Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

When Did The D And C Get Better For You?
0

20 posts in this topic

I've been 7 weeks gluten free and really feeling good. Pain is gone and energy is returning.

However I still get some gurgling in the belly and my D and C is still present. I still haven't had a normal bm.

Normal?

0

Share this post


Link to post
Share on other sites


Ads by Google:

I've been 7 weeks gluten free and really feeling good. Pain is gone and energy is returning.

However I still get some gurgling in the belly and my D and C is still present. I still haven't had a normal bm.

Normal?

It's still very early days yet.  It can take a lot longer just to start to feel well and you are already much improved, so that is a good sign. 

0

Share this post


Link to post
Share on other sites

It could take months.  Not meant to be discouraging, just truthful.  Its more than just healing.  You made need to build up the good germs in your system.  You are eating differently, so you may be getting more fiber or less fiber.  As you heal, it can change.  This week you may need extra fiber but 2 months from now you might not or vice a versa. 

 

Its just a balancing act and not always easy to figure out.  Do the best you can and give it another month or 2.

0

Share this post


Link to post
Share on other sites

Ok. it alternates between loose stools(sorry that's gross) and constipation. So it makes it difficult to determine what I need! I'm taking my probiotics in the meantime.

I also think its all messed up because in 2012 I was on 4 different rounds of antibiotics in a year. Need to build back up the good bacteria I guess

0

Share this post


Link to post
Share on other sites

Are you eating dairy?  IF so, you might want to cut it out for a few weeks and see if that helps.  When you get everything running smoothly, you can try it again.

0

Share this post


Link to post
Share on other sites




Are you eating dairy?  IF so, you might want to cut it out for a few weeks and see if that helps.  When you get everything running smoothly, you can try it again.

yes, milk in my gluten free chex almost every morning and half n half in my coffee

 

is lactose free milk a good option or a nut milk better?

0

Share this post


Link to post
Share on other sites

yes, milk in my gluten free chex almost every morning and half n half in my coffee

 

is lactose free milk a good option or a nut milk better?

 

 

I'm just thinking about the lactose.  But that doesn't seem like much milk/lactose for the day.  Maybe that's not a problem.

0

Share this post


Link to post
Share on other sites

I'd dump the dairy for a few months and see if it helps. It took me a while to get my gut straightened out and stop the alternating

D and C I had for my entire life. What worked for me  was probiotics, no dairy, time. You'll get there, too. Hang in there.

0

Share this post


Link to post
Share on other sites

okie dokie ;)

 

I'd dump the dairy for a few months and see if it helps. It took me a while to get my gut straightened out and stop the alternating

D and C I had for my entire life. What worked for me  was probiotics, no dairy, time. You'll get there, too. Hang in there.

0

Share this post


Link to post
Share on other sites

I have been eating a bit of ice cream in the evenings too. and we go out for frozen yogurt often. I'm guessing that's the problem.

 

I kind of knew it in the back of my mind because I get "the gurgles" after I eat ice cream, but I love my ice cream :wub:

 

with gluten my reaction is literally within 20min but it seems dairy is a ittle harder to figure out because it is not right away, I get the gurgling but the D comes usually the next day. I had it this morning before I ate anything, back to the food journal.......

0

Share this post


Link to post
Share on other sites

I have been eating a bit of ice cream in the evenings too. and we go out for frozen yogurt often. I'm guessing that's the problem.

 

I kind of knew it in the back of my mind because I get "the gurgles" after I eat ice cream, but I love my ice cream :wub:

 

with gluten my reaction is literally within 20min but it seems dairy is a ittle harder to figure out because it is not right away, I get the gurgling but the D comes usually the next day. I had it this morning before I ate anything, back to the food journal.......

 

So delicious makes some yummy ice cream, too!  One or two  flavors aren't gluten-free, so check the ingredients.  The cookie dough flavor is gluten-free cookie dough.

0

Share this post


Link to post
Share on other sites

I'm with IrishHeart on the coconut milk. I really don't miss dairy all that much with coconut milk and daiya cheese. I'll go back to it someday but it's nothing I'm missing out on now.

 

Hope you feel better soon! 

