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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Needing Some Encouragement...anxiety Kicking In
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6 posts in this topic

Hi...I read posts on here regularly, but I haven't been writing on here in a while because I have been doing really great after such a long struggle.  I was diagnosed Celiac by biopsy in Fall of 2011...really sick.  Well, I have been spending the past almost 2 years healing...ups & downs...but so thankful to be heading up more than down.

 

I finally felt well enough to start looking for part time work(my hubby works & we have 4 school age kiddos).  Our medical bills are so crazy from the period of time I was so sick, & I want/need to help out financially. 

 

I took a wonderful job a couple weeks ago that I begin tomorrow & my symptoms have absolutely returned.  I am so frustrated.  In my head, I'm sure this is completely anxiety kicking in...something I havent dealt much with but seems to be magnified in this new Celiac body of mine.  I've lost 7lbs in the past week, I get sick every time I eat, mornings are now my worst time, & I think I am panicking because I don't want to end up in the hospital again.  

 

I just need some encouragement & advice from some of you that have lived with Celiac Disease longer than me.  Is there anything you take to calm down your insides?  Is anxiety another angle of Celiac Disease that I have to get a grip on...if so, how do you deal? 

 

Sometimes I feel like I have conquered living with Celiac Disease...other times I feel like the disease is kicking my butt!

 

Thanks for listening... 

 

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If its anxiety about the job and your new schedule....it will work itself out in a few days, right? You might try some relaxation techniques or yoga or a brisk walk.

Pregnant?

Try to sneak a little food in. Maybe broth or Popsicles. 2 bites of chicken and then go do something else. Then a couple of bites of rice. walk away. Sometimes being hungry can make the sick feeling in your stomach worse.

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(hugs)

I tend to get "symptoms" when I am stressed too. I start to feel fluish, fatigued, crave carbs, get back pain and migraine, and C stops me up.  Exercise (walking) tend to help relax me, and so does a short meditation... it sounds a bit flaky, but if I sit for 5 minutes, close my eyes, breath evenly and deeply, and then I concentrate on relaxing my body from the top down... it works for me.  Extra sleep helps too.

 

I hope things settle down for you and you get into the work routine soon.

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i thank God every day i am in a position that i don't have to work.  i am still not up to my goal weight and the first thing that takes a backseat, when i am working, is eating.  and i am a freight broker, so it's mega-stressful and super busy.   :(  but, our kids are grown and our bills are not as steep as they used to be raising 4 kids, so, it's manageable.  i am paying it forward, too, as i babysit (no charge) my grandson, my niece & nephew, the kid next door, etc - and i hope it helps everybody get ahead.  praying for strength and peace for you (and maybe a little xanax lolz)  ;)  

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Hi...I read posts on here regularly, but I haven't been writing on here in a while because I have been doing really great after such a long struggle.  I was diagnosed Celiac by biopsy in Fall of 2011...really sick.  Well, I have been spending the past almost 2 years healing...ups & downs...but so thankful to be heading up more than down.

 

I finally felt well enough to start looking for part time work(my hubby works & we have 4 school age kiddos).  Our medical bills are so crazy from the period of time I was so sick, & I want/need to help out financially. 

 

I took a wonderful job a couple weeks ago that I begin tomorrow & my symptoms have absolutely returned.  I am so frustrated.  In my head, I'm sure this is completely anxiety kicking in...something I havent dealt much with but seems to be magnified in this new Celiac body of mine.  I've lost 7lbs in the past week, I get sick every time I eat, mornings are now my worst time, & I think I am panicking because I don't want to end up in the hospital again.  

 

I just need some encouragement & advice from some of you that have lived with Celiac Disease longer than me.  Is there anything you take to calm down your insides?  Is anxiety another angle of Celiac Disease that I have to get a grip on...if so, how do you deal? 

 

Sometimes I feel like I have conquered living with Celiac Disease...other times I feel like the disease is kicking my butt!

 

Thanks for listening... 

 

Hi...I read posts on here regularly, but I haven't been writing on here in a while because I have been doing really great after such a long struggle.  I was diagnosed Celiac by biopsy in Fall of 2011...really sick.  Well, I have been spending the past almost 2 years healing...ups & downs...but so thankful to be heading up more than down.

 

I finally felt well enough to start looking for part time work(my hubby works & we have 4 school age kiddos).  Our medical bills are so crazy from the period of time I was so sick, & I want/need to help out financially. 

 

I took a wonderful job a couple weeks ago that I begin tomorrow & my symptoms have absolutely returned.  I am so frustrated.  In my head, I'm sure this is completely anxiety kicking in...something I havent dealt much with but seems to be magnified in this new Celiac body of mine.  I've lost 7lbs in the past week, I get sick every time I eat, mornings are now my worst time, & I think I am panicking because I don't want to end up in the hospital again.  

