Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Test Reults
0

5 posts in this topic

Hello all,

 

I have been reading a lot of information from this site and it is very helpful.  I wanted to know if someone could help explain the results I received from the doctor.  

 

I have read on here several time that a person should have the full celiac panel.

·         tTG IgA and tTG IgG

·         DGP IgA and DGP IgG

·         EMA IgA

·         total serum IgA

·         AGA IgA and AGA IgG

 

 

However, my doctor only tested for Demidated Glaidin IgG and Tissue Transglutaminase IgA.  Are theses test enough to rule out celiac?  

 

                                                               Result                    Normal

Demidated Glaidin IgG                     <25 units/ml                      <25

Tissue Transglutaminase IgA             <2 u/ml                            <20

 

   

I have been on B12 supplements over the past 3 years.  This does not make since to me as I consume a large amount of B12 in my diet.  Would it be helpful to also test for other vitamin deficiencies? 

 

 

 

 

 

 

0

Share this post


Link to post
Share on other sites


Ads by Google:

Welcome to the board.

 

It's hard to say if those tests are enough to diagnose.  A total serum igA was not run, and 1/20 celiacs are deficient in Iga so your tTG IgA could be invalid if you are deficient. The DGP IgG test is very specific to celiac disease but it's not as sensitive, it can miss 5-30% of celiacs.  see page 12 of this report for more info:

http://www.worldgastroenterology.org/assets/export/userfiles/2012_Celiac%20Disease_long_FINAL.pdf

 

So, those two might be enough, but you never know. If your IgA levels are normal, then I would say it could be enough. Some celiacs only have a positive endoscopyand negative blood tests, it really varies.

 

Those with a gluten intolerance (celiac disease or non-celiac gluten intolerance or NCGI) can be low in the B's (b12), D, ferritin. iron, calcium, potassium, zinc. Anemia is common and thyroid problems crop up frequently, as does diabetes. Those could be good things to check.

 

Are you going to try the gluten-free diet and assume you have NCGI?

0

Share this post


Link to post
Share on other sites

Thanks for your reply.

 

I am planning on going gluten free for a few months to see if I start feeling better.   I was not sure if I should get more blood test to confirm it is not celiac before going gluten free and assuming NCGI.  

 

I have had my thyroid levels checked over the past 8 months and it goes up and down.   

0

Share this post


Link to post
Share on other sites

Thanks for your reply.

 

I am planning on going gluten free for a few months to see if I start feeling better.   I was not sure if I should get more blood test to confirm it is not celiac before going gluten free and assuming NCGI.  

 

I have had my thyroid levels checked over the past 8 months and it goes up and down.   

 

Yes, in my opinion you should have the balance of the Celiac Antibody tests you listed in your first post before removing gluten.

 

My celiac doctor ran everything you listed along with nutrients -- at diagnosis and annually since:

 

B1, B2, B6, B12, D, K, Iron, Ferritin, Copper, Zinc

 

CMP - Complete Metabolic Panel - includes several other key nutrients.

 

CBC - Complete Blood Count

 

Good Luck to you :)

0

Share this post


Link to post
Share on other sites

Yes, in my opinion you should have the balance of the Celiac Antibody tests you listed in your first post before removing gluten.

 

My celiac doctor ran everything you listed along with nutrients -- at diagnosis and annually since:

 

B1, B2, B6, B12, D, K, Iron, Ferritin, Copper, Zinc

 

CMP - Complete Metabolic Panel - includes several other key nutrients.

 

CBC - Complete Blood Count

 

Good Luck to you :)

 

Thanks I will see if I can get retested with the additional test.  

 

Is there a test for all the nutrients or do I need to just bring the list of items I would like them to test for?  

 

Can Celiac and NCGI affect the CBC?  My doctor has been trying to figure out why I would have a low WBC count.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,338
    • Total Posts
      920,471
  • Topics

  • Posts

    • They didn't suggest any probiotic support. Ultimately the side-effects of this drug stabilized approaching the end of the course of treatment, though after it was finished, I was perhaps a bit improved, but no profound symptom resolution for me. Darn! The search goes on.
    • Thankyou I have found that I became intolerant of dairy and having cut it out feeling better but if I come into accidental consumption the symptoms are similar to that of gluten but not as severe .. Patience ay ?
    • I checked the Gluten Free Watchdog (I subscribe) and did not find this  particular product, but found the company's oat bran flakes which did not list any gluten ingrediants, but barley was found in testing well over 20 parts per million.  I would stick with certified gluten-free cereals, personally.  I think it is "hit or miss" on grain products.    
    • It is normal for other intolerances to become apparent once you remove gluten. I don't know why, perhaps as the immune system is free'd from chasing gluten it finds new targets? A lot of coeliacs find they have to cut out dairy as well for example. It's certainly my number one culprit for skin issues.  It also can take time for removing gluten to have its full effect, as antibodies will remain in the body for up to 6 months. So the reaction could still be to gluten in a way. 
    • I did not re-test my antibodies for a full year after diagnosis but I think your daughter should be checked again in 6 months.  If she does have celiac, and I really am sure she does regardless of what this doc seems to think, they should decrease in 6 months.  If she is fast healer, they could potentially be in the normal range but it varies from person to person. She did show damage in her small intestine but at 4 years of age, damage would not have progressed to the point where this doctor could be convinced it is Celiac.  They set the bar way too high. Kind of silly to require you to damage her insides further to prove it to the AMA. I think she should go gluten-free, as you have stated, and re-scope her in 6 months to see how the original damage looks then. If it is gone, then maybe that would convince them. The 4 out 5 criteria is not done in kids because, I am convinced, of liability issues. They just do not want to get sued if by some small chance, they diagnosed someone who did not have Celiac.  I think the odds of that are pretty slim, when you think about it. Even with a misdiagnosis, eating gluten free will never harm anyone. But as children are minors and cannot legally make medical decisions on their own like adults can, that rule is out for them.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,408
    • Most Online
      1,763

    Newest Member
    LizzylouNZ
    Joined