction I had from eating ONE got dog bun was so severe... I've spent the last many months rereading many of my old labels... not trusting ANYONE or ANYTHING. What a terrible learning curve!!

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