0

Share this post


Link to post
Share on other sites

Going out for ice cream could be a problem. They use gluten cones at ice cream places and VERY often (I know 'cause I used to manage an ice cream shop), cone crumbs fall into the tubs. And with the soft serve, those cones very often touch the nozzle. And hands that touch the cones will often touch the inside of the cup they put your ice cream in. Or the spoons! Cone crumbs get everywhere and a lot of times there will be crumbs at the bottom of the container the plastic spoons are sitting in. One place I worked at was so busy in the summertime it looked like a tornado had passed through by the second hour - broken cones and ice cream drips everywhere.  I never worked so hard in my life!

 

So even after you try dairy again, I think it's best to eat your ice cream at home. :)

0

Share this post


Link to post
Share on other sites

C slowed for me at 6 months  but then it started to alternate between C and some real urgency. At one year gluten-free I am more normal than not now.

 

I think having my thyroid treated really made the difference for me but it's hard to be sure because I was diagnosed at the same time as my celiac.

 

Good luck.

0

Share this post


Link to post
Share on other sites

At some point you might want to consider the possibility that you might be sensitive to lower levels of gluten than average.  I agree with cutting out dairy first.  If things don't improve with that you might want to try some other things like looking for some gluten in your diet which you have missed, or cutting down on cc possibilities.  I needed to do that for resolution of symptoms.

0

Share this post


Link to post
Share on other sites

I think your right. I made pancakes for dinner tonight and made my family regular ones and myself gluten free ones. I may have cc'd. I have the gurgles as I'm typing this.

I aslo had a gluten reaction to gluten free chocolate chip cookies so I may be too sensitive still to eat processed gluten free mixes (the pancake mix was from a boxed mixed) I'm going to have to start tracking my eating again so I can get to the bottom of it.

The main symptoms of pain and fatigued are pretty much gone but this and the gurgling still linger

0

Share this post


Link to post
Share on other sites

Constipation started clearing up after 8 months for me. Still dealing with fatigue and exercise intolerance 10 months after diagnosis/start of gluten-free diet.

0

Share this post


Link to post
Share on other sites

I'm still new to it all n figuring it out so its only been a few months for me but even the milk in my coffee, yogurt at lunch, ESPECIALLY the ice cream at night became apparent to me... I try to eat on a pretty regular schedule now which makes everything else more scheduled n routine and makes my life 10x easier stress wise but I alwaysalways eat a lactaid chewable with my ice cream and one with lunch or meals with a lotta cheese or milk (even my favorite cheese puffs will do it with how many I eat). Anyways If you're curious try some ice cream (that's safe, at home) without it (and really commit to it, tell your family that half gallon is all yours and its for health reasons lol) if it is a prob eat more with some lactaid and see if that helps... Just be aware if you're eating other things with lactose in it because it'll confuse you during your "experiment" they're right about cross contamination tho I had to get a new frying pan because I was pretty sure it mildly happened in the beginning making pancakes (odd, huh?) in the same skillet I had always used for French toast n grilled cheese before... My pot and pan are red now nothing else is and all my utensils are brightly colored and in a separate area... Separate sponge away from the others for hand washing things, etc... It was overwhelming but it's at least getting easier in that area (tho to be fair I think I must have been accidentally glutened somehow fairly recently *but* I'm fairly confident it was when I ate out and it didnt happen at home despite still having normal eating folk in the home)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,644
    • Total Posts
      921,583
  • Topics

