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I Think I Found The Glutening Source......
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So, I had been feeling really crummy for a few weeks and could not identify a source of gluten.  I thought maybe cross-contamination but if that was the case it would have to be persistent because my symptoms were not getting better.  I went so far as to inquire about the vodka used for a vodka sauce I had twice during my reaction period.  Then today for lunch I went to a place I frequent with an excellent gluten free menu.  They even bring out special "gluten free" chips to serve while the rest of the table has bread.  Only this time the waitress was informed enough to let me know that they do not use a dedicated fryer for the chips and so if I'm highly sensative I may want to beware.  I think this may have been the cause?  I've eaten there several times and eaten the chips without thinking to ask about the fryer.  Needless to say, I did not partake in the chips this time around. 

 

I think sometimes it just feels good to come up with a potential source of the problem.

 

 

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Another problem might be how many times do you eat out?  If you eat out on a regular basis, then you could be cc'ing yourself repeatedly from many sources, especially if the restaurants are not higher end.  Trained chefs are educated in cc issues and line cooks at most restaurants usually have no chef training.  But as a Celiac, eating out any more than once a month puts you at high risk for getting sick or taking many small hits.  It sounds like you may be fairly new to this as you did not inquire about the fryer.  It usually takes quite a while to learn how to eat out successfully but you still have to keep it to a minimum, as far as how many times you do go out.  It's rare to find a dedciated fryer so always assume, unless it is advertised loudly, that it is not.

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If the restaurant you've been going to has a gluten-free menu, you should really talk to the manager/owner and suggest they label the chips and other deep-fried items that they are not cooked in a dedicated fryer. If you see an item listed on a gluten-free menu, you assume it's actually gluten-free! You don't want other people making the same mistake.

 

I'm lucky to have a place in my neighbourhood that does gluten-free fish and chips in a dedicated fryer, and all the fries are done separately from the regular fish. It's pretty sweet. (I limit myself to a few visits a year, because even if it's safe, it is deep fried...)

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I was going to a restaurant that I thought the chips were on the Gluten free menu and sadly I was wrong also!! Why Corn chips are not just Corn chips id beyond me. But when I suspected it was the chips , I asked for a gluten free menu and they gave me one to take home. The corn chips were NOT on the menu .. So yea I had a awakening also. Glad it isn't just me! :) 

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Yeah, I usually ask if the tortilla (corn) chips are just corn, cause sometimes they're not. Also, if the restaurant makes their own, they might be fried in the same oil as gluten.

 

I've had an "it's not on the gluten-free menu but we're pretty sure it's gluten-free" situation before. One of the only times I've had to send something back to the kitchen. They had a nice gluten-free menu, but lots of dairy. For some reason i read their special as being "quinoa", and even checked with the kitchen who said it was gluten-free. When it came, it was couscous. Umm... couscous is NOT gluten-free. It was both our faults since I read me menu wrong like a idiot, but they should have known it wasn't gluten-free (they gave me some like about it being some special gluten-free couscous, but I wasn't buying that). I was there with a big group, so it was incredibly awkward. They were apologetic and brought me something else but man, not fun.

 

So yeah. Always check. Always. (I repeat this to remind myself to follow my own advice).

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I love those store bought rotisserie chickens. They have :) Love them!! Have not had one since going Gluten free. Well I was going to a friends and bought one for lunch and lo and behold I looked and sure enuf Malt Flour ... What the heck? Not sure if Malt Flour is gluten free or not but I didn't eat it ... I had corn chips and black refried beans instead pfftttt 

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I love those store bought rotisserie chickens. They have :) Love them!! Have not had one since going Gluten free. Well I was going to a friends and bought one for lunch and lo and behold I looked and sure enuf Malt Flour ... What the heck? Not sure if Malt Flour is gluten free or not but I didn't eat it ... I had corn chips and black refried beans instead pfftttt 

 

 

I think malt flour would be barley malt and I would stay away from it.

