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Apparently You Guys Were Right, It's All In My Head!

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106 replies to this topic

#16 deals88

 
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Posted 21 August 2013 - 10:56 AM

Ya know mate i used to drink almond milk every day then i started feeling sick from it and i have no other diary products, so you could try dropping it like ive no idea what is in it that caused it for me but i just got rid of it. Also the whey in my protein shake but its tolerable. GL


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#17 Renegade

 
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Posted 21 August 2013 - 11:18 AM

Ya know mate i used to drink almond milk every day then i started feeling sick from it and i have no other diary products, so you could try dropping it like ive no idea what is in it that caused it for me but i just got rid of it. Also the whey in my protein shake but its tolerable. GL

How would it feel when it would make you sick, nausea, cramps,digestive issue?

 

And how fast would you get a reaction?


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#18 come dance with me

 
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Posted 21 August 2013 - 01:34 PM

I did not have junk food in over 4 months. I though dairy was bad because of lactose, is there more to it then just lactose?

 

Yes, there is also the protein called caseine.  I'm sorry you are having a hard time.  I've not read all the responses, just wanted to say that sometimes people can react to things without having an actual allergy or proven intolerance to it. 

 

My step mum can't have a whole load of things but no tests have shown her what she can or can't have, she just knows what makes her feel bad and what makes her feel good and chooses the food that makes her feel good.  That means no garlic, onion, shallots, chickpeas and some other things, I get them to email a list before each visit, but their visits are years apart anyway.  She can't have gluten either. 

 

As for anxiety, I have really bad anxiety and get anxiety attacks.  This is not the same as feeling stressed.  This is feeling like being in the grips of a heart attack. 


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#19 GFinDC

 
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Posted 21 August 2013 - 02:51 PM

Hi R,

 

I suggest you don't assume that there is only one cause of your symptoms.  If you read the signature lines of some forum members you will see that they may have multiple food intolerances besides gluten.  That isn't real unusual.  Eliminating one problem food can change or improve your symptoms, but if there are other problem foods in your diet, it won't get rid of all your symptoms.

 

Casein sensitive enteropathy is a condition that causes gut damage from casein.  There is no automatic fix to food intolerances, we just have to figure them out and avoid the problem foods.  B-vitamins being low might cause anxiety in some cases.  turns out B vitamins are very important for nerve function.  And guess what your brain is full of?  Nerve cells!

 

It sounds like you went gluten-free and your symptoms got worse?  That doesn't mean you aren't gluten sensitive.  People often report feeling worse on the gluten-free diet for a while after they start it.  It's not an instant fix type of thing, but a slow slog to improvement.  Keeping with the gluten-free diet for 6 months or more is a pretty good start.

 

If you want to research how gluten can affect the brain, try searching on gluten ataxia or gluten and pschizopohrenia.  There is lots of info on the web about it.

 

I suggest you keep with the gluten-free diet since it is not going to hurt you and it may end up helping you a lot.  NCGI does not show up on any standard testing right now, so your doc won't be able to test you for it.

 

You  have a good start, may as well keep it for for a few more months and see if things start to improve IMHO.


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Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul

#20 deals88

 
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Posted 21 August 2013 - 03:01 PM

How would it feel when it would make you sick, nausea, cramps,digestive issue?

 

And how fast would you get a reaction?

 

Its awhile ago now

 

How would it feel when it would make you sick, nausea, cramps,digestive issue?

 

And how fast would you get a reaction?

 

It was awhile ago now but i just had that feeling that it wasnt agrreing with my body and then i was like it cant be this but it continued so i stopped, it was a similar feeling i get with all diary which is like a blocked stuffy feeling on my inside like stuff isnt operating properly. It did not cause cramps are that pain we get on our left sides that only comes from direct gluten for me. Not long after i tend to think that mild reactions happen quicker for me anyway, about 30 mins to 3 hours usally is my reaction time. If i have been proper done in though it might be a day or 2 then i know im f#%$£.

 

If you want to take the time to list your daily diet i could have a look and others seem willing to help, i eat the same food every day same time etc but thats largly because of my gym routine/diet. I think this is the best way to be your healthiest find food that works and stick with it.


