Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Getting Too Comfortable
0

29 posts in this topic

Sometimes, I get too comfortable and am not as vigilant as I should be. A few days ago, the restaurant I work at got a different type of potato chips and I grabbed a bag, just totally not thinking anything. an hour later, I had a screaming headache and when I got home, I took a nap. Later that night at my daughter's cheer practice, I whipped out a second bag that I brought home and started eating. Bored, I read the bag. Where it says Allergen information, it only started soy..nothing about wheat or gluten like a lot of products will say. so I read the actual ingredients, and there it was...Malt (Barley extract). I spit the chips out and threw them away. 

I was sick all that night and all the next day and night. 

 

Which brings me to today. I am still a little groggy feeling but much, much better. Almost a year gluten-free and I am still making rookie mistakes. I have to stop being too comfortable with what I "think" to be gluten-free. 

 

Just a reminder to all the still newly diagnosed like myself, always be vigilant!

0

Share this post


Link to post
Share on other sites


Ads by Google:

Oops, yeah always read the label like you said.  The last one I missed was bottled water.  I found eventually that it had added ingredients, but thankfully none disagreed with me.  Shew! 

 

I had seen one brand of  bottled water with wheat added several months back.  Just to clarify, I haven't found any since, so I think it is unusual.

D

0

Share this post


Link to post
Share on other sites

Oops, yeah always read the label like you said.  The last one I missed was bottled water.  I found eventually that it had added ingredients, but thankfully none disagreed with me.  Shew!  I had seen bottled water with wheat added before.

 

D

Bottled water with wheat? My goodness, I'm never come across that one before! Thanks for the warning!

0

Share this post


Link to post
Share on other sites

 I had seen bottled water with wheat added before.

 

D

diana.  what brand of bottled water has wheat in it.  ???????????????????????????  

0

Share this post


Link to post
Share on other sites

Oops, yeah always read the label like you said.  The last one I missed was bottled water.  I found eventually that it had added ingredients, but thankfully none disagreed with me.  Shew!  I had seen bottled water with wheat added before.

 

D

 

 

what?? holy smokes.....that's not at all "usual."....are you sure?? name the brand please!!

0

Share this post


Link to post
Share on other sites




Sometimes, I get too comfortable and am not as vigilant as I should be. A few days ago, the restaurant I work at got a different type of potato chips and I grabbed a bag, just totally not thinking anything. an hour later, I had a screaming headache and when I got home, I took a nap. Later that night at my daughter's cheer practice, I whipped out a second bag that I brought home and started eating. Bored, I read the bag. Where it says Allergen information, it only started soy..nothing about wheat or gluten like a lot of products will say. so I read the actual ingredients, and there it was...Malt (Barley extract). I spit the chips out and threw them away. 

I was sick all that night and all the next day and night. 

 

Which brings me to today. I am still a little groggy feeling but much, much better. Almost a year gluten-free and I am still making rookie mistakes. I have to stop being too comfortable with what I "think" to be gluten-free. 

 

Just a reminder to all the still newly diagnosed like myself, always be vigilant!

 

 

Congrats!!--you went a whole year without making a doofus rookie mistake! I think that's admirable.

I know I can't say I went the first year without hitting myself. 

Might actually be a record around here or sumthin' :)

Sorry you got hit, though. ((huggles)) feel better soon

0

Share this post


Link to post
Share on other sites

Oops, yeah always read the label like you said. The last one I missed was bottled water. I found eventually that it had added ingredients, but thankfully none disagreed with me. Shew! I had seen bottled water with wheat added before.

D

If that is true, I think you need to tell us the brand! I can't imagine plain water could have wheat added. Why? It wouldn't be clear any longer! It wouldn't taste clear and fresh like bottled water is supposed to taste.

Please, everyone! Lets use a little common sense here!

0

Share this post


Link to post
Share on other sites

 I had seen bottled water with wheat added before.

 

D

Me too, and not being a celiac, the only bottled water I drink that has wheat in it

.

It's called beer.

1

Share this post


Link to post
Share on other sites

Me too, and not being a celiac, the only bottled water I drink that has wheat in it

.

It's called beer.

Exactly what I was going to say.

0

Share this post


Link to post
Share on other sites

Me too, and not being a celiac, the only bottled water I drink that has wheat in it

.

It's called beer.

Oh! It was a joke.....maybe? But it wasn't clear that it was and so it may have led one poster to think there is wheat in water and be worried needlessly.
0

Share this post


Link to post
Share on other sites

If that is true, I think you need to tell us the brand! I can't imagine plain water could have wheat added. Why? It wouldn't be clear any longer! It wouldn't taste clear and fresh like bottled water is supposed to taste.

