Hello! I'm new here. I'm hoping to clear up some of my confusion.
My first problem is this:
My GI suggested I cut gluten for a couple weeks. I was having digestive issues along with other seemingly unrelated issues (hormonal problems, tingling fingers and toes, water retention/facial swelling, brain fog, etc). I didn't know anything about Celiac or gluten intolerance. I asked if there was a test I should have first and he told me he didn't want to do the test but to eliminate gluten. I did so (which I am now regretting). A few friends of mine with Celiac told me that 2 weeks probably wouldn't be long enough to see results if gluten was the problem, so I went longer. By 6 weeks I was feeling great! Felt like myself again for the first time in years. The swelling reduced, the tingling stopped, my lower back stopped aching, my digestion improved and my mother and husband noticed huge improvements in my mood. I started to do more research about Celiac and realized that my 4yo son has many of the symptoms. I mentioned it to his doctor who did a blood test which came back positive. THEN I read Celiac is genetic and THEN I read that once you go on a gluten-free diet you can no longer be tested. I've been gluten-free for 10 weeks. I am feeling frustrated because I hate to go back on gluten to have the test done. Is there anything I can do?
The relief I felt after going gluten free was the first time I've felt good in years. It seemed completely obvious that gluten was the problem, as cutting gluten was the only change I had made. But by about 6-8 weeks some of my problems started to return. Does this mean that my improvements were just a huge coincidence? Or did cutting gluten make me even more sensitive and now I am reacting to possible cross contamination? My digestive issues returned, and my mood started to decline again, but the water retention doesn't seem as bad as it did pre-diet and my belly isn't as bloated. So I am still showing improvements, but it's like I took a step back almost. Are these fluctuations normal at the beginning of a gluten-free diet? I am feeling a bit discouraged.
Any advice or ideas would be greatly appreciated! Thank you!!