Posted 16 August 2013 - 02:33 PM
Thanks for your reply.
I am planning on going gluten free for a few months to see if I start feeling better. I was not sure if I should get more blood test to confirm it is not celiac before going gluten free and assuming NCGI.
I have had my thyroid levels checked over the past 8 months and it goes up and down.
Yes, in my opinion you should have the balance of the Celiac Antibody tests you listed in your first post before removing gluten.
My celiac doctor ran everything you listed along with nutrients -- at diagnosis and annually since:
B1, B2, B6, B12, D, K, Iron, Ferritin, Copper, Zinc
CMP - Complete Metabolic Panel - includes several other key nutrients.
CBC - Complete Blood Count
Good Luck to you
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE -- probable cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
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