Please, everyone! Lets use a little common sense here!

I am sorry, I don't remember the brand.  I bought it from a vending machine, read the label, and tried to give it away.  However, my friend wouldn't take it, so I set it down by the machine and left.  Most brands of water do not add it.  But really my only point is to read every label which should not hurt.  If anyone does know a brand name, let us know.

0

Share this post


Link to post
Share on other sites

I am sorry, I don't remember the brand.  I bought it from a vending machine, read the label, and tried to give it away.  However, my friend wouldn't take it, so I set it down by the machine and left.  Most brands of water do not add it.  But really my only point is to read every label which should not hurt.  If anyone does know a brand name, let us know.

 

sorry, but I cannot believe that any brand of plain bottled water would add wheat  to it. Just does not make sense.

0

Share this post


Link to post
Share on other sites

I was just too intrigued by this and had to research it. I came across a blog on which the poster said that while on a road trip, she drank bottled water provided by her hotel. The poster has a wheat allergy and went into anaphylaxis. She apparently went online and read about the process used to add minerals back INTO the water, and one of the ingredients for that is something called "tocopherol," a wheat derivative. 

 

That's the first I've heard of something like this, but it honestly wouldn't surprised me. There are weird ingredients in all kinds of places they shouldn't be lurking! 

 

Anyway, here is a link to the blog if you'd like to check it out: http://clarerowley.wordpress.com/tag/wheat/

0

Share this post


Link to post
Share on other sites

And here I was going to start buying bottled water. I will look for "tocopherol" in water from now on in water. I have never had a reaction to bottled water tho. Yesterday I was reading this thread and then did a search and I should of saved it. Because I read somewhere that flavored water could have a wheat product in it. Pretty sure it said Lemon water. Like I said wish I'd of saved it. 

 

Back on topic tho , yea I assumed some corn chips at this one restaurant was Gluten free, but it wasn't I kept wondering what was making me react every time I went there and then I asked. They gave me their Gluten free menu and their chips were not on it. Pffttt!! Come on really???? Corn chips!! Corn chips have Gluten!! Anyhoo I know not all corn chips do. The ones I buy do not have it. I assumed these did not.  

0

Share this post


Link to post
Share on other sites

I was just too intrigued by this and had to research it. I came across a blog on which the poster said that while on a road trip, she drank bottled water provided by her hotel. The poster has a wheat allergy and went into anaphylaxis. She apparently went online and read about the process used to add minerals back INTO the water, and one of the ingredients for that is something called "tocopherol," a wheat derivative.

That's the first I've heard of something like this, but it honestly wouldn't surprised me. There are weird ingredients in all kinds of places they shouldn't be lurking!

Anyway, here is a link to the blog if you'd like to check it out: http://clarerowley.wordpress.com/tag/wheat/

I don't give too much credence to other people's blogs, unless i know the person is well qualified in their field. For one thing she said, she 'went into anaphylaxis and had to pull over to pass out'! You don't 'pass out' with anaphylaxis, your organs shut down and need an adrenalin injection to stop you from dying! Also, she said tocopherol is a wheat derivitive, this too is not strictly true. You can get tocopherol (also known as vitamin E) from wheat, but you can also get it from other sources, for example, sunflower oil. I use products with tocopherol in them, I just check with the manufacturer to see if it's gluten free tocopherol (i.e. a non- wheat source vitamin E).
0

Share this post


Link to post
Share on other sites

Regarding tocopherols. Read the science, not anecdotal evidence from a blogger.

People who say "i heard" or "I can't remember the name"--are not helpful at all.

It just serves to create a sense of paranoia that is groundless.

 

Read this article by Tricia Thompson, a registered dietician and celiac specialist, please:

 

http://www.glutenfreedietitian.com/newsletter/vitamin-e-from-wheat-germ-oil/

 

There are too many myths and an abundance of misinformation on the internet.

Do the homework before you believe everything you read. :)

0

Share this post


Link to post
Share on other sites

Obviously, you would want to read the ingredients on a flavored or "vitamin" water.  I haven't seen any of those with wheat or any type of gluten  - but I guess one could turn up.  Some random person's blog or assertion on a forum about something that doesn't make sense - likely isn't true.

 

Please use some common sense!  Most Celiacs live in the world and are not "glutened" all the time from odd "hidden" things.

