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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Extreme Depression As A Reaction
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6 posts in this topic

I had a TERRIBLE reaction to the "Food Should Taste Good" sweet potato chips, and I'm not sure why.

Ingredients: Stone Ground Corn, High Oleic Sunflower Oil and/or Safflower Oil, Sweet Potato, Corn Bran, Evaporated Cane Juice, Sea Salt

I've eaten these chips on several different occasions, but I always had something else I blamed the reaction on. Twice I thought I had been glutened, but this past week it would have been highly unlikely so I looked back over and realized they were all times I had eaten these chips.

The reaction each time started out as strong brain fog, which grew worse every day and made me really angry and severely depressed, to the point of suicidal ideation. I got extremely tired and had bad stomach pains, bloating, muscle pain/weakness and diarrhea. I took a charcoal yesterday while in agony after eating the chips, and half an hour later the depression began to lift. Today was the first day I didn't eat them and my stomach is still a little messed up but overall I'm okay.

But now I'm completely terrified at how much it affected me mentally. I was so depressed I could barely speak. I haven't felt that bad in years- I wrote a suicide note! I'm really worried about how completely it had me under its spell, and I'm afraid to try new things for fear of what it will do to my mental state. I don't even know which ingredient it was that did it, but I'm assuming either sweet potato or corn. How is it possible that food can do that to a person? Has anyone else experienced this? How do I determine which ingredient it is without putting myself at risk?
 

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hi,

 

not sure if this will help at all- but i react in the same way to dairy. dark repetitive thoughts, i really struggle to get them out of my head even though the sensible me knows ishouldnt be paying them any attention. i dont do dairy now lol.

 

on another note- i started a thread a while ago on the difference between high oleic sunflower oil, and sunflower oil because i use to react to the high oleic tortilla chips but not the other. not sure why and nobody had any answers!!

 

were they gluten free chips? did it say so on the packet?  it could be a contamination issue during manufacture . to be honest the only way of finding out what it is   is by trying all the ingredients individually - a complete pain i know.

hope you find out what it is   sorry i couldnt help more

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Could it have been cross contamination rather than a particular ingredient?  I get that way from gluten.  I'm glad we don't have any guns in our house...

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Thank you for the replies!

 

on another note- i started a thread a while ago on the difference between high oleic sunflower oil, and sunflower oil because i use to react to the high oleic tortilla chips but not the other. not sure why and nobody had any answers!!

 

were they gluten free chips? did it say so on the packet?  it could be a contamination issue during manufacture.

 

 

Could it have been cross contamination rather than a particular ingredient?  I get that way from gluten.  I'm glad we don't have any guns in our house...

 

They say they're certified gluten free, and their policy says:

 

"All of our products and processes are inspected, tested and certified gluten free by the Gluten Free Certification Organization. Additionally, suppliers are required to provide negative-allergen documentation to guarantee their ingredients are gluten free. We also verify these results using a third party laboratory."

 

They seem pretty legit, but I'll definitely email them to be 100%. I also don't think oil is the problem for me, as I eat high oleic safflower oil-based vegenaise by the jarful with no issue.

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I eat these chips with zero issues and I am ultra sensitive to gluten hits....miniscule ones.  I have gotten horribly sick from crumbs so I consider these chips safe.  They have an excellent certification policy and most companies do not go this far to ensure safety.

 

You have in your signature that you are unable to tolerate grains and these contain corn.  Perhaps it was the corn.  Grains can be problematic and affect mental state.  In the 1950's, in Britain, bi-polar was often referred to as "bread madness" because the Europeans have known for a while that wheat and other grains can directly affect those with bi-polar disorder. Not saying you have that but yes, grains can have a tremendous impact on mental state for some people.  Definitely stay away from these with reactions that severe!

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One of my symptoms is also depression and anxiety. If I start getting anxious, or depressed, etc for no other reason, it was probably a reaction. I had a really bad bout a few months ago, worse than a long long time, and it scared the shite out of me (and my boyfriend). Not good at all.

