Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Struck By A Realization About My Pre-Diagnosis Days
0

6 posts in this topic

I just had to tell someone.  I recalled today that before I got a horrid case of mono when I was 19, I worked at a bakery.  Perhaps my heavy gluten contact ( both eating and having cleaning sprees) are why my resistance was down.  I remember how I felt so fatigued when I worked in a bakery.  It grew worse after the mono.

 

D

0

Share this post


Link to post
Share on other sites


Ads by Google:

I just had to tell someone.  I recalled today that before I got a horrid case of mono when I was 19, I worked at a bakery.  Perhaps my heavy gluten contact ( both eating and having cleaning sprees) are why my resistance was down.  I remember how I felt so fatigued when I worked in a bakery.  It grew worse after the mono.

 

D

...or perhaps the mono was the full on trigger for it.

 

I had symptoms for years that would come and go (a couple of times a month i think). Then i got hit with a nasty case of the flu and it developed into something much much worse.

0

Share this post


Link to post
Share on other sites

I agree with shadowicewolf, it may have been the mono that triggered it. I got sick with a nasty bug in April and I think that's what triggered my celiacs (I am suspecting that of course, no real way to know)

0

Share this post


Link to post
Share on other sites

...or perhaps the mono was the full on trigger for it.

 

I had symptoms for years that would come and go (a couple of times a month i think). Then i got hit with a nasty case of the flu and it developed into something much much worse.

Yeah, I had actually been thinking that the mono triggered my celiac. Then I remembered symptoms that came before mono.  My sister thought I looked pregnant at 11 years old.  The enamel came off my teeth when I had braces at 17.  Maybe it was that awful case of chicken pox in 4th grade?  Then again Maybe the chicken pox were "The second worse case" the doctor had ever seen, because of celiac.  After mono, I say, the symptoms did become undeniable, and yet so mysterious that I couldn't describe them.

 

Whatever triggered whatever, boy am I glad to feel better. :)

 

D

0

Share this post


Link to post
Share on other sites

I am glad you feel better too, D! We all can probably speculate what triggered us and be spent here bent over pondering for hours. I don't think I have spent so much time in one place reading, thinking since college!

1

Share this post


Link to post
Share on other sites




I worked at a pizza/italian restaurant when I started getting real Celiac symptoms (constant bloating despite loosing a ton of weight, feeling like crud after eating anything, etc). I always say (partly joking) that working there triggered my Celiac, but who knows. I definitely ate more pizza/pasta than usual that year. Should have put on at least 10lb, not lost it. Whether it was the trigger or not, it definitely made things worse.

 

In any case, yeah, it's interesting to look back and realise that oh, that low iron I had at 16 was probably a symptom. All those crazy panic attacks were probably symptoms. If only we'd known then.

1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,334
    • Total Posts
      920,436
  • Topics

  • Posts

    • Anxiety is quite a common symptom with undiagnosed celiacs. It should improve if not disappear when you go gluten free. Be sure to CONTINUE eating gluten until the endoscopy!   Welcome to the club!
    • Although serological tests are useful for identifying celiac disease, it is well known that a small minority of celiacs are seronegative, and show no blood markers for celiac disease. A team of researchers wanted to define the prevalence and features of seronegative compared to seropositive celiac disease, and to establish whether celiac disease is a common cause of seronegative villous atrophy. View the full article
    • This was absolutely me before diagnosis.  The worst of all of my Celiac symptoms occurred in the morning.  The anxiety was terrible in the mornings, I had horrible nausea, no appetite, felt light headed, dizzy and shaky, diarrhea, stomach cramps... the works.  Honestly, I don't know if it was the symptoms causing the anxiety, the anxiety making my symptoms worse, or a combination.  I almost dropped out of school because I felt so terrible every morning I didn't want to leave the house to go to class.  The first few doctors I saw insisted all of my symptoms were psychological and tried to give me anti-depressants/anti-anxiety meds, but I knew there was something else wrong with me.  I had always been a bit "high-strung," but for the year I was really sick before diagnosis, the anxiety got out of control. I was diagnosed with celiac disease 6 months ago and have been gluten free ever since.  It took time, but everything is gradually improving.  The morning anxiety is much improved and some mornings, is completely gone.  I realized a month or two ago that I no longer spend the first hour after waking up gagging and dry-heaving, something I had done for so many years that I just thought it was normal for me.  I can brush my teeth and my tongue without feeling like I'm going to puke.  I eat breakfast now, which I have never done, because I was always too anxious and nauseous in the mornings to be hungry.  I am not "all better."  I still have bad days and even bad weeks.  If I get glutened the anxiety comes back full force.  If I'm super-stressed out or letting my health slide (not eating well, not sleeping enough) the AM anxiety seems to return.  But, it has been slowly improving over the last 6 months and has become so much more manageable.   Your anxiety could be a separate disorder from the celiac disease, but for me, it seems it was absolutely related and continues to get better.  Don't get discouraged if you don't see an immediate improvement or experience relapses after improving.  Often, I feel like it's a two-step-forward, one-step-back kind of thing, but it is getting better.
    • I have suffered with GERD for 20 years and accidently found out it was a gluten intolerance. I had gone on Atkins years ago and noticed that I had no GERD symptoms while on the diet. I didn't make the connection at that time. Then I went on the Mayo Diet back in the winter and once again, the constant was having no bread primarily. I had also noticed that I would have major attacks anytime I ate Italian food. I blamed it on the onions, the tomatoes, herbs...but I could tolerate all those foods separately. Then, like a lightning bolt...it hit me...the culprit was the "innocent" pasta. BINGO!!  I went gluten-free in March 2016 and I have had no GERD now in 5 months. I feel as if it is a gift to me.   
    • Hey everyone!! Dealt with morning anxiety, complete lack of appetite in the AM/diarrhea if I tried to eat, fatigue, etc. for about two months. Saw doctor and they first prescribed me antidepressants while they ran bloodwork. Got bloodwork yesterday, positive result for celiac, going to get the endoscopy/biopsy soon. Anyone else have morning anxiety like CRAZY before cutting out gluten? Afraid to leave the house because of feeling faint, dizzy, etc., like I'm going to pass out. I haven't actually passed out, but the feelings are all there. It's hard to overcome the anxiety some time!   Hoping someone else has had similar symptoms and that I can look forward to this being over soon!! Thanks everyone xoxo
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,389
    • Most Online
      1,763

    Newest Member
    EJ653
    Joined