Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Celiac.com Sponsor:                                    


Photo
- - - - -

Apparently You Guys Were Right, It's All In My Head!

[updated]]

  • Please log in to reply

106 replies to this topic

#1 Renegade

 
Renegade

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 175 posts
 

Posted 21 August 2013 - 05:55 AM

So I went to the clinic, didn't wait for the weekend, skipped 12 hours of work, unpaid of course and told the doctor about all my symptoms, to my impression she actually listened and requested to have a full check of my issue via blood test and stomach as well as colon/intestine exam.

 

The next day I got my blood test done,got tested for a list of all stuff like thyroid,vitamin B12, Biochemistry (urine test) and just a handful of other stuff I can't remember because I don't have the paper anymore, they took 5 ingestion, 2 for other test and 3 for lactose. I will be getting the stomach and colon exams in September.

 

Well so apparently all I have is a lactose intolerance and everything else is fine.

 

So i guess my symptoms such as:

 

-Neck Pain

-Extreme fatigue

-Cutting out ,exercise and ton of other foods

-Digestive issue

-Stomach pain when eating almost anything

-Constipation

-Shortness of breathe

-Feeling of throat inflammation

-Brain fogs

-Eye pain to the point I had to rest 12 hours yesterday not cause of fatigue but simply because having my eyes open hurt too much.

and just so many more

 

Those are probably all in my heads, most likely has to be related by my pathetic panic attacks right? As this is what you guys been suggesting.

 

I'll be getting a copy of my results tonight so maybe you experts can have a look and confirm it's indeed all in my mind.

 

Guess I must also not been gluten intolerant or celiac, might wanna go back to eating it again as it only got worse since i quit.


  • 0

Celiac.com Sponsor:

#2 answerseeker

 
answerseeker

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 381 posts
 

Posted 21 August 2013 - 06:11 AM

Well it doesn't seem to be gluten number one

Number two you don't like this forum and have made it clear that we are rude even though you have received tons of advice

Number three I have all the symptoms your talking about and I've been gluten free over 2 months. Guess what my dr is suggesting? Lactose or even a milk allergy because I actually get short of breath and stuffy nose etc. I've had the neck pain all week.

I know I can't eat gluten but you've never really confirmed that right?
  • 0

Lori age 40

 

GERD diagnosed Feb 2012

acute adult onset asthma diagnosed April 2012

celiac diagnosis July 2013

osteopenia Sept 2013

Dysautonomia: POTS (autonomic nervous system dysfunction)

DQ2 Gene


#3 nvsmom

 
nvsmom

    Moderator

  • Moderators
  • PipPipPipPipPipPip
  • 3,593 posts
 

Posted 21 August 2013 - 06:53 AM

I didn't start to feel really well, besides some intestinal improvements, until I was 6 months gluten-free; in fact (for a while) I felt worse after a few months gluten-free. I am now over one year gluten-free and I still have symptoms that my hubby has never experienced although they are less severe than they used to be. It's not an overnight fix.

 

If you think it's NCGI then stick with the diet for longer and look into other options in the meantime.... and drop dairy.  Good luck.


  • 1
Nicole Posted Image

"Acceptance is the key to happiness."

ITP - 1993
Celiac - June, 2012
Hypothyroid - August, 2012

CANADIAN

Celiac.com - Celiac Disease Board Moderator

#4 Renegade

 
Renegade

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 175 posts
 

Posted 21 August 2013 - 06:57 AM

I had already dropped dairy, except milk in my coffee there and there and had some lactose free milk, i had cut yogurt and was already on almond milk for moths before getting all those symptoms.


  • 0

#5 nvsmom

 
nvsmom

    Moderator

  • Moderators
  • PipPipPipPipPipPip
  • 3,593 posts
 

Posted 21 August 2013 - 07:10 AM

If you are still having occassional dairy in your coffee, and lactose free milk, that's not dropping dairy. I would consider that dairy-lite.  Try going 100% dairy free including dairy in baked goods and in junk foods like nachos as well. It couldn't hurt to tighten it up a bit.


