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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Struck By A Realization About My Pre-Diagnosis Days
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6 posts in this topic

I just had to tell someone.  I recalled today that before I got a horrid case of mono when I was 19, I worked at a bakery.  Perhaps my heavy gluten contact ( both eating and having cleaning sprees) are why my resistance was down.  I remember how I felt so fatigued when I worked in a bakery.  It grew worse after the mono.

 

D

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I just had to tell someone.  I recalled today that before I got a horrid case of mono when I was 19, I worked at a bakery.  Perhaps my heavy gluten contact ( both eating and having cleaning sprees) are why my resistance was down.  I remember how I felt so fatigued when I worked in a bakery.  It grew worse after the mono.

 

D

...or perhaps the mono was the full on trigger for it.

 

I had symptoms for years that would come and go (a couple of times a month i think). Then i got hit with a nasty case of the flu and it developed into something much much worse.

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I agree with shadowicewolf, it may have been the mono that triggered it. I got sick with a nasty bug in April and I think that's what triggered my celiacs (I am suspecting that of course, no real way to know)

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...or perhaps the mono was the full on trigger for it.

 

I had symptoms for years that would come and go (a couple of times a month i think). Then i got hit with a nasty case of the flu and it developed into something much much worse.

Yeah, I had actually been thinking that the mono triggered my celiac. Then I remembered symptoms that came before mono.  My sister thought I looked pregnant at 11 years old.  The enamel came off my teeth when I had braces at 17.  Maybe it was that awful case of chicken pox in 4th grade?  Then again Maybe the chicken pox were "The second worse case" the doctor had ever seen, because of celiac.  After mono, I say, the symptoms did become undeniable, and yet so mysterious that I couldn't describe them.

 

Whatever triggered whatever, boy am I glad to feel better. :)

 

D

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I am glad you feel better too, D! We all can probably speculate what triggered us and be spent here bent over pondering for hours. I don't think I have spent so much time in one place reading, thinking since college!

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I worked at a pizza/italian restaurant when I started getting real Celiac symptoms (constant bloating despite loosing a ton of weight, feeling like crud after eating anything, etc). I always say (partly joking) that working there triggered my Celiac, but who knows. I definitely ate more pizza/pasta than usual that year. Should have put on at least 10lb, not lost it. Whether it was the trigger or not, it definitely made things worse.

 

In any case, yeah, it's interesting to look back and realise that oh, that low iron I had at 16 was probably a symptom. All those crazy panic attacks were probably symptoms. If only we'd known then.

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    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
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