hi, i am also classed as gluten intolerant with negative results for celiac. I am now 13 months into being gluten free.
Before I realised i was gluten intolerant I was tired and dizzy and had no energy. I went from a size uk 12 to a uk 6 in 2 months. My pulse rate was high and couldn't walk up the street without being breathless. I was classed as depressed and my memory was terrible. Within 2 weeks of stopping the gluten the dizzy foggy feeling was gone, my pulse rate was down and i was less breathless. But then then the stomach problems started with a vengeance! Almost like my body was saying "don't you dare go near that stuff again - I am trying to heal!"
I had not had major tummy problems before i went gluten free but suddenly the slightest contamination sent me crashing. Bloating within minutes of eating it and tummy cramps and the big D later. Followed by 3 days of crankiness, bloating everytime i ate and tiredness until it left my system. I couldn't even eat gluten free food at family get togethers or restaurants! The problem being that gluten is really sticky and was on all the plates, knives and forks etc. I was super-sensitive and my body was having none of it!
This caused a few awkward moments where I felt like i was putting people out because i was only gluten intolerant and not celiac! I felt like i was doing something bad to my husband and kids if i made them go gluten free with me. I felt like i was inflicting some weird fad diet on them! But i wanted to get better and i still felt so tired. Somewhere amongst it all i decided to stop worrying about at and go for it properly. To stop worrying that i was putting people out and to treat myself like i was celiac.
I got up one morning and went to my supermarket and bought the cheapest range of pans, cutlery, plates, washbowl, dishcloths etc i could find. I chucked everything that had gluten in it in the bin and scrubbed my kitchen clean (i pretty much cried right through the cleaning! I was so weak it felt so hard at the time!) I changed my toothbrush, shampoo and hairspray. I didn't eat out or have takeaways and even took my own coffee cup to my friends houses! I also bought whole lot of vitamins to try and build my strength back up.
I found my strength to do this from this site. A big THANK YOU to all those who have posted your comments on here! It was 120% the best decision I ever made. My home is gluten free now and 13 months on i do not know myself. No depression, tiredness, dizziness, breathlessness, bloating etc. My husband and kids do not feel like they are doing without their treats - instead my kids hug me and say 'I am so pleased i have my mummy back' Apparently i am worth more than a biscuit haha
DO NOT GIVE UP YOUR GLUTEN FREE DIET - It will get better. Treat yourself as celiac and you will get better. My personal belief is that gluten intolerance is celiac and the docs don't know everything. I have met celiacs that display no symptoms at all and yet i felt like I had only months to live! Even if you are not sure - a year gluten free will not harm anyone. Its a healthy diet and you may change your whole life for the better.
I can now eat at restaurants with only minor amounts of bloating and have a coffee at friends houses. But after a year of being super careful i think if i have the choice i will always opt for my own food etc if i can. Its just not worth going back to those dark days.
As a last thought. I realised i had a secondary intolerance about 6 months into the gluten free diet. It was lactose. I know the thought of cutting anything else out right now is hard but hopefully you will consider it. To be honest lactose was fairly easy in comparison. And i can now eat it again in small amounts because i was so careful with the gluten free diet.
Good luck and don't give up - life will get better