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#21 Renegade

 
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Posted 21 August 2013 - 03:17 PM

So here are my test results

 

Sanguine formula:

White Globules: 3,6 x10^9/L

Red Globules: 5,16 x10^12/L

HB: 164 g/L

HT: 0,486 fl

VGM: 94,2 fl

HGM: 31,9 pg

CHGM: 338 g/L

DVE: 13 fl

VPM: 9,0 fl

Platelet: 120 unit x10^9/L

 

Differential:

Neutrophil: 1,74 x10^9/L

Lymphocyte‎: 1,42 x10^9/L

Monocyte: 0,17 x10^9/L

Eosinophil: 0,10 x10^9/L

Basophil: 0,03 x10^9/L

LUC: 0,09 x10^9/L

 

Routine:

Sodium: 139 umol/L

Potassium: 4,42 umol/L

Chloride: 101umol/L

Fasting glucose: 4,6 umol/L

Creatinine: 88 umol/L

IDMS-traceable creatinine: 73,1

Glomerular Filtration estimation: >=120 unit mL/min/l

ALT: 67 U/L

ALP: 102 U/L

Amylase: 43 U/L

Lipase: 90 U/L

Bilirubin: 13,9 umol/L

Proteins: 71 g/L

Albumin: 45 g/L

Albumin-globulin ratio: 1,73 g/L

 

Cardiovascular tests:

Total Cholesterol: 3,96 mmol/L

HDL-Cholesterol: 1,50 mmol/L

LDL-Cholesterol: 2,19 mmol/L

Cholesterol / HDL Ratio: 2,64 mmol/L

Triglyceride 0,58: mmol/L

 

Urinary Biochemistry:

Appearance: Clear

Color: Citrin

Density: 1,013 < 1,040

pH: 7,0

Protein Traces: Positive

Blood: Negative

Everything else is also negative

 

Microscopic Cell exam (400x):

White globules: 1,2

Red globules: 1-2

Mucus traces

 

Oh here is the interesting part, the lactose intolerance test

 

Administrated dose: 75g

Fasting glucose: 4,6mmol/L

Glucose 30 minutes later: 5,5 mmol/L

Glucose 1 hour later: 4,3 mmol/L

Glucose 2hour later 4,3 mmol/L

 

Vitamins and anemia test:

TSH: 1,38 mU/L

Vitamin B12: 654 pmol/L

Folic Acid: 24,9 nmol/L

Ferritin: 329 ug/L

Iron: 24,3 umol/L

CTFF: 49 umol/L

Saturation coefficient: 0,50

Transferrin‎: 1,96 g/L

 

So that's it if you guys can make anything out of these results and also it seem to me the white blood cells are a bit low.

Oh ya my vitamin B12 are Iron are in the top of the normality, not surprising I been having B12 vitamin from almond milk and supplements as well as iron form beef for a long time.


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#22 deals88

 
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Posted 21 August 2013 - 03:45 PM

So here are my test results

 

Sanguine formula:

White Globules: 3,6 x10^9/L

Red Globules: 5,16 x10^12/L

HB: 164 g/L

HT: 0,486 fl

VGM: 94,2 fl

HGM: 31,9 pg

CHGM: 338 g/L

DVE: 13 fl

VPM: 9,0 fl

Platelet: 120 unit x10^9/L

 

Differential:

Neutrophil: 1,74 x10^9/L

Lymphocyte‎: 1,42 x10^9/L

Monocyte: 0,17 x10^9/L

Eosinophil: 0,10 x10^9/L

Basophil: 0,03 x10^9/L

LUC: 0,09 x10^9/L

 

Routine:

Sodium: 139 umol/L

Potassium: 4,42 umol/L

Chloride: 101umol/L

Fasting glucose: 4,6 umol/L

Creatinine: 88 umol/L

IDMS-traceable creatinine: 73,1

Glomerular Filtration estimation: >=120 unit mL/min/l

ALT: 67 U/L

ALP: 102 U/L

Amylase: 43 U/L

Lipase: 90 U/L

Bilirubin: 13,9 umol/L

Proteins: 71 g/L

Albumin: 45 g/L

Albumin-globulin ratio: 1,73 g/L

 

Cardiovascular tests:

Total Cholesterol: 3,96 mmol/L

HDL-Cholesterol: 1,50 mmol/L

LDL-Cholesterol: 2,19 mmol/L

Cholesterol / HDL Ratio: 2,64 mmol/L

Triglyceride 0,58: mmol/L

 

Urinary Biochemistry:

Appearance: Clear

Color: Citrin

Density: 1,013 < 1,040

pH: 7,0

Protein Traces: Positive

Blood: Negative

Everything else is also negative

 