  • 0
Nicole Posted Image

"Acceptance is the key to happiness."

ITP - 1993
Celiac - June, 2012
Hypothyroid - August, 2012

CANADIAN

Celiac.com - Celiac Disease Board Moderator

#6 Renegade

 
Renegade

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 175 posts
 

Posted 21 August 2013 - 07:33 AM

If you are still having occassional dairy in your coffee, and lactose free milk, that's not dropping dairy. I would consider that dairy-lite.  Try going 100% dairy free including dairy in baked goods and in junk foods like nachos as well. It couldn't hurt to tighten it up a bit.

I did not have junk food in over 4 months. I though dairy was bad because of lactose, is there more to it then just lactose?


  • 0

#7 Adalaide

 
Adalaide

    It needs to be about 20% cooler.

  • Advanced Members
  • PipPipPipPipPipPip
  • 3,449 posts
 

Posted 21 August 2013 - 07:36 AM

Dropping dairy means reading every label for hidden dairy. Not just looking for milk but for all of its possible derivatives, in every food you eat that has ingredients.

 

If part of what they're doing next month includes a scope you need to be eating gluten for a biopsy to show celiac if you do actually have it. It sounds like the doctor is looking for problems, not telling you the issue is in your head. Not the same thing at all.

 

My daughter is lactose intolerant and it took 18 years to get a diagnosis. She was incredibly sick before they discovered her issue. She wasn't sleeping well, was in constant pain, but especially when she ate, alternating C and D, so much more that pointed to a textbook celiac case. But her blood work and biopsy were negative, she responded (at least partly) to a lactose free diet and everything comes back if she has diary. I wouldn't make assumptions about what dairy can or can't do to your whole system when it doesn't agree with you.


  • 0

"You don't look sick or anything"

"Well you don't look stupid, looks can be deceiving."

 

Celiac DX Dec 2012

CRPS DX March 2014


#8 mommy2krj

 
mommy2krj

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 241 posts
 

Posted 21 August 2013 - 07:40 AM

Well....that is the joy of figuring these things out. I would say, given the fact that a large portion of the people here went 20, 30+ years having symptoms before they got diagnosed....you're right on track! ;)

 

But seriously. No one here ever said anything was in your head. You were given good advice. Your choice if you follow it or not.

Saying you dropped dairy and still have it in your coffee and baked goods and other things that you're eating or drinking is like saying you're gluten free but still having a sandwich with regular bread for lunch.

 

It's hard. We all know this. We've all been frustrated by it. Some spent their whole lives sicker than you have been on your sickest day. Get all your test results back and yes, post them. You at least have one diagnosis right now. This is a good thing! Did the doctor tell you it's all in your head? It sure doesn't seem like it if you were diagnosed with lactose intolerance. Do you have all the results from the other tests that were run or are you still waiting for them?


  • 0

#9 Renegade

 
Renegade

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 175 posts
 

Posted 21 August 2013 - 08:17 AM

Hard? I couldn't give less a crap about giving up dairy, only reason I was having it in my coffee was because I wouldn't bring my almond milk at work because I wouldn't ever drink enough almond milk at work to drink the whole thing before it spoil, I'll be off work at the end of the mount, it will be easy then. I was already off yogurt and cheese or any dairy thing beside butter, once in a blue moon.

 

What's hard is the fact I had cut, so many things only to get just as sick and worse, was it weed, coffee, nuts, nightshades, garlic, dairy, gluten, oat, grains,cross-contamination or hell even hidden magic, it could have been anything. 

 

The doctor didn't say it was in my head, but said that there was nothing else in my blood results so she didn't contact me as nothing was alarming, you guys on the forum did mention several times that all of this looked like anxiety, anxiety is in your head.

 

So now you guys are saying that dairy could be what this been all along! There must be a lot of hidden dairy in vegetables,rice,fruits,meat and almond milk, as this is what i been eating for the past 2 months

I really doubt that a little bit of milk and 1/2 spoon of butter would make me so sick, specially since for days I would not have it at all and still be just as sick. It's not like i was having it regularly, also, I only felt bad ONCE after having milk and that was from a chocolate bar but I guess a little bit of milk once in a week which doesn't make me feel bad is enough to make me feel like I am physically dying every day.


