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My Daughter Found This


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9 replies to this topic

#1 w8in4dave

 
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Posted 19 August 2013 - 07:32 AM

My daughter found this site that was very interesting , she did a search because she was having so many problems even after going gluten free. so I hope it is ok to post it here so I can get some opinions on it. 

 

http://theglutenmind...ee-isnt-enough/


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#2 AlwaysLearning

 
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Posted 19 August 2013 - 07:39 AM

Thanks for sharing this. 

This does remind me that I'm supposed to be starting a food diary so that I can note any additional intolerances or reactions I may have.


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#3 kareng

 
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Posted 19 August 2013 - 07:48 AM

This is just someone's blog.  There is no scientific evidence for this "cross-reactivity" in Celiac disease. 

 

http://www.curecelia...ross-reactivity

"What’s with all the talk about certain types of food causing “cross-reactivity?”

There is not yet reliable data about cross-reactivity. As for the alleged possibility that many gluten-free foods or drinks (such as coffee, milk, orange juice, etc.) would trigger symptoms in celiac individuals due to hidden antigens mimicking gluten or cross-reacting with anti-gluten antibodies, it must be clearly stated that this is all false information, devoid of any scientific basis, and must be rejected as untrue."

 

 

This "laboratory" uses Social media, such as  FB and "blogs" to promote their products.

 

http://www.curecelia...se.org/?s=cyrex


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#4 notme!

 
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Posted 19 August 2013 - 07:55 AM

something else to think about:  if your gut is healing, many of these things are irritants to damaged intestines.  yes - keep a food journal!  but keep in mind that you may be able to add these things back once you are healed enough (so that's good news - yay!)  w8n4, you might want to skip dairy for awhile until your villi heal because that's where the stuff (enzyme?) to digest lactose is produced - at the tips of your villi.  so, if it's still damaged, it can't produce the stuff you need right now but after you are healed, you can eat it - i know i can - love me some cheeeeeeeeeeese!  i know it sounds like alot, but it was surprisingly easy.  pretty soon i was at 6 months  no dairy and i started adding a little bit back, one at a time and journaling my response.  i still drink lactaid milk, but i CAN drink regular milk.  i just like it because i can put it into my tea in the morning and don't feel like i'm ambushing my guts lolz :)


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#5 IrishHeart

 
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Posted 19 August 2013 - 10:13 AM

Someone's blog stating things as a fact to promote lab tests is not something I find very compelling.

 

We have discussed this supposed cross-reactivity issue many times on here, but I still find it highly doubtful (as does a  leading celiac center)

 

Not one celiac specialist has supported this theory or these labs tests or presented any research to substantiate these claims. Maybe when they do, I will read the research on it and see what the experts have to say about it.

 

Please read the information Karen has posted above.

 

If someone is having additional food intolerances, it could be because the gut is still healing.

It takes time to heal approx. 22 feet of intestines.

 

 

 

^_^ I find it very interesting that "Dr. Tom" has made this comment in her comment section. 

The evidence suggesting coffee is cross-reactive is for Instant coffee. There is no evidence this carries over to regular or espresso coffees.


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#6 Salax

 
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Posted 19 August 2013 - 03:31 PM

While I am not a scientist, logical thought process in my mind reads that if the body’s immune system attacks gluten, creating antibodies and attacking health tissue (villi), it could seem probable that the immune system could also develop antibodies/attack healthy issue with other foods. Whether or not that has been discovered we don't know. But the likelihood of it happening, I think is there. More specifically though we being Celiac or having other food intolerances know that this had to stem from something, so could that be all interrelated? I don't know, but I think as time goes on we (people of the world) will see more and more intolerances to our food as the quality of the food decreases (cough Monsanto cough) and our bodies don't know what to do with it. But that’s another story. Interesting read though, makes you wonder what time will tell with a disease like Celiac and other intolerances as they seem to be getting worse and worse.


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~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Celiac Disease - Gluten Free since Feb 2009,
Cow Milk &  Corn free - June 2012,
Gall Bladder Failure - Removed July 2009,
Colitis, Hashimotos Disease, & Diverticulitis

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
( )_( )
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(")_(") Eat your vegetables!


#7 IrishHeart

 
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Posted 19 August 2013 - 04:03 PM

Salax,

 

I do agree about the development of other intolerances --food, environmental, chemical (I have a few myself)-

 

but I do not buy the "cross-reactivity with gluten theory"  yet because no evidence from celiac experts exists as far as I can find.

 

If those foods specifically listed on that blog site were as dangerous to us as gluten, most of us would be dead by now.

 

IMHO, as always. :)


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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#8 w8in4dave

 
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Posted 20 August 2013 - 07:07 PM

I just wanted to hear everyones opinion , and see if your mind was open  ... Just wondering ... 


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#9 w8in4dave

 
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Posted 26 August 2013 - 07:54 AM

Ok yes Kareng is right. there is no science behind it. Mods can take it out ... Sorry


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#10 dilettantesteph

 
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Posted 27 August 2013 - 05:37 AM

I think that the cross reactivity theory may have come from cross contamination.  It is known that some celiacs react to lower levels of gluten than others.  It is known that some celiacs with ongoing symptoms heal when put on a cross contamination elimination diet.  This has been discussed in the super sensitive section.  It is my opinion and experience that the items that are supposed to cause cross reactivity are the ones which are often cross contaminated. 


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