Microscopic Cell exam (400x):

White globules: 1,2

Red globules: 1-2

Mucus traces

 

Oh here is the interesting part, the lactose intolerance test

 

Administrated dose: 75g

Fasting glucose: 4,6mmol/L

Glucose 30 minutes later: 5,5 mmol/L

Glucose 1 hour later: 4,3 mmol/L

Glucose 2hour later 4,3 mmol/L

 

Vitamins and anemia test:

TSH: 1,38 mU/L

Vitamin B12: 654 pmol/L

Folic Acid: 24,9 nmol/L

Ferritin: 329 ug/L

Iron: 24,3 umol/L

CTFF: 49 umol/L

Saturation coefficient: 0,50

Transferrin‎: 1,96 g/L

 

So that's it if you guys can make anything out of these results and also it seem to me the white blood cells are a bit low.

Oh ya my vitamin B12 are Iron are in the top of the normality, not surprising I been having B12 vitamin from almond milk and supplements as well as iron form beef for a long time.

 

Wow tats alot, il leave it to more qualifed members to answer that, i will just say i had low white blood cells aswell and iron which urs seems fine


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#23 ravenwoodglass

 
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Posted 22 August 2013 - 02:18 AM

So here are my test results

 

Sanguine formula:

White Globules: 3,6 x10^9/L

Red Globules: 5,16 x10^12/L

HB: 164 g/L

HT: 0,486 fl

VGM: 94,2 fl

HGM: 31,9 pg

CHGM: 338 g/L

DVE: 13 fl

VPM: 9,0 fl

Platelet: 120 unit x10^9/L

 

Differential:

Neutrophil: 1,74 x10^9/L

Lymphocyte‎: 1,42 x10^9/L

Monocyte: 0,17 x10^9/L

Eosinophil: 0,10 x10^9/L

Basophil: 0,03 x10^9/L

LUC: 0,09 x10^9/L

 

Routine:

Sodium: 139 umol/L

Potassium: 4,42 umol/L

Chloride: 101umol/L

Fasting glucose: 4,6 umol/L

Creatinine: 88 umol/L

IDMS-traceable creatinine: 73,1

Glomerular Filtration estimation: >=120 unit mL/min/l

ALT: 67 U/L

ALP: 102 U/L

Amylase: 43 U/L

Lipase: 90 U/L

Bilirubin: 13,9 umol/L

Proteins: 71 g/L

Albumin: 45 g/L

Albumin-globulin ratio: 1,73 g/L

 

Cardiovascular tests:

Total Cholesterol: 3,96 mmol/L

HDL-Cholesterol: 1,50 mmol/L

LDL-Cholesterol: 2,19 mmol/L

Cholesterol / HDL Ratio: 2,64 mmol/L

Triglyceride 0,58: mmol/L

 

Urinary Biochemistry:

Appearance: Clear

Color: Citrin

Density: 1,013 < 1,040

pH: 7,0

Protein Traces: Positive

Blood: Negative

Everything else is also negative

 

Microscopic Cell exam (400x):

White globules: 1,2

Red globules: 1-2

Mucus traces

 

Oh here is the interesting part, the lactose intolerance test

 

Administrated dose: 75g

Fasting glucose: 4,6mmol/L

Glucose 30 minutes later: 5,5 mmol/L

Glucose 1 hour later: 4,3 mmol/L

Glucose 2hour later 4,3 mmol/L

 

Vitamins and anemia test:

TSH: 1,38 mU/L

Vitamin B12: 654 pmol/L

Folic Acid: 24,9 nmol/L

Ferritin: 329 ug/L

Iron: 24,3 umol/L

CTFF: 49 umol/L

Saturation coefficient: 0,50

Transferrin‎: 1,96 g/L

 

So that's it if you guys can make anything out of these results and also it seem to me the white blood cells are a bit low.

Oh ya my vitamin B12 are Iron are in the top of the normality, not surprising I been having B12 vitamin from almond milk and supplements as well as iron form beef for a long time.

Can you edit this to give reference ranges from the lab? Different labs use different ranges Also your lactose test appears to be a glucose tolerance test rather than a lactose test.