0

Share this post


Link to post
Share on other sites

The Canadian Celiac Association lists tocopherols as a safe food ingredient, without qualification. While wheat germ oil is a possible source, the resulting product is gluten-free.

Here's an article by Tricia Thompson about Vitamin E and tocopherol.

0

Share this post


Link to post
Share on other sites

I wasn't saying that the information that I found was fact...just pointing it out as the only info I could find regarding the idea of wheat additives in bottled water.  :)

0

Share this post


Link to post
Share on other sites

I wasn't saying that the information that I found was fact...just pointing it out as the only info I could find regarding the idea of wheat additives in bottled water.  :)

 

 

We get that part, hon---but  then we all have to try to explain to readers of the thread why it was not really valid  :) that's what we do.

People look to this forum for solid information about celiac and negotiating the gluten free diet. 

A random blog entry? Not really valid.

0

Share this post


Link to post
Share on other sites

We get that part, hon---but  then we all have to try to explain to readers of the thread why it was not really valid  :) that's what we do.

People look to this forum for solid information about celiac and negotiating the gluten free diet. 

A random blog entry? Not really valid.

 

Fair 'nuf.  :)

0

Share this post


Link to post
Share on other sites

Holy tangent, batman.

I'm thinking that there are plenty of water products out there that contain gluten, but not so much for plain water. I'd read the label on anything that had flavorings, vitamins, or even colorings added. And I don't consider the "Vitamin Water" brand to be water myself, but I bet others do.

To the original poster, so sorry to hear that you got busted on such a simple thing. Hope you're feeling better soon.

0

Share this post


Link to post
Share on other sites

Sometimes, I get too comfortable and am not as vigilant as I should be. A few days ago, the restaurant I work at got a different type of potato chips and I grabbed a bag, just totally not thinking anything. an hour later, I had a screaming headache and when I got home, I took a nap. Later that night at my daughter's cheer practice, I whipped out a second bag that I brought home and started eating. Bored, I read the bag. Where it says Allergen information, it only started soy..nothing about wheat or gluten like a lot of products will say. so I read the actual ingredients, and there it was...Malt (Barley extract). I spit the chips out and threw them away. 

I was sick all that night and all the next day and night. 

 

Which brings me to today. I am still a little groggy feeling but much, much better. Almost a year gluten-free and I am still making rookie mistakes. I have to stop being too comfortable with what I "think" to be gluten-free. 

 

Just a reminder to all the still newly diagnosed like myself, always be vigilant!

I know what you mean.  I make careless mistakes after 18 months gluten free.  Thankfully, sometimes I get by with it.  Like I don't read the label, but it was safe anyway.

0

Share this post


Link to post
Share on other sites

And here I was going to start buying bottled water. I will look for "tocopherol" in water from now on in water. I have never had a reaction to bottled water tho. Yesterday I was reading this thread and then did a search and I should of saved it. Because I read somewhere that flavored water could have a wheat product in it. Pretty sure it said Lemon water. Like I said wish I'd of saved it. 

 

Back on topic tho , yea I assumed some corn chips at this one restaurant was Gluten free, but it wasn't I kept wondering what was making me react every time I went there and then I asked. They gave me their Gluten free menu and their chips were not on it. Pffttt!! Come on really???? Corn chips!! Corn chips have Gluten!! Anyhoo I know not all corn chips do. The ones I buy do not have it. I assumed these did not.  

Regarding corn chips and gluten-free, I went to a restaurant once where their corn chips weren't gluten-free because they were made at the restaurant, and they had a shared fryer. 

 

Actually, that's also the source of my "best" (and by best I mean worst, LOL) gluten-free restaurant story. I ordered a meal that would normally have come with bread, and I asked them if I could get corn chips instead. They came back and told me their corn chips weren't gluten-free because of their shared fryer, so I said never mind to the chips, and just figured I'd eat my meal without them. When my food came, I had a side of chips. I said to the waiter "oh, did you find some gluten free chips?" thinking that maybe they had a bag in the kitchen for some reason, and the waiter said "no, I just thought you might want them anyway." Sigh. Other than that, the meal was fine; I didn't get sick or anything, but I won't be going back to that place any time soon.

