Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Twin Cities (Mn) Recommendations?
0

6 posts in this topic

Anyone have any recommendations for gluten intolerance and celiac-educated doctors, particularly gastros, in the Twin Cities and the southern surrounding areas? Basically anywhere between-ish Lakeville to Minneapolis. I've been to three doctors in the MN Gastro chain so far, and I don't know if I just happened to pick the worst ones but they were enormously unhelpful. But if you have a specific doctor from that chain, I'd be willing to try going there again! I also know the Mayo is nearby but I don't think I would get in because my symptoms are not as severe as other people on their list, and I've already had an endoscopy which came back negative.

 

I just need someone who won't immediately dismiss me when I tell them I have lasting symptoms from my gluten trial 9 months ago. So far they've all taken one look at my IGA and biopsy results and told me there was no correlation between gluten and my symptoms before wildly attempting to push drugs at me.

 

Any recommendations would be a big help! Thank you.

0

Share this post


Link to post
Share on other sites


Ads by Google:

I go to Between the Bridges In Mankato, Mn.  Dr. Kotulski came highly recommended as one knowledgeable of how to use supplements.  He was recommended to me by my chiropractor who called around and found He is trained in Osteopathic medicine and Functional Medicine  Dr. kotulski was associated with the Mayo Clinic for 32 years before opening Between the Bridges.  Functional medicine looks for roots of illness rather than just treating symptoms.  A couple of years back Dr. Kotulski helped to solve my son's problems with parasites and damaged villi.  This seemed shockingly similar to the damage I had sustained from celiac.

 

I didn't want to use a male doctor myself, so when I heard there was a nurse practitioner using Functional Medicine techniques practicing there, I went.  I knew that Dr. Kotulski would help her if she needed it.

 

I first went to the clinic myself five months back.  I have been there 3 times.  I had a nutrient test  done elsewhere in November which I could not grasp the meaning of.  Lisa, the nurse explained to me the significance of these test results.  They backed the nutrition program I was on, with a couple of key supplements added.  In spite of a great diet and supplements, my vitamin A and B levels were seriously low and many other nutrients were borderline.  I tripped markers for mal-absorption.  Dr. Kotulski told the nurse that  on the November day of my test that I had nothing to make cortisol with. 

 

I just had a repeat nutrient test in order to discover that my all my nutrient levels (but one) had come up to normal or better.  Vitamin B levels came way up to slightly high levels!

 

I am happy with Lisa, the nurse.  She carefully, answers each of my questions.  The treatment seems to really help.  I highly recommend this clinic.

 

Just to be clear this is not a "GI" doctor.  I thought you may be willing to consider it.  Whatever, you decide, best wishes for your total well being.  If you have any questions about Between the Bridges or the practitioners there, feel free to ask.

 

D

 

 

 

 

 

.https://www.google.com/search?q=between+the+bridges+mankato

0

Share this post


Link to post
Share on other sites

I go to Between the Bridges In Mankato, Mn.

...

Thank you so much for your response! Unfortunately, that is outside of my driving range as I don't have a license and the only person available to drive me can generally only take a couple hours of out his day. I will definitely make note of it for future reference though!

0

Share this post


Link to post
Share on other sites

Thank you so much for your response! Unfortunately, that is outside of my driving range as I don't have a license and the only person available to drive me can generally only take a couple hours of out his day. I will definitely make note of it for future reference though!

Too bad.  I have asked the only other member I know from MN to tell us who her GI doctor is. 

 

The same person that recommended Dr. Kotulski to me also told me of the Bruley Clinic.  The doctor is an MD with Functional Medicine training.  Since I went to Dr. Kotulski, I didn't get an opportunity to go to this clinic.  At the time, their appointments were 2 + months out. http://www.bruleycenter.com/

 

Hey, there must be more MN's out there???

 

D

0

Share this post


Link to post
Share on other sites

Eclara,

 

It is further north than what you were hoping for, but I see Dr. O'Reilly at MN Gastro in Maplewood. I have to admit that I was frustrated early on, but overall it has been a good experience. He was more than willing to work with me and had an open mind. He is the one who suggested we don't just focus on celiac, but look at other possibilities. I usually see others in his office who report to him, and most of them are pretty good. Only one of them did not impress me because she didn't explain things well and constantly had to go talk to the doctor before answering my questions.

 

Best of luck to you, and I hope you are able to find a GI doc that fits your needs.

 

Maggie

0

Share this post


Link to post
Share on other sites




I am in MN and looking for a good one to. I am in the twin cities on the Eden Prairie side. 

