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No Symptoms After Reintroducing Gluten

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I have been a frequent on this site for several months now but this is my first post. I started having symptoms over a year ago. At first it would be about once a months or so and they would last for 5-7 days. I would have bloating, gas, brain fog, insomnia and then extreme fatigue, etc. My period has been non existent for 14 months now even though I am only 32. The symptoms started to get worse to the point of every couple of weeks, then every week, then daily. I couldn't eat much, no matter what I ate made me sick. The IBS symptoms started as well and the brain fogs were debilitating. Dr was still convinced my hormones were causing all of this but friend suggested I try gluten free and doc approved saying it wouldn't hurt. The road was bumpy but it did make me feel better. I was following the diet very strictly for me but was cooking with gluten for my child and husband w/out testing the food. Then I realized that my symptoms were still present in a milder form, mostly brain fog, then joint pain, bloating... I had same reactions to watermelon, peaches, cherries, carrots and the number of other fruits and veggies as I had to gluten. I went to a doc to see if I was just getting very sensitive to gluten or if this was something else. I had to do a gluten challenge for total 4 weeks. I did have D and constipation, bad gas and bloating but I only had brain fog like 3 times towards the end of the challenge. I had stomach pains, at times pretty bad but most times I could tolerate them. Anyways, I did not feel as bad as I anticipated and I am starting to doubt that I have gluten intolerance. My test results will be available in 2 weeks but doc did not see an immediate damage during endoscopy. He told me to go back on gluten free and I have been for 4 days now. I had weakness, cold sweats, fatigue and some brain fog the first 3 days and today I woke up with horrible joint pain like a flu without the fever. So weird that I would go back to my symptoms after stopping gluten???????

Has anybody experienced this? I am sooo desperate, I just want answers so I can move on with my life.

Sorry for the long rant...


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  The short answer is yes. Have you officially been diagnosed with Celiac? There are a lot of stomach issues out there. Unfortunately I have a lot of them. Some of them I understand, some I


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 Sorry, some of them I do not understand. I would find out for sure if you have Celiac via a blood test. IGA/TTG is the test I was diagnosed with. I had half of it years prior but not the other half so there were extra years of misery. I don't understand the others reasons why people do a gluten free diet other than Celiac, but it  would find out for sure if you have it. Knowledge is power, so find out all you can medically. There are setbacks even if you have Celiac and are following the diet. I hope I am at the end of one of them. When you are first diagnosed, one is so delicate and about anything can set ones stomach off. It's really a marathon. Hang in there, follow this forum and make posts. It is a great resource. Doctor's don't know all I wish they did but there are many knowledgeable people on this forum.


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Hon, you said this:


I had to do a gluten challenge for total 4 weeks. I did have D and constipation, bad gas and bloating but I only had brain fog like 3 times towards the end of the challenge. I had stomach pains, at times pretty bad but most times I could tolerate them. Anyways, I did not feel as bad as I anticipated and I am starting to doubt that I have gluten intolerance



You have some intolerance for gluten or you would not have ANY symptoms while consuming it.

Your list of symptoms is very telling.


You may not have had  "visible evidence during the endoscopy" but that is not what's relevant.

The villi are damaged with celiac and that is only seen on the biopsy.


Your doc sounds very savvy. I'd listen to him, stay off gluten and wait for the biopsy results.


You feel bad because you were consuming gluten again. Once it leaves your system, you will start to improve.

Be patient. Healing takes time.

Hang in there!


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Ditto Irish, you have a LOT of symptoms.  :( And they do tend to get worse as time goes on, so if you continued eating gluten you would probably continue to go downhill.


You could have hit withdrawal this time. I felt really poorly in my first few weeks gluten-free. I had another downhill bout from 3-6 months gluten-free. It can really take some time to feel well with this disease. You have only been gluten-free for a few days, so it's still in your system, and your body might still be producing autoantibodies (mine still is at 14 months gluten-free, although at a lower amount).  Give it time... easier said than done isn't it?  LOL  ;)