0

Share this post


Link to post
Share on other sites

I can relate. I've been completely gluten-free for 10 years. A good few months back I grabbed a bag of Rudi's (Rudy's?) hot dog buns.... not knowing they also made non-gluten-free products. The reaction I had from eating ONE got dog bun was so severe... I've spent the last many months rereading many of my old labels... not trusting ANYONE or ANYTHING. What a terrible learning curve!!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,636
    • Total Posts
      918,421
  • Topics

  • Posts

    • Celiac Night Vision
      Scotomas returned for the 7th year on the 24th February despite liver pâté and have varied since with 3 brief gaps. I have always had migraine, latterly occurring more than once a month, usually of basilar or retinal type with aura (but no headache) lasting less than 5 minutes. A recent bout looked like a TIA and led to a CT scan which revealed clear major vessels but old cerebellar infarcts, so maybe migraine accounts for poor memory too. The scotomas are very different from migraine eye symptoms - stationary, irregular in shape and lasting hours. I think food is excluded as the cause but seasonality, gaps, variation with wind direction and rain mean that pollen is still a possibility. Scott Adams did a marvellous thing founding this site so celiacs could enlighten each other. Please post if you have anything like these scotomas!
    • healthy bread recipe?
      Eat what you eat at lunch or dinner.  I am happy with a fried hamburger patty, fish, or chicken (I know it needs to be fresh or frozen for the histamine diet).  Yes, I eat veggies for breakfast!   Wanted to add that I was glutened in July (GI ordered follow-up antibodies testing and it was high)  and it took me 3 months to recover.  Picked up a histamine intolerance and became lactose intolerant again.  Luckily, when I healed, the histamine thing went away (or  Diminished ) and the lactose intolerance resolved.    I was getting hives, rashes and itching (not DH), vomiting, etc.  So, her intolerances may be just temorary!  
    • Could this be celiac or is it really just IBS?
      Are you sure you had the complete celiac panel?  Here are the tests:   -Tissue Transglutaminase (tTG) IgA and (tTG) IgG -Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG -EMA IgA  -total serum IgA and IgG (control test)     -endoscopic biopsy - make sure at least 6 samples are taken   VERY IMPORTANT:  Keep eating gluten daily until ALL testing is complete or the tests can be inaccurate.     (Source: NVSMOM -- 😊)   Here is more information from a reputable site (and not just info from a crazy cyclist on the Internet!):   http://www.cureceliacdisease.org/screening/   IBS, in my opinion, means "I Be Stumped!"  It is just a cop out!  So is the "stressed" thing.     I also had my GB out too.   It was a non-functioning (0% per HIDA scan), no stones, and rotting.     You seem to have many celiac disease symptoms.  Verify (obtain copies of your lab tests) to see if you got the complete panel. You might just have had the TTG IGA and TTG IGG tests.  Good for screening but it does not catch all celiacs.  My TTG tests are always negative even on follow-up testing.  The DGP test catches a positive for me.  My biopsies revealed moderate to severe damage.  If my celiac-savvy GI did not order the complete panel, my celiac disease diagnosis would never have been caught.   if celiac disease is really ruled out, research mast cell disorders.  The flushing and GI upset sound familiar!  You can have more than one thing going on!  But I would put my money on celiac disease!            
    • tightness in throat after eating gluten?
      I've noticed that if I accidentally eat gluten, for the next few days I have this tightness in my throat. It feels like my throat is closing. It's not constant, but comes and goes throughout the next 1-3 days. My hands have also been itchy. Is this a normal symptom for celiac or gluten intolerance, or could it possibly be an allergy? I haven't been tested or diagnosed with celiac or anything yet, so I'm still not entirely sure. All I know is that gluten makes me very sick.. But especially with the itchiness and tight throat.. I'm allergic to acetaminophen and my reaction is similar, so it just makes me wonder. What do you think?
    • Diagnosis and Test Results
      I am sorry that you are sick!  😔.  I think you need to find out which celiac antibody tests were given.  Often just the TTG Is ordered for initial screening.  This test catches most, but not all celiacs (like me!)   You also need to see if they gave you the igA deficency test too.   Here are the tests:   -Tissue Transglutaminase (tTG) IgA and (tTG) IgG -Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG -EMA IgA  -total serum IgA and IgG (control test)   -endoscopic biopsy - make sure at least 6 samples are taken   VERY IMPORTANT:  Keep eating gluten daily until ALL testing is complete or the tests can be inaccurate.     (Source: NVSMOM -- 😊)     http://www.cureceliacdisease.org/screening/ You can go gluten free, but knowing if you have an autoimmune disease is helpful.  celiac disease is genetic (you have the genes, but so does 30% of the population and that's why the gene test is used only to exclude celiac disease and not diagnose it).   All family members should be tested even if they are symptom free.   I hope you figure it out and I am sorry that you had such a horrible experience.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,726
    • Most Online
      1,763

    Newest Member
    bitsunderground
    Joined