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,657
    • Total Posts
      921,628
  • Topics

  • Posts

    • Hi, you can try reporting your own post.  That should alert the site admin of your request.  I don't think they can delete your posts, but changing your user name may be possible.
    • Hi Pablito, Welcome to the forum! You are right, you should keep eating gluten  until the tests are all done.  The skin problems you describe ma be a condition only celiacs get.  The condition is called dermatitis herpetiformis (DH for short),  DH causes an itchy rash that is usually symetrical on the body.  You get the rash on both arms or legs etc.  It makes little blisters on the skin.  They are caused by IgA antibodies in the skin.  There i a test for DH where they take a small skin sample (biopsy) from the skin next to a blister and check it for IgA antibodies.   If they find DH, then you have celiac disease.  The 2 conditions are never separate.  there is a section of this forum dedicated to dermatitis herpetiformis with lots more information. The usual diagnostic process is to do a celiac antibodies blood test first, and then an endoscopy to test for damage to the gut lining.  But with DH, it is better to get the skin biopsy done instead of the endoscopy. Celiac disease is passed on in genes, so your children should be tested also if you are diagnosed.
    • Research Celiac Ataxia for potential diagnosis. Look at Milk and dairy for potential head and sinus related issues.  I stopped dairy and I can breathe now! Saturated fat may also be a problem, but it's mostly dairy!
    • It is best not to try and do this on your own. Talk to your allergist. Not all will deal with food intolerances but if yours doesn't find one who will.  Mine had me fill out a very detailed diet questionaire and tested for true allergies before he gave me my starting point. I will admit I wasn't real happy with my starting point since none of my usual foods were on it. He said that I was most likely to react to foods I ate the most so most of the 5 I either rarely ate or didn't really like. The prescribed starting point he formulated was designed to make sure I had adaquate nutrition and enough calories.   It took about 2 weeks before a lot of my tummy issues resolved and I was then able to start adding foods in one at a time for a week before moving on to the next.  He said food intolerance reactions can take up to a week to show up so I had to be sure it was a full week between food additions. I did have to call three offices before I found a doctor who could do the formulation of the diet but this guy truely saved my life. Out of all the doctors I had seen, including specialists in big hospitals, he was the one responsible for finally realizing I was celiac. He of course referred me back to my clueless GI doctor who confirmed the diagnosis by almost killing me with a gluten challenge. I should note that some of my intolerance (not gluten of course) did resolve after I had healed. Even dairy which I hadn't been able to have for years! I hope you can get some answers and are able to heal soon.
    • I'm 43 years old. I'm married and have two teen daughters. After all these years it was one of my daughters who tonight said to me: "you probably have Celiac disease" after hearing my wife and I talking about all the pimples I always get on my arms. I never heard of the disease but I have heard about a lot of people having gluten allergies and didn't know they were the same thing. So I started looking it up on the internet. Turns out I have had all the symptoms all my life and no one has ever said anything about it possibly being Celiac disease. When I was a kid my doctor gave me prescriptions to antibacterial soaps to use for the arm pimples. Hibitane I think was one of them. And I've always had swollen looking ankles as long as I can remember. All my life people have noticed it. As a kid and teen I played lot's of sports and have broken my ankles and sprained them so my mom and I brushed it off at that and so did my family doctor when I was young.  But I always thought it was weird that the swelling continued all these years.  I have had a bloated feeling stomach all my life too and chronic diarrhea. My stomach is always hard and swollen feeling. Not ever knowing what that stuff was related too so I have never mentioned the bloat or diarrhea to a doctor. Just kind of embarrassing I guess. As my wife and I were reading about Celiac Disease on the internet together tonight she pointed out to me that that's probably why these symptoms almost all went away when I did a very low carb diet for about a year straight to lose weight a couple years ago. I had solid bowel movements, no bloat, ankle swelling went down but I thought the improvements were from weight loss and just eating healthier . But perhaps in reality it probably had a lot more to do with not eating all the wheat products/gluten products. So tomorrow I will be seeing my doctor to talk to him about it and to ask for the blood tests. I have read that I should continue eating gluten though until my testing is done. So that is crappy but I guess it's better to know for sure. Something else I think I should point out too is that I get headaches quite a bit after having big meals. Now I am thinking that may have something to do with the gluten too. I have read that some people with Celiac also get headaches with the other symptoms. It's great to see there is a forum like this to help people out with these issues. If I test positive for Celiac I will for sure be following this forum closely for advice and diet/nutrition help.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,657
    • Most Online
      3,093

    Newest Member
    pablito
    Joined