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    • Hi Ironic Truth, Thanks for Replying. Wow I get bad joint pain too. So my opinion especially if he is eating gluten is to get him tested. I wish I had been tested when I was eating gluten 8 years ago .  I had tried 8 years ago initially to figure out what the heck was going on with me and my immune system. I started with a GP, went to Allergist/Immunologist etc. I gave up 4 doctors later when nothing seem to be found and you sense they start thinking lady you're a nut job . My cousin a diagnosed Celiac took over 2 years to be diagnosed and she is a nurse. My husband said for years "I think bread is bad for you" and in a desperate attempt to help myself -I gave up wheat after 2 weeks felt better 2 months later I went total gluten-free and felt very much better that was 4 years ago. So I have suspected NCGS or Celiac for a few years now. However getting someone to test you for it when you were classified IBS 20 years prior-well as is chronically heard on the forums here is perhaps the biggest challenge of all. One then just finally says ok I will just try this gluten-free thing myself. I was gluten-free for 3 1/2 years and improving. Then  I got gluten-ed in March of 2016 and I had worse symptoms then ever the joint pain arrived. I went to a new allergist who refereed me to another Allergist/Immunologist who deals with Celiacs and Food Intolerances. I did see a Rheumotologist in July 2016 since the muscle and joint pain was still lingering, who tested me and reported no antibodies. Back to the specialist who did more test and suggested the gluten challenge. It's likely me failing to complete 2 weeks caused it but the symptoms got real bad and I thought I'm going to have worse issues if I don't stop this.  Today my fingers are just starting to heal they were peeling during the gluten challenge among all the other symptoms I get, which I attribute to dehydration. The dry peeling fingers did not improve until I got the IV the day of the scope. Bizarrely I was looking forward to the scope hoping I'd get an IV with Meds and fluids becaus eI felt I needed it. I did see one abstract, I can't get my hands on the full article as you stated their is a link: Dig Dis Sci. 2005 Jan;50(1):126-9. Celiac disease and intestinal metaplasia of the esophagus (Barrett's esophagus). Maieron R1, Elli L, Marino M, Floriani I, Minerva F, Avellini C, Falconieri G, Pizzolitto S, Zilli M So I will pursue the path of monitoring the  Barrett's. Despite no official diagnosis for me, you are right Gluten is bad for me, I should avoid it, I will, and I'll stay on the forums. Good luck with you Boyfriend he is lucky to have you looking out for him.
    • Hi Sunshine, There is a program called a 504 plan that some schools will follow if you get one approved.  It helps the school identify proper ways to deal with a child's particular needs.  Probably it is helpful to have a 504 plan, but they may require a formal diagnosis for it.  I suggest you talk to the school and ask them about it.  Tell them the situation with the kid and about the stress he would need to go through to get diagnosed.  They may be willing to work with you without a formal diagnosis.   I am not saying you absolutely have to have a 504 plan for him.  School districts vary and some may be more accommodating than others.  A 504 plan may give you certain rights, but I  am no expert on them. The gluten challenge is 12 weeks of eating gluten for blood tests.  The payback for being formally diagnosed is questionable IMHO.  Treatment is the same regardless, eating gluten-free for life.  One thing to be aware of is that celiac disease has a genetic factor.  So he got the gene from one of the parents.  Anyone else in the family could have celiac develop at some point.  So testing every couple years for all family members is a good idea. Welcome to the forum!
    • Thank you everyone. I appreciate all of the information and support.  I am feeling overwhelmed right now and it was really getting me down yesterday. I don't feel so hopeless now. 
    • Okay. I think I will start with an allergist and a dietitian. 
    • Yes, that list I posted includes stuff to look out for in your cosmetics as well, I think. Spices get contaminated often depending on brands, sources, and packaging plants, you have to find brands that are certified, I find Spicely Orangics works here. Supplement wise I am on a ton. I take combinations of Liquid Health Brand, Stress & Energy and Neurologic Support for B-Vitamins, I take Doctors Best Chelated Powdered Magnesium. I drink a bunch of almond milk and eat a lot of nuts, seeds, green leafy veggies, and a huge viarity of foods always having a mix to balance out my needs in vitamins (I studied alot an worked with a dietician to learn what contains what and find my balance). I found a IBS targeted probitotic from jarrow seems to work best with me and no bloat. List of other supplements if you want but with celiacs different people can get different deficiencies and you should probably talk to a dietician and see about having your own regiment built up. I just listed the common ones. I was thinking about this later on and after I got off the stuff for awhile I found myself randomly vomiting from some foods, none of the brain fog, numbness, Just throwing up. Ended up I developed intolerance to certain foods like egg yolks, soy, and a few others things. I also developed allergies to corn where I would just get sores in my mouth and digestive tact and run 99-102F Fevers when I ate anything contaminated with it. And a peanut allergy that caused me to distend and swell throwing up for hours and getting a rash later on. My different reactions to different foods made my dietician laugh at how odd my body is (we both did after talking for awhile) and my doctors found it interesting and kept on wanting to run more test.
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