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"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#24 jrohr

 
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Posted 22 August 2013 - 02:36 AM

The thing is you guys think It could have been anxiety, as in I was having stress for who knows why, I wasn't having anxiety, I wasn't being in a panic attack, I did get anxiety before and this is how I can tell that how i was feeling in those very moment was NOT anxiety but you guys still suggested that how I was feeling was likely to be anxiety. Meaning that yes it is in my head to feel panicked for whatever reason but there is nothing wrong with my mind, yes i had a crap ton of stress out for so many things but no I wasn't in a state of panicking, i been managing my stress, I am not saying this to protect my ego, I am saying this because I know how I feel and how it feel to be panicked because again, i have been and know how it feels like and ths I can tell when I am not in this state.

 

My doctor has never mentioned the word dairy, she said LACTOSE intolerance and suggested lactose free milk and lactose free products, which I been doing already by having lactose free milk a FEW times since last week before that I had occasion milk at work and been on almond milk for MONTHS.

 

I will definitively go lactose,casein and whey free and see if this does anything, although I am sure it won't as everything I cut so far has done nothing to improve but there is nothing to lose from this at that point.

 

As far as my breathing, no it didn't kill me, doesn't make it any less be imaginating it.

It sounds like you have been posting on this site for a while. I have only read this string, so only  know your situation as posted here. 

I notice that many people with celiac and gluten intolerance also have other sensitivities.Symptoms can be very similar. I apologize if this has already been discussed.  As mentioned in an earlier post, it can still take weeks to months before cutting gluten out will find issue resolving. This is my experience as well. Some struggle with finding the other sensitivities they have. you can imagine if there are multiple sensitivities and an undefined time before they go away, and all the many ingredients in foods - well, its a challenge! Limiting your diet to a smaller number of foods, cutting out sources of common troublesome foods for a period of time to see if anything gets better, then reintroducing one at a time to find out if any cause problems is something that you could try. I understand that soy, corn, milk, eggs can cause problems, just as examples. Finding packaged or even baked foods with out these is a challenge.We went through this with my daughter. At the time we didn't know nearly what we do now and so we did not do it right the first time! I should mention that the sensitivities I am speaking of are not the same as allergies.

Another thing I have noticed is that while healing, it did help to cut down on carbohydrates. I don't know why. This is just another observation from my experience.

While the issues you are experiencing may have nothing to do with food, so many people on this forum can relate to your symptoms. It isn't easy to figure it all out. I hope that someone's thoughts or experiences shared here might help you.


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#25 Renegade

 
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Posted 22 August 2013 - 04:10 AM

Yea I'll update with the range tonight, got pretty lazy at the end after writing it for an hour.


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#26 foam

 
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Posted 22 August 2013 - 04:48 AM

Only obvious thing that's a little low and out of range is your nuetrophils, no big deal. Just be aware that lactose intolerance is generally a sign of smouldering celiac disease. It may take another 10 or 15 years to show itself but chances are it's coming. Just remember that as you go forward in life.


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#27 dilettantesteph

 
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Posted 22 August 2013 - 06:07 AM

 Just be aware that lactose intolerance is generally a sign of smouldering celiac disease. 

 

I don't think that is at all true.  Lactose intolerance in adults is very common.http://en.wikipedia....ose_intolerance

Though it is true that celiac disease can cause lactose intolerance, it is not true that lactose intolerance is an indication of celiac disease.  Did you see that 90% in some African and Asian countries are lactose intolerant?


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#28 nvsmom

 
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Posted 22 August 2013 - 06:31 AM

The stat I see over and over is that approximately 50% of celiacs are lactose intolerant at diagnosis. The theory behind that is because lactase is made on the intestinal villi, so if the villi is damaged, it can't make lactase. I am guessing that it could be linked to the inflammation though.


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#29 psawyer

 
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Posted 22 August 2013 - 07:21 AM

Oh here is the interesting part, the lactose intolerance test

Administrated dose: 75g
Fasting glucose: 4,6mmol/L
Glucose 30 minutes later: 5,5 mmol/L
Glucose 1 hour later: 4,3 mmol/L
Glucose 2hour later 4,3 mmol/L

That test was for glucose tolerance, i.e. diabetes. Based on those results, you do not have diabetes. It tells us nothing about your ability to tolerate lactose. But the comments by others about the relationship between lactose intolerance and damage to the villi are spot on.


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#30 kareng

 
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Posted 22 August 2013 - 07:27 AM

These are the ways to test for lactose intolerance. 

 

http://www.mayoclini...s-and-diagnosis


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