 

Not sure why they put malt flour on a chicken - wouldn't be my first thought if I was making a rotisserie chicken - Lets' see.....how should I season these lovely chickens?  garlic?  rosemary? parsley?  salt and pepper?  Hey, lets use up this malt flour!

chef-smiley-emoticon.gif

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I love those store bought rotisserie chickens. They have :) Love them!! Have not had one since going Gluten free. Well I was going to a friends and bought one for lunch and lo and behold I looked and sure enuf Malt Flour ... What the heck? Not sure if Malt Flour is gluten free or not but I didn't eat it ... I had corn chips and black refried beans instead pfftttt 

I just looked it up and on  "Living Strong" said They will use it to brown, and make it shinier. Well to me they made it not edible... My friend said just take the skin off and eat it. Lol I said no thank you :) I will feed it to my dog 1st lol.

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I just looked it up and on  "Living Strong" said They will use it to brown, and make it shinier. Well to me they made it not edible... My friend said just take the skin off and eat it. Lol I said no thank you :) I will feed it to my dog 1st lol.

 

 

I know there are a lot that are gluten-free.  People say the Costco ones are.  I don't remember if the Walmart/Sam's Clubs are.

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I will have to look into that. Wonder if Krogers are? I bought that one at Food town. Well I have a rotisserie! From now on maby I should just do my own :) lol 

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    • Squirmingitch, I forgot to mention best of luck to you during the storm! I hope you are safe and that your home isn't impacted too badly! I'm on the coast in SC so we will see some storms from it but nothing near as bad as what you will have. Take care and good luck.
    • SquirmingItch, I really appreciate you gathering info for me! To answer your questions, yes, I'm on Dapsone now and have been on it for about 4.5 weeks. I have been gluten free for the same amount of time. I started on 50 mg of Dapsone which didn't seem to help much. I spoke to my doctor about it and after about a week she raised it to 100 mg. Since then I did notice a huge improvement in both my rash and itch. I no longer have any active rashes and my itching isn't completely gone but it's very minimal. I have been getting weekly blood tests done and will soon be moving to monthly.  My DH skin biopsy was done before the gluten free diet and Dapsone. My results for the skin biopsy came back as inconclusive, but even with those results, my doctor was convinced I had DH. I specifically asked her about the fact that she took the biopsy directly from the lesion rather than next to it and if that affects the result. Her explanation was that if it's a fresh enough lesion that isn't scratched, there should be IgA antibodies present. But she said that an inconclusive result isn't surprising because the IgA antibodies come and go from the skin so quickly that it can be very difficult to get a positive result, even in someone who is positive.  That's when she decided to run the celiac blood panel on me. And even though those results came back positive for the deamidated gliadin and negative for tTg, she still is very convinced that I have DH. I am happy that my doctor seems to be certain, but I would just feel better if the results were more definitive. The one other thing I am waiting on is I have been asked to attend grand rounds at the local academic hospital in 2 weeks. I guess grand rounds is where all of the academic dermatologists and dermatopathologists get together to review certain complicated cases. They will meet with me, review all of my pictures, biopsies and blood tests. My situation has been so complicated so they asked me to come. I am hoping maybe then I will get some more answers. 
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    • shellyb, I have info. for you & you may yet be able to get an official dx from your dermatologist as she sounds like she would be willing to learn. If you are dx'd with dh it is definitive & no other testing is needed. You don't need to see a GI. Im in FL & have had a long day watching Tropical Storm Hermine & making preparations for it's track which is over where I live. I'm tired! I will have links for you to reputable medical info. on the rash but it make take me till tomorrow or even longer if we lose power.  I'll be back as soon as I can. Question: You're on Dapsone now? How long have you been on it? How is it working for you? Are you getting the proper testing at regular intervals to make sure it isn't doing bad things to you? Were you gluten free before the skin biopsy?
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