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Getting Too Comfortable


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28 replies to this topic

#16 IrishHeart

 
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Posted 12 August 2013 - 05:01 AM

Regarding tocopherols. Read the science, not anecdotal evidence from a blogger.

People who say "i heard" or "I can't remember the name"--are not helpful at all.

It just serves to create a sense of paranoia that is groundless.

 

Read this article by Tricia Thompson, a registered dietician and celiac specialist, please:

 

http://www.glutenfre...wheat-germ-oil/

 

There are too many myths and an abundance of misinformation on the internet.

Do the homework before you believe everything you read. :)


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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


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#17 kareng

 
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Posted 12 August 2013 - 05:19 AM

Obviously, you would want to read the ingredients on a flavored or "vitamin" water.  I haven't seen any of those with wheat or any type of gluten  - but I guess one could turn up.  Some random person's blog or assertion on a forum about something that doesn't make sense - likely isn't true.

 

Please use some common sense!  Most Celiacs live in the world and are not "glutened" all the time from odd "hidden" things.


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#18 psawyer

 
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Posted 12 August 2013 - 05:46 AM

The Canadian Celiac Association lists tocopherols as a safe food ingredient, without qualification. While wheat germ oil is a possible source, the resulting product is gluten-free.

Here's an article by Tricia Thompson about Vitamin E and tocopherol.
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Peter
Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000.
Type 1 (autoimmune) diabetes diagnosed in March 1986
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#19 BelleVie

 
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Posted 12 August 2013 - 06:37 AM

I wasn't saying that the information that I found was fact...just pointing it out as the only info I could find regarding the idea of wheat additives in bottled water.  :)


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#20 IrishHeart

 
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Posted 12 August 2013 - 06:45 AM

I wasn't saying that the information that I found was fact...just pointing it out as the only info I could find regarding the idea of wheat additives in bottled water.  :)

 

 

We get that part, hon---but  then we all have to try to explain to readers of the thread why it was not really valid  :) that's what we do.

People look to this forum for solid information about celiac and negotiating the gluten free diet. 

A random blog entry? Not really valid.


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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#21 BelleVie

 
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Posted 12 August 2013 - 07:16 AM

We get that part, hon---but  then we all have to try to explain to readers of the thread why it was not really valid  :) that's what we do.

People look to this forum for solid information about celiac and negotiating the gluten free diet. 

A random blog entry? Not really valid.

 

Fair 'nuf.  :)


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#22 AlwaysLearning

 
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Posted 12 August 2013 - 09:28 PM

Holy tangent, batman.

I'm thinking that there are plenty of water products out there that contain gluten, but not so much for plain water. I'd read the label on anything that had flavorings, vitamins, or even colorings added. And I don't consider the "Vitamin Water" brand to be water myself, but I bet others do.

To the original poster, so sorry to hear that you got busted on such a simple thing. Hope you're feeling better soon.


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#23 1desperateladysaved

 
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Posted 13 August 2013 - 03:39 AM

Sometimes, I get too comfortable and am not as vigilant as I should be. A few days ago, the restaurant I work at got a different type of potato chips and I grabbed a bag, just totally not thinking anything. an hour later, I had a screaming headache and when I got home, I took a nap. Later that night at my daughter's cheer practice, I whipped out a second bag that I brought home and started eating. Bored, I read the bag. Where it says Allergen information, it only started soy..nothing about wheat or gluten like a lot of products will say. so I read the actual ingredients, and there it was...Malt (Barley extract). I spit the chips out and threw them away. 

I was sick all that night and all the next day and night. 

 

Which brings me to today. I am still a little groggy feeling but much, much better. Almost a year gluten-free and I am still making rookie mistakes. I have to stop being too comfortable with what I "think" to be gluten-free. 

 

Just a reminder to all the still newly diagnosed like myself, always be vigilant!

I know what you mean.  I make careless mistakes after 18 months gluten free.  Thankfully, sometimes I get by with it.  Like I don't read the label, but it was safe anyway.


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#24 andi1235

 
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Posted 14 August 2013 - 04:29 PM

And here I was going to start buying bottled water. I will look for "tocopherol" in water from now on in water. I have never had a reaction to bottled water tho. Yesterday I was reading this thread and then did a search and I should of saved it. Because I read somewhere that flavored water could have a wheat product in it. Pretty sure it said Lemon water. Like I said wish I'd of saved it. 

 

Back on topic tho , yea I assumed some corn chips at this one restaurant was Gluten free, but it wasn't I kept wondering what was making me react every time I went there and then I asked. They gave me their Gluten free menu and their chips were not on it. Pffttt!! Come on really???? Corn chips!! Corn chips have Gluten!! Anyhoo I know not all corn chips do. The ones I buy do not have it. I assumed these did not.  

Regarding corn chips and gluten-free, I went to a restaurant once where their corn chips weren't gluten-free because they were made at the restaurant, and they had a shared fryer. 

 

Actually, that's also the source of my "best" (and by best I mean worst, LOL) gluten-free restaurant story. I ordered a meal that would normally have come with bread, and I asked them if I could get corn chips instead. They came back and told me their corn chips weren't gluten-free because of their shared fryer, so I said never mind to the chips, and just figured I'd eat my meal without them. When my food came, I had a side of chips. I said to the waiter "oh, did you find some gluten free chips?" thinking that maybe they had a bag in the kitchen for some reason, and the waiter said "no, I just thought you might want them anyway." Sigh. Other than that, the meal was fine; I didn't get sick or anything, but I won't be going back to that place any time soon.


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#25 luvs2eat

 
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Posted 14 August 2013 - 04:46 PM

I can relate. I've been completely gluten-free for 10 years. A good few months back I grabbed a bag of Rudi's (Rudy's?) hot dog buns.... not knowing they also made non-gluten-free products. The reaction I had from eating ONE got dog bun was so severe... I've spent the last many months rereading many of my old labels... not trusting ANYONE or ANYTHING. What a terrible learning curve!!


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Dairy free since July 2010 and NOT happy about it!!

#26 w8in4dave

 
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Posted 17 August 2013 - 05:27 AM

I usually don't drink bottled water anyway , and I don't like flavored bottled water because it has artificial sweetener in it that I am allergic to. So I stay away from it. I can tolerate it some but I prefer not to. I usually drink our well water. Now when I go to a friends house thats all they use is bottled water. I do have tea over there with their bottled water but have never had an issue. And If I did I'd blame it on the tea , I am not sure that is 100% gluten free .. Maby I will look that up. 


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#27 Em314

 
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Posted 17 August 2013 - 07:18 AM

SCAVENGER HUNT:  Someone find the water product that has wheat, and report back.


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Diagnosed celiac December 2012 (bloodwork + endoscopy). Gluten-free since.

#28 IrishHeart

 
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Posted 17 August 2013 - 07:26 AM

SCAVENGER HUNT:  Someone find the water product that has wheat, and report back.

 

 

good luck with that. :)

 

and now, this thread is officially gone off the deep end..................think we can stick a fork in it?

me too.


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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#29 w8in4dave

 
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Posted 17 August 2013 - 06:49 PM

luvs2eat , My last straw to the Dr. was from a hot dog bun with chili on it!! I am not so trusting with hotdog buns at this time lol ... But I am not all that comfortable yet , I still read the labels :) 


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Recovering Gluten Eater 

DX'd June 17th 2013





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