  • Posts

    • The first two tests (at least in the US and most of the EU) have been replaced by the DGP tests (at the bottom) of GFinDC's list of celiac tests.  Not all celiacs test positive to the common Screening TTG.   The TTg is good and catches most and it was cheaper to run the best one (it is all about the money), but researchers realized they were not catching all celiacs.  Here is a link to the University of Chicago's celiac website.  When I was diagnosed three years ago, this site recommended just the TTg (as did the American GI Association).  Now they have expanded the list of celiac tests.   http://www.cureceliacdisease.org/screening/ Luckily, my GI must have just attended a GI conference and he ordered the complete panel for me.  ($400). It paid off.  Only my DGP IGA was positive and the rest of the blood panel (including the popular TTG test) was negative.  My biopsies revealed some severe intestinal damage.  My new health provider only allows PCP/GP doctors to only order the TTG.  So, if I want the follow-up testing to see if I have improved or had a gluten exposure, I must go to my New GI.  Yep, it is all about the money!   Keep eating gluten and make sure your  GI takes four to six samples during the endoscopy.  Maintain copies of all your results.   Your symptoms?  Yes, there are over 300 celiac disease symptoms.  celiac disease does not just affect the gut, but mis-informed and those who do not keep up with the latest in medical, do not seem to know that!   Do not give up!  
    • It's great to hear from you, Nightsky.  Glad to also hear of your steady progress.  Living gluten free is definitely a learning process, and even the baby steps are times to celebrate.  Wish you all the luck in the world as you continue to heal for the glutenization.  
    • Hi Nicky, When you first go gluten-free your symptoms often do change.  Feeling better or worse is possible.  The healing process is a major change in our gut and that means a big change in the gut flora is likely,  which can cause symptoms by itself.  Additionally the immune system doesn't stop making antibodies on a dime.  the immune system keeps working  to defeat the gluten invaders until it is darn good and ready to take a break. You really shouldn't start the gluten-free diet until all testing is completed.  That includes a full celiac disease panel and an endoscopy with biopsy samples.  It's much easier to complete testing while still a gluten eater than it is to stop gluten and go  back on it for testing later.
    • Hi Kircket, Welcome to the forum! Yes, he could be wrong.  Not everyone passes the blood tests.  And they are just one part of the diagnostic process anyway, although an important one.   Did you have the complete celiac antibodies panel? Anti-Gliadin (AGA) IgA
      Anti-Gliadin (AGA) IgG
      Anti-Endomysial (EMA) IgA
      Anti-Tissue Transglutaminase (tTG) IgA
      Deamidated Gliadin Peptide (DGP) IgA and IgG
      Total Serum IgA If you didn't have the full celiac disease antibodies test panel, I'd insist on getting it done.  There have been numerous people on the forum who tested positive on one antibody but not on others.
    • Three years ago I lost about 40kgs (Aussie lol) by better diet & exercise. All was going great til I stopped losing. I upped my exercise but bizarrely started gaining weight. One night a week of not being able to sleep soon became two, then virtually every night with either 1-2hrs tops or none at all. These weird symptoms started about two years ago, becoming worse in say, the last 9mnths. Then I started to get diarrhea. Occasionally then weirdly 2-3 days with multiple occurences then a day or two with nothing, then back to loose & offensive. My GP ran tests, including the TTga (hope that's  right) antibody blood test. Negative so he tells me that's not it. After 9mnths of this he shrugs and says, "I don't know what it is I've run out of ideas what ideas do you have?" Finally refers me to a gastrointerogist.  Private, of course and can't really afford it but we (my fiance and I) go. Stools and blood samples are ordered, basically bye, see you in a month. I have looked my symptoms up and they seem to point to Celiac. Today we went back. I have been having bloated stomach, sore back and limbs,  lovely burps, constant urination and crushing anxiety attacks folowed by depression (which I have never had before in my life). Admitted over the last weekend I didn't sleep for two and a half days and found myself hallucinating and crying to just be able to sleep. Mr fancy pants gastrointerogist says," Hey great news, the stools samples rule out parasites and Crohns!" I tell him how excrutiating the last month has been to which he replies, "It's not Celiac disease, (points at negative blood test results). Celiac doesnt present with diarrhea, anxiety and frquent urination all together." I also had a fecal occult blood test which showed positive & notes say are maybe due to a lower gi bleed, and a ct scan that says shows some damage which, in their words, could be due to a condition such as Celiac disease. He has booked me for a double scope as the next step, has a few ideas what it could be (won't tell me because he doesn't want me to be 'anxious'). Told me to consider that all these symptoms could be me just worrying and being anxious. Told him when this started I was not worried about anything, shrugged and said, It could stil have happened, hey, sometimes we never find out what causes it and your just stuck with diarrhea forever." Then as I was leaving he slapped me on the back and said, "Don't worry so much, see you soon." I need to have the scopes done but is it me or are the things I was told today not true?  I would honestly love it not to be Celiac disease but could he be wrong?
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)