"In short, neither my neurologist nor my GI seems to feel that there's a connection between my gut and my head, but I tend to disagree. Who's right, and if it's me, how do I make my case?"
Obviously, that's hard to tell but...I'd say that at the very least, your Gi and neurologist both sound pretty ignorant about possible affects of celiac disease, at the very least. I belong to a celiac group in my town and most of those with neurological issues got little to no help from their GI docs. Neurologists don't seem to know about celiac disease much in general unless you're lucky.
But...don't know if this helps, but I've seen a little on the trigeminal neuralgia and one thing some of the literature said is that there may be some connection to blood flow, I think? I don't know a lot about it. But there has been one study I've seen on celiac disease and the fact that it may affect blood flow in our brains if we are getting gluten. So, that might be worth taking to the neurologist maybe and asking them if something like this could potentially trigger your condition, perhaps? Or exacerbate it, if you still have enough gluten in your diet to cause a little inflammation in the gut.
(study: http://www.ncbi.nlm....pubmed/14984816 )
I know there are other studies on the brain and celiac disease, too, including what looks like a separate antibody that may affect the nervous system, NOT the gut, in some celiacs if they get gluten (article: http://www.celiac.co...ders/Page1.html ).
If you look up gluten ataxia or the TG6 antibody, that can find you some more research to share with both the GI doc and the neurologist, if you wish to stay with them and educate them a bit.
Gluten free since August 10, 2009.
21 years with undiagnosed Celiac Disease
23 years with undiagnosed sulfite sensitivity
25 years with undiagnosed mast cell activation disorder (MCAD)
Daughter: celiac and MCAD positive
Son: gluten intolerant
Father, brother: celiac positive