  • 0

#10 answerseeker

 
answerseeker

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 381 posts
 

Posted 21 August 2013 - 08:28 AM

Remember we are not doctors. I think you are putting way to much responsibility and blame on this forum. I mean the subject line alone reads we are to blame basically. I can't really help much anymore and not sure anyone else here can.....
  • 0

Lori age 40

 

GERD diagnosed Feb 2012

acute adult onset asthma diagnosed April 2012

celiac diagnosis July 2013

osteopenia Sept 2013

Dysautonomia: POTS (autonomic nervous system dysfunction)

DQ2 Gene


#11 srall

 
srall

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 528 posts
 

Posted 21 August 2013 - 08:57 AM

One more person to advise that dropping dairy means ALL dairy.  I continued for about a year to just use cream in my coffee and had pretty bad D almost constantly.  It was when I finally dropped all dairy that I started to heal from the damage dairy was doing to my body.  

 

And I know it's frustrating when you feel like people are telling you that things are all in your head.  I know a lot of people on this board have felt that way for sure!  This should be the place that you don't feel that way.   Getting rid of gluten, corn and dairy cleared up 90% of my issues.  The frustrating thing is that uncovering the rest of the puzzle is hard.  And it seems like food sensitivities can come and go (I've had to drop eggs, but then got them back)

 

This process will teach you to listen to your body, and not worry so much about outside noise.  I don't use this board much anymore, but in the beginning this place was an absolute lifesaver.  

 

Good luck in your journey!


  • 0

#12 kareng

 
kareng

    HO! HO! HO!

  • Moderators
  • PipPipPipPipPipPip
  • 14,312 posts
 

Posted 21 August 2013 - 09:16 AM

  I believe you were brought up the fact that you have anxiety attacks early on in your postings.

 

Looks like you found a doctor to help you.  Obviously you haven't died as you threatened to a few times.  :D   When you kept insisting that you couldn't breathe, we all told you that was serious (if it was true) and needed immediate attention. 

 

It appears you don't need or want our help any longer.  I hope this doctor can help you with your issues. 


  • 0

santa-dance.gif

 

Once again, we come to the Holiday Season, a deeply religious time that each of us observes, in his own way, by going to the mall of his choice. - Dave Barry
 
“The main reason Santa is so jolly is because he knows where all the bad girls live.”  - George Carlin
 
“One can never have enough socks," said Dumbledore. "Another Christmas has come and gone and I didn't get a single pair. People will insist on giving me books.”  - J.K. Rowling, Harry Potter and The Sorcerer's Stone
 
 
 
 
 

 


#13 Adalaide

 
Adalaide

    It needs to be about 20% cooler.

  • Advanced Members
  • PipPipPipPipPipPip
  • 3,449 posts
 

Posted 21 August 2013 - 09:40 AM

While anxiety is literally in your head because it involves being an issue with your brain, that doesn't make it an "in your head" as in an imaginary issue or one that is to be taken lightly. When that was suggested, no one was saying that the problem wasn't serious or that you shouldn't seek medical attention. They were simply relating what their experiences were when they had issues with anxiety and how that related to causing all sorts or problems. My only real anxiety issues are in relation to the dentist or a few (very serious) phobias. When I have a dentist appointment coming up I get incredibly ill for days beforehand as I get more and more worried about how it will go. And if I have a panic attack, I will be sick for days or sometimes more than a week after. It alters every aspect of my life when it happens. I get tired, pain, GI issues, headaches, worse than usual insomnia, appetite disruption and mood issues. It goes away, but not right away. Having something chemically altered in your head can impact so much of your body, and it isn't imaginary or less real than having any other disease or illness. So I think you need to get over the idea that having this sort of issue is less of an issue or should be a "non-issue" or maybe isn't really real. Would you treat a beloved family member that way? Tell them that? No? Than why would you do it to yourself?