As for Food That Tasted Good, they also don't seem to treat me super well. All their chips are gluten free, but some do contain soy, so I just steer clear of them in general now. No bad reactions, but they just don't sit well.

Corn is a definite possibility, but only if you have similar reactions to corn otherwise. Do you have any other intolerances? Are there any other foods that seem to bother you? could it have been CC from something else?

In any case, stop eating them. Hope you can figure out the culprit, but mostly hope you feel better and the clouds start of lift. I can handle aches and stomach issues and all that, but the mental stuff is brutal.

Hugs

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    • How do you know what's causing what?
      I am in same boat, yesterday my stomach was churning and bloated and I don't know what the cause was.  How about keeping a food diary? Just note what you ate and how you feel. A few days may be sufficient to discern a pattern, either some rogue product or a previously unknown intolerance. I have read that after gluten is removed further intolerances which were hidden can become apparent.  I don't know whether you could cut yourself some slack from a full vegan approach whilst your body heals? If not, maybe you could substitute say milk with coconut milk or similar to give your body a break whilst keeping calcium levels high? If you join coeliac uk you can check your sauces etc on their gluten-free database, they'll also send you a book which became my bible until I got a hang of which brands I could eat safely. Finally, have you excluded cross contamination from pots and pans, toasters, shared condiments etc?  Good luck!
    • Blood results - odd
      My results were similar – Low ferritin but normal B12. Although my ferritin levels were low, my Iron serum levels were normal. So might be worth getting your iron levels checked out to see if you have any deficiency in Iron. Also I was deficient in Vitamin D, which is perhaps more of a problem in England rather than the US - Our milk isn’t supplemented with vit D and we obviously have less sunshine.
    • How do you know what's causing what?
      Hi Kam, If you are going to continue the celiac testing with an endoscopy, you need to keep eating gluten until it's done. It can be hard for vegetarians to keep their vitamin D levels up.   This Vitamin D  Council link has some good info on ways to boost your levels. https://www.vitamindcouncil.org/about-vitamin-d/
    • Blood results - odd
      Your ferritin was very low!  My result was a 2 when I was diagnosed.    I hard a hard time breathing and the fatigue was awful due to low hemoglobin levels.  But after going gluten free and taking iron for a few months, I quickly recovered from iron-deficiency anemia.  I still have hemologobin levels that are slightly below range due to Thalassemia which is genetic and my body has adjusted for it.   My B12 and folate levels are  super high.  My B12 is over 2000!  Yeah, I googled and ruled out cancers, etc.  Looks like some of us do not process man-made B12 often included in supplements.  I opted for natural sources of B-12 and folate and my levels have come down a bit.   Let us know your results.  Read the Newbie 101 section under "Coping" within this forum for tips.   Be patient.  It can take months, to years to feel good.  But it will happen!    
    • How do you know what's causing what?
      Welcome to the forum!   Well.....in theory you should be able to heal within a few months (grow new villi, etc.).  The reality is that it takes so much longer -- like a year or two (I kid you not!)  Why?  celiac disease can damage more than just the gut.  Depending on what was damaged (nerves, bones, etc) can impact healing time.  The gluten-free diet has a very steep learning curve.  It's not just giving up gluten.  It's avoiding cross contamination.  Becoming an expert in reading labels.  Learning to avoid foods processed on shared lines in a facility.  Then there are intolerances that most celiacs develop.  The most common ones is lactose.  Why?  The villi tips release the enzymes to digest lactose.  No villi tips?  Then you can not digest lactose.  Often this is temporary, but if you are one of the many adults in this world, you might already be lactose intolerant or might become so as you age.   Other intolerances that members often report include corn or soy.   Some celiacs react to oats, even gluten free.  So avoid oats for six months.  So, try cutting out dairy for a few days and see how you feel.  Then add in those items that have the least lactose:  hard cheese, butter, yogurt and see how you feel.   Avoid eating out for six months until you have seen some improvement.   Read our Newbie 101 thread under coping for more ideas!  Hope you feel better soon.   
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