 

I just need some encouragement & advice from some of you that have lived with Celiac Disease longer than me.  Is there anything you take to calm down your insides?  Is anxiety another angle of Celiac Disease that I have to get a grip on...if so, how do you deal? 

 

Sometimes I feel like I have conquered living with Celiac Disease...other times I feel like the disease is kicking my butt!

 

Thanks for listening... 

Stress definitely does not help my symptoms. As mentioned walks seems to help. I try to leave myself some down time each day if possible, but if your a mom that may be more difficult. Try to let everyone know what you need from them and that if you are having a rough day that they will need to step up their game and be on their best behavior for the day and that you will have a little less to offer. When my kids get that dad is not doing so well they tend to behave better, but if not they know dad has a little shorter fuse when he is not feeling well. I totally get what you mean about thinking you have Celiac under control and then realizing it is in control at the moment. Anything I can do to take my mind off the symptoms or focus on the soul is helpful to me. Best wishes to you!

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Congrats on the new job.

Celiac can give some folks anxiety but if you haven't had other issues with it since diagnosis or before then your anxiety is most likely due to the big changes that come with going back to work.

With a family that includes 4 school age kids going back to work is going to be stressful at first. Hopefully the whole house pitches in to help with household chores and daily preperation.

You have gotten some good suggestions from the other folks. Something that helps me a lot is I get up very early so I know if I should be having a bad morning I have plenty of time to ease into the day. I use that time when the world is quiet to do 'me' stuff like get on the computer, watch a show that I recorded because I went to bed too early to watch it, walk the dog etc.

I hope your first day of work goes smoothly and as stress free as possible.

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    • In Dire Need Of Help
      Having anxiety is a major symptom of celiac disease per many of our members on this forum (including me).  These are the tests needed for diagnosing celiac disease but the catch is that you need to be consuming gluten in order for them to be valid.   http://www.cureceliacdisease.org/screening/ Your GP or PCD doctor can order the panel.  Try to go for the complete panel.  Often just the TTG tests are given in order to save costs.  It's good, but does not catch all celiacs. I hope you get relief!  
    • In Dire Need Of Help
      You need to have your adrenal glands checked. I was diagnosed with celiac after my adrenal glands started to shut down. Since then I have met at least 3 others that had the same thing happen. It was missed 3 times in the hospital, for some reason the adrenals often get missed.  It sounds like the latter stages of hypo adrenalism, not adrenal fatigue. Research it to see if that seems like what you are going through and make sure you find a dr that knows how to diagnose and treat it
    • In Dire Need Of Help
      Hi my name is Alex and I am 23 years old. I am suffering so badly right now in life. Everyday I have multiple, very severe panic attacks. I have called 911 many times in the last 6 months. I am suffering with vertigo, intense weakness and pains, I can not digest anything, I have terrible acid reflux, I can't sleep, I can't relax, my heart constantly palpitates, my breathing is "forced labor" all day. I am suffering in a mental fog. I have been from doctor to hospital to doctor and every EKG comes back normal, every doctor says the same thing, I am struggling with anxiety and they write me whatever prescription of the week they are offering  I recently took it upon myself to cut gluten out of my diet, and wallah! I felt like I did in high school within 2 days. I work in NYC and many times it is nearly impossible to find something containing no gluten, and many times when I ask they tell me "No Gluten" and I eat whatever food I ordered (probably salad w/ dressing) and i find myself driving home in a terrible panic attack. Panic is my main symptom. I have not been diagnosed yet, but the difference from how I feel and how to the people around me tell me I act I am 100% convinced. The question I'm having is, what do you think? Is it possible I have Celiac? Can panic be the main symptom? I'm telling you right now, my anxiety is unlike anything anyone has ever seen. I lay on the ground for 2 hours with numb limbs feeling like I am having a stroke unable to talk to anyone. I have 2 of these a day. Please let me know your thoughts. I truly am a novice with all of this. I am suffering and I need help. Thanks
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       Falsified medical records
       No Biological Test for "Mental Illness" (no blood, urine or other lab testing)
       Breach of Confidentiality (...if she sends my medical records to my doctor or discusses them with him. I am requesting a copy of my records from this doctor t see if she sent anything to him.)
       Physical Illness Misdiagnosed as "Mental Illness"
       I was told I have a "chemical imbalance" (without any lab tests)
       Unethical Conduct
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       Something else that didn't seem quite right  
    • Allergy or Preference? Waiter asks
      At my local Five Guys, I told the counter guy that I had to avoid gluten for medical reasons. I was ordering a burger with no bun and some fries. He yelled back "Allergy Alert!" and every line cook immediately changed gloves and cleaned their work space. Will I go back? You bet I will!
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