Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Chronic Kidney Disease?
0

1 post in this topic

I'm concerned about my recent kidney function test results, and I'm wondering if anyone has experienced something similar. Here's the situation:

  • My celiac tests were negative (more info about health history in my signature below), but I had many, many symptoms and have celiac in a first-degree relative, and my biopsy only took four samples (none from duodenal bulb) and did not include lymphocyte counts. So I'm not sure how much to trust the results.
  • A metabolic panel was run at the start of my gluten challenge, in May. My GFR was >90 at that point, and my creatinine was .8 (range .6-1.2). Two years ago my creatinine was .7.
  • My tongue and lymph nodes swelled up during the gluten challenge, neurological symptoms worsened, hair started falling out, I had soaking night sweats every night, etc. My GI symptoms improved hugely within a week of going gluten-free, the night sweats went away, and the neurological symptoms and rashes are slowly but definitely improving too. However, the angioedema has not improved.
  • Food allergy tests were negative. TSH has been tested repeatedly and is always fine. I'm having a CT scan of the mouth/throat today. 
  • A second metabolic panel that was just run shows a creatinine increase to .9 (still squarely within normal range) and a decrease in GFR. It doesn't show the exact number, just that it's >60, with the notation "Chronic Kidney Disease stage 1-2". My doctor said it's nothing to worry about, but my research indicates that quickly-rising creatinine and decreasing GFR are not normal. I know that GFR naturally decreases with age, but I'm only 37 years old and this seems like a significant change in just three months. 

Could worsening kidney function be caused by the gluten challenge?

Has anyone had their GFR improve after going gluten-free?

Is my doctor right that having a GFR classified as the early stages of chronic kidney disease is no reason for concern? 

 

Edited to add: I wasn't sure which forum to post this in. I don't know if there's any connection between celiac and kidney disease, but I'm wondering if anyone knows of any research indicating a connection between gluten and kidney function, or has experience suggesting that these issues may be related. 

0

Share this post


Link to post
Share on other sites


Ads by Google:

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,897
    • Total Posts
      919,545
  • Topics

  • Posts

    • Task Force to Make Celiac Screening Recommendations
      The U.S. Preventive Services Task Force will make screening recommendations regarding celiac disease screening after taking public comments. View the full article
    • Gluten does WHAT to the brain?
      I hear you Gemini. It's nucking futz!
    • Test Results
      I went gluten free & never looked back! I have dh, the celiac rash. That makes it pretty darn easy to go gluten-free the moment you figure it out. I was not about to continue eating gluten for even one more day just so the medical establishment would be satisfied in my dx. There was not a moment of doubt in my mind that I had dh & therefore celiac. As it turns out, weirder than weirder than weird and the odds I can't even begin to imagine.... I have since, by sheer accident, had 2 docs officially dx me. Is that crazy or what??!! I did not go in asking for a dx nor even hoping for one. Frankly, I just plain didn't care what they thought. The medical community has failed me numerous times throughout my life so I don't have the highest regard for them. You are 54, I was 54 when I figured mine out. I have no kids so did not need to consider them in my decision not to go for an official dx. My parents had already passed away so that was not an issue. My brother had passed away so that was not an issue either. I did contact my nephew & tell him to let my sister know so she could get tested. So I have done my duty by her & she's an adult and a nurse & can make her own decisions. I do urge people to go for an official dx whenever possible, especially when they have kids or other 1st degree family members. If it's doable for them I think they should make a good effort at it. Also, there are certain people who express they don't think they can stick to the diet without the official dx. I think those people should pursue a dx with all their might. I have never had the slightest problem sticking religiously to gluten free eating. I have never doubted myself. I know you have tired HARD! Super, super HARD. I commend you for your dogged pursuit. I would not, could not blame you for giving it all up & just going gluten free this instant. That is a choice only you can make but I fully support whatever decision you make.
    • Gluten does WHAT to the brain?
      Your brother sounds like mine, Squirmy.  He was a Type 1 diabetic and had flaming celiac symptoms to boot but his docs always, always blamed his diabetes on everything.  He lived in the country and the docs in his state just were so far from being Celiac savvy.  I doubt they ever diagnosed one. His health was failing so badly that in the end, with the 3 MONTHS of non-stop diarrhea going on, he became so dehydrated that he had a heart attack and died last August 4th. His biggest mistake was trusting these idiots completely.  I think his brain was so messed up and confused that he just couldn't understand what I was trying to tell him.......that good ole brain fog.  He did what celiac's may do when left untreated for years and years.....they slowly fail and then die.  It still is extremely painful for me to think about because I was close to him.  I still see many people in my life that I think have it because of their extreme symptoms. Listening to them complain that the doctors aren't helping them. Try suing them for malpractice too......it would be too hard to prove. And then we have those who know there is something very wrong but won't give up wheat bread because that is unfathomable to them.  This disease can drive anyone crazy, for many different reasons. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,946
    • Most Online
      1,763

    Newest Member
    Chris O
    Joined