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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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Hello all,

 

I have been reading a lot of information from this site and it is very helpful.  I wanted to know if someone could help explain the results I received from the doctor.  

 

I have read on here several time that a person should have the full celiac panel.

·         tTG IgA and tTG IgG

·         DGP IgA and DGP IgG

·         EMA IgA

·         total serum IgA

·         AGA IgA and AGA IgG

 

 

However, my doctor only tested for Demidated Glaidin IgG and Tissue Transglutaminase IgA.  Are theses test enough to rule out celiac?  

 

                                                               Result                    Normal

Demidated Glaidin IgG                     <25 units/ml                      <25

Tissue Transglutaminase IgA             <2 u/ml                            <20

 

   

I have been on B12 supplements over the past 3 years.  This does not make since to me as I consume a large amount of B12 in my diet.  Would it be helpful to also test for other vitamin deficiencies? 

 

 

 

 

 

 

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Welcome to the board.

 

It's hard to say if those tests are enough to diagnose.  A total serum igA was not run, and 1/20 celiacs are deficient in Iga so your tTG IgA could be invalid if you are deficient. The DGP IgG test is very specific to celiac disease but it's not as sensitive, it can miss 5-30% of celiacs.  see page 12 of this report for more info:

http://www.worldgastroenterology.org/assets/export/userfiles/2012_Celiac%20Disease_long_FINAL.pdf

 

So, those two might be enough, but you never know. If your IgA levels are normal, then I would say it could be enough. Some celiacs only have a positive endoscopyand negative blood tests, it really varies.

 

Those with a gluten intolerance (celiac disease or non-celiac gluten intolerance or NCGI) can be low in the B's (b12), D, ferritin. iron, calcium, potassium, zinc. Anemia is common and thyroid problems crop up frequently, as does diabetes. Those could be good things to check.

 

Are you going to try the gluten-free diet and assume you have NCGI?

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Thanks for your reply.

 

I am planning on going gluten free for a few months to see if I start feeling better.   I was not sure if I should get more blood test to confirm it is not celiac before going gluten free and assuming NCGI.  

 

I have had my thyroid levels checked over the past 8 months and it goes up and down.   

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Thanks for your reply.

 

I am planning on going gluten free for a few months to see if I start feeling better.   I was not sure if I should get more blood test to confirm it is not celiac before going gluten free and assuming NCGI.  

 

I have had my thyroid levels checked over the past 8 months and it goes up and down.   

 

Yes, in my opinion you should have the balance of the Celiac Antibody tests you listed in your first post before removing gluten.

 

My celiac doctor ran everything you listed along with nutrients -- at diagnosis and annually since:

 

B1, B2, B6, B12, D, K, Iron, Ferritin, Copper, Zinc

 

CMP - Complete Metabolic Panel - includes several other key nutrients.

 

CBC - Complete Blood Count

 

Good Luck to you :)

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Yes, in my opinion you should have the balance of the Celiac Antibody tests you listed in your first post before removing gluten.

 

My celiac doctor ran everything you listed along with nutrients -- at diagnosis and annually since:

 

B1, B2, B6, B12, D, K, Iron, Ferritin, Copper, Zinc

 

CMP - Complete Metabolic Panel - includes several other key nutrients.

 

CBC - Complete Blood Count

 

Good Luck to you :)

 

Thanks I will see if I can get retested with the additional test.  

 

Is there a test for all the nutrients or do I need to just bring the list of items I would like them to test for?  

 

Can Celiac and NCGI affect the CBC?  My doctor has been trying to figure out why I would have a low WBC count.

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