 

You're saying that we (the forum) are saying it could have been dairy all along? Your doctor is telling you you have a dairy problem. Not us. We have been telling you repeatedly and often to seek medical care. Beyond that we have been relating what have been our collective experiences and how they may related to your situation. That is what a community does. You have been combative and dismissive and yet we have tried to help. You are still being combative by trying to blame us for misdiagnosing you all along when we should have just told you it was a dairy problem. When we have told you all along (again) that we were sharing opinions or our own experiences and to seek medical care. I'm glad you finally did. Now you will be able to get definitive answers for what is wrong and be able to treat it accordingly.

 

I can tell you that from what I have seen my daughter experience, cutting out most, nearly all or all but this tiny bit I don't think I can live without for the next month will leave you with symptoms related to your lactose intolerance. Being lactose free means FREE, not lactose light. You can get a small container to bring a week's worth of almond milk to work in for your coffee. Or, as I long ago learned in situations where I had to choose between coffee without milk or no coffee, I prefer my coffee with just sugar to not at all. You may find the same is true if you give it a go a few times.


  • 0

"You don't look sick or anything"

"Well you don't look stupid, looks can be deceiving."

 

Celiac DX Dec 2012

CRPS DX March 2014


#14 nvsmom

 
nvsmom

    Moderator

  • Moderators
  • PipPipPipPipPipPip
  • 3,593 posts
 

Posted 21 August 2013 - 09:41 AM

I did not have junk food in over 4 months. I though dairy was bad because of lactose, is there more to it then just lactose?

 

Yes. Some people have problems with more than just the sugar (lactose) in milk. Some have issues with the casein (protein) too and possibly the whey. My son's behaviour is affected by milk. He is much calmer and more focused when he is dairy free, and by dairy free I mean zero dairy in anything.

 

Dairy may not be the cause of all of your problems, but it might be causing some of them. You did say your doctor found you have a problem with dairy, right? Work with that for now.

 

Earth's balance is a very nice butter substitute that you might consider. Coconut oil is tasty for cooking and baking. 

 

For your coffee, a can of coconut milk might be good for at work, or take a small amount of almond milk in a jar to work and freeze the rest for the following week.

 

As for the anxiety, yes it is in your head, but so are my migraines - it doesn't mean that you are making it up.Gluten induced anxiety is a symptom of gluten intolerance. Anxiety can also be caused by a number of other health related issues. Perhaps try googling the causes and you will find something that fits for you and then do more research into it. 

http://www.medicalne...ses-anxiety.php

http://www.mayoclini...DSECTION=causes


  • 0
Nicole Posted Image

"Acceptance is the key to happiness."

ITP - 1993
Celiac - June, 2012
Hypothyroid - August, 2012

CANADIAN

Celiac.com - Celiac Disease Board Moderator

#15 Renegade

 
Renegade

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 175 posts
 

Posted 21 August 2013 - 10:14 AM

The thing is you guys think It could have been anxiety, as in I was having stress for who knows why, I wasn't having anxiety, I wasn't being in a panic attack, I did get anxiety before and this is how I can tell that how i was feeling in those very moment was NOT anxiety but you guys still suggested that how I was feeling was likely to be anxiety. Meaning that yes it is in my head to feel panicked for whatever reason but there is nothing wrong with my mind, yes i had a crap ton of stress out for so many things but no I wasn't in a state of panicking, i been managing my stress, I am not saying this to protect my ego, I am saying this because I know how I feel and how it feel to be panicked because again, i have been and know how it feels like and ths I can tell when I am not in this state.

 

My doctor has never mentioned the word dairy, she said LACTOSE intolerance and suggested lactose free milk and lactose free products, which I been doing already by having lactose free milk a FEW times since last week before that I had occasion milk at work and been on almond milk for MONTHS.

 

I will definitively go lactose,casein and whey free and see if this does anything, although I am sure it won't as everything I cut so far has done nothing to improve but there is nothing to lose from this at that point.

 

As far as my breathing, no it didn't kill me, doesn't make it any less be imaginating it.


  • 0




0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: