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Exhaustion Worse After gluten-free
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I am newly diagnosed - last week in fact. And I am more exhausted this week, especially the past 2 days than any other time prior. I don't know if that means resources are going to healing but I'm just physically exhausted. Maybe my emotional distress is manifesting physically too. I don't know. Anyone else experience this?

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yes, ma'am, i sure did - you sound like you are going through withdrawal.  the good news is:  you must be doing a good job of keeping yourself gluten-free, so your body is 'missing' it.  for me, it felt like the flu.  it knocked me on my butt (right into the bed lolz) for a couple of weeks but then it went away.  i started feeling a little better each day.  take it easy on yourself (and i think healing makes you tired, too, and i still get a little tired when i eat dairy - it's like it takes all my body's energy to digest it sometimes - it's a little better all the time, though!)  get a bunch of rest, drink alot of water, i took very hot showers and they seemed to help.  mostly rest, though, and try not to be so cranky - it's the gluten making it's last stand lolz  - hang in there!  

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Wow - withdrawel symptoms. That I never expected. Is there anything else that I should expect? Thanksf or validating me!

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yeah, it was kind of a shocker to me too!  i would expect you will go through grieving, too - that was a surprise, too.  it *is* a big life change (the bell you can't un-ring, so to speak.... :(  ) so, it's normal to mourn your 'old' lifestyle/to miss your comfort foods/to get used to the *never* word....  but, as you go along, and merge your 'old' life with your 'new' one, it's pretty good.  i thought i had one foot in the grave when i was dx'd, now i feel younger than i have felt in a very long while.  and it keeps getting better (i had lots of damage, i would guess i'm STILL healing) i continue to see improvements.  even things one would never associate with the dreaded gluten   <_<   take it one day at a time -on this forum, you're among (probably) the biggest group of people in one place who understand that it's not 'just a diet'   :ph34r: rest up, you'll feel better soon :)  

 

ps - i can now do 2 (TWO) things in one day - i never believed i would ever have the energy to go to, say, a ball game and a picnic in the same day.  i used to couldn't  :)

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oh, yeah, and if you drink alcohol, be aware that your tolerance may change.  i am more of a 'cheap date' now, lolz, and if i drink chardonnay, i better have bail $$$   :lol:

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OMG Yea I am 3 months in and I had some gluten free Mac and cheese yesterday .... It hit me like a rock!! Right away !! , , then this morning Ohhh geeze!! Not good! , and boom a feather could of hit me and I'd of been knocked down .. It took me a while to figure it out but dang gone it!! I will try to remember not to eat gluten free mac and cheese for what ever time they say.. Thats all I did and boom hit me like a rick! Arrrrggg!! Still paying for it ! pffttt!! 

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Just a thought. People who are healing something tend to need more sleep and maybe a little extra food. Combined with the fact that you may not be eating the same nutrients, fiber, etc.....you have a reason to be tired.

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OMG Yea I am 3 months in and I had some gluten free Mac and cheese yesterday .... It hit me like a rock!! Right away !! , , then this morning Ohhh geeze!! Not good! , and boom a feather could of hit me and I'd of been knocked down .. It took me a while to figure it out but dang gone it!! I will try to remember not to eat gluten free mac and cheese for what ever time they say.. Thats all I did and boom hit me like a rick! Arrrrggg!! Still paying for it ! pffttt!!

What does the gluten-free Mac n cheese do to you? Is it the cheese or the fact that its processed? Month 1 for me was just whole foods but then I started introducing gluten-free packaged foods and bam! Almost right back where I was except the pain. My husband noticed I am more "sluggish" after eating gluten-free foods and I get bloated too

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What does the gluten-free Mac n cheese do to you? Is it the cheese or the fact that its processed? Month 1 for me was just whole foods but then I started introducing gluten-free packaged foods and bam! Almost right back where I was except the pain. My husband noticed I am more "sluggish" after eating gluten-free foods and I get bloated too

I think it is because of the lactose , I can only guess , Other than that I have noooo Idea!! I have been so very careful and checking everything. I have had some Gluten free noodles, but this is the 1st time I have had a Gluten free Mac and cheese product It was by "Annes" I believe. had a lil bunny on it. But I have been Lactose Free and Gluten Free for 3 months and it didn't dawn on me till today what it "MIGHT" of been ... because alot of Celiacs need to be Lactose free . for a while anyway? Not sure how long/

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Yeah I haven't been as careful with the lactose as I should be. It's so hard to give up so much

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Give yourself some downtime whenever you can.  Your body really is working hard.

 

D

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I probably need to be taking in more calories than I am currently right now. I take in roughly 1400-1600 calories and I strength train 5x/week for an hour to hour and a half. I cut the cardio completely as I am too exhausted to do it.  I'm probably doing too much. But I enjoy the training aspect too much to completely cut it for now. I don't lift heavy anymore, just light to moderate weight and high reps. 

 

I agree with everyone about the lactose intolerance - it's probably the worst part of this whole adaptation for me. I love cottage cheese and greek yogurt. I cut it out but I miss it terribly.

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oh, yeah, and if you drink alcohol, be aware that your tolerance may change.  i am more of a 'cheap date' now, lolz, and if i drink chardonnay, i better have bail $$$   :lol:

I definitely don't have a tolerance for alcohol at all just because I've abstained for almost a year as it is. Adding this to it I think I'd have a sip and be just silly. haha

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Wow!! You work out alot!! I don't know how you have the energy!! I try and go for a walk every day. Sometimes it is exhausting!! I cannot  even think about working out!! I am glad someone has some energy!! But really I don't know how you do it!! 

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Yeah... I love it. I would love to compete in body building so I have that added enthusiasm that most people don't have. But I have felt the energy just ooze out of me and this week especially has been hard. My workouts last an hour max and I am just spent.

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You need more calories.  If you are strength training and only consuming 1400-1600 calories, that is most likely not adequate.  If you are Celiac, you are not absorbing everything you need from a nutrient perspective already, then you burn the rest up on exercise...  Additionally, have you drastically reduced your carb intake?  Hopefully not if you are active.  You'll need those carbs.  I inadvertently cut my carbs drastically.  When I went gluten free, I mistakenly was eating an Atkins-esque diet without meaning to.  I didn't know the right way to cut out gluten and ended up not getting carbs.  I eventually started experiencing Ketosis.  Bad stuff.  I dropped to 137 lbs and I'm 5'11.

 

I started eating 2800-3000 calories per day and stopped working out altogether to get my weight up.  7-8 months later, I'm checking in at 172 and have finally started biking and went for a run last night.  Anyhow, when my caloric intake was down along with my weight, I was tired, anxious, and depressed.

 

You may not be in the same boat as I was but you are working out much harder than I was and you aren't getting enough calories in my opinion but then again, I don't know what your fitness/health goals are...

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Thanks for your reply Eers. I eat about 120-160 grams of carbs per day so I know I'm not going to the ketotic route. I figured I was probably too low on the calorie scale as everything is just going right through me with the D and all. I posed this question to my doctor via online message and she has not gotten back to me yet. I don't want to drastically increase my calories at once (plus I'm not that hungry - hitting my goal for the day is difficult right now). I'll likely increase it by 100 calories or so a week and get to a happy place. I don't think I'd ever give up working out. It's therapy for me.

 

My goal is to compete in bodybuilding at some point so I'd like not to gain a lot right now as I'm trying to do a cut but I realize that may not be feasible right now in my life. Sigh.

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    • Hi everyone, I've been reading this forum sporadically and have some questions of my own. I'm in my 40s and was diagnosed with celiac last December by biopsy and blood work after months of tests by my primary and then a gastro. My husband, around the same age as me, was dx'd with stage 4 cancer a month later, so admittedly it's took me longer than I'd have liked to learn about celiac. Now I feel pretty on top of my diet. I mostly make my own food - proteins and veggies, with some certified gluten-free snacks in the mix - and am pretty strict about what I will/won't eat at friend's houses or in restaurants (I prefer to go to dedicated gluten-free kitchens whenever possible). I'm doing okay on the diet, but still getting glutened every so often, usually when I let me guard down outside the home. I also periodically see my primary and a naturopath (who happens to have celiac!), but still, I have many questions if anyone would care to answer:

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      -SYMPTOMS CAUSED BY FATIGUE? Sometimes I'll have other "feels like I've been glutened" symptoms if I haven't gotten enough sleep, though I'm trying so hard to sleep at least 8 hours a night these days. Hasn't happened in a while thankfully, but there was a point this summer where my insomnia was bad and my arms were achy and I had some crazy flank/back pain I'd never experienced before. For weeks. Doctor ordered me to sleep sleep sleep, taking Benedryl if needed. I did, and the symptoms went away, but weird, yes? Has this happened to you? I ask because I want to make sure I'm getting all strange pains tested to the full extent if there's a chance it's something other than celiac. I do sometimes still feel that strange side stitch after a CC incident.

      -SKIN PROBLEMS. I have had a smidge of eczema since I was a teen and it - and the dermatitis herpetiformis I've acquired with my dx - are out of control right now. I recognize the connection with stress, but also, has anyone found any great natural remedies for DH to stop the itching? I've tried so many useless ointments and medicated creams, a number of them given to my by a dermo months ago. I see my naturopath this week, but thought I'd ask here too.

      -MOSTLY gluten-free KITCHEN GOOD ENOUGH? My husband is supportive of my diet and mostly eats gluten free meals with me, but we still keep a gluten-y toaster for him and the gluten-y dog food in a corner of the kitchen and he still makes the occasional meal with gluten for himself on his own cookware (ravioli, pizza, mac n cheese, etc). Or sometimes I make eggs/toast and the like for him when he's too sick to move. Otherwise, we're militant about how we cook, which cookware we use, etc. He even has a kitchen nook off our den where he makes sandwiches. But sometimes I wonder if having two separate sponges in our shared-ish main kitchen is enough and I should just banish all gluten whatsoever from the kitchen. I can't be the only one with a mixed kitchen, right? How do you do it if you have a mixed-eating family?

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