Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Exhaustion Worse After gluten-free
0

17 posts in this topic

I am newly diagnosed - last week in fact. And I am more exhausted this week, especially the past 2 days than any other time prior. I don't know if that means resources are going to healing but I'm just physically exhausted. Maybe my emotional distress is manifesting physically too. I don't know. Anyone else experience this?

0

Share this post


Link to post
Share on other sites


Ads by Google:

yes, ma'am, i sure did - you sound like you are going through withdrawal.  the good news is:  you must be doing a good job of keeping yourself gluten-free, so your body is 'missing' it.  for me, it felt like the flu.  it knocked me on my butt (right into the bed lolz) for a couple of weeks but then it went away.  i started feeling a little better each day.  take it easy on yourself (and i think healing makes you tired, too, and i still get a little tired when i eat dairy - it's like it takes all my body's energy to digest it sometimes - it's a little better all the time, though!)  get a bunch of rest, drink alot of water, i took very hot showers and they seemed to help.  mostly rest, though, and try not to be so cranky - it's the gluten making it's last stand lolz  - hang in there!  

0

Share this post


Link to post
Share on other sites

Wow - withdrawel symptoms. That I never expected. Is there anything else that I should expect? Thanksf or validating me!

0

Share this post


Link to post
Share on other sites

yeah, it was kind of a shocker to me too!  i would expect you will go through grieving, too - that was a surprise, too.  it *is* a big life change (the bell you can't un-ring, so to speak.... :(  ) so, it's normal to mourn your 'old' lifestyle/to miss your comfort foods/to get used to the *never* word....  but, as you go along, and merge your 'old' life with your 'new' one, it's pretty good.  i thought i had one foot in the grave when i was dx'd, now i feel younger than i have felt in a very long while.  and it keeps getting better (i had lots of damage, i would guess i'm STILL healing) i continue to see improvements.  even things one would never associate with the dreaded gluten   <_<   take it one day at a time -on this forum, you're among (probably) the biggest group of people in one place who understand that it's not 'just a diet'   :ph34r: rest up, you'll feel better soon :)  

 

ps - i can now do 2 (TWO) things in one day - i never believed i would ever have the energy to go to, say, a ball game and a picnic in the same day.  i used to couldn't  :)

0

Share this post


Link to post
Share on other sites

oh, yeah, and if you drink alcohol, be aware that your tolerance may change.  i am more of a 'cheap date' now, lolz, and if i drink chardonnay, i better have bail $$$   :lol:

0

Share this post


Link to post
Share on other sites




OMG Yea I am 3 months in and I had some gluten free Mac and cheese yesterday .... It hit me like a rock!! Right away !! , , then this morning Ohhh geeze!! Not good! , and boom a feather could of hit me and I'd of been knocked down .. It took me a while to figure it out but dang gone it!! I will try to remember not to eat gluten free mac and cheese for what ever time they say.. Thats all I did and boom hit me like a rick! Arrrrggg!! Still paying for it ! pffttt!! 

0

Share this post


Link to post
Share on other sites

Just a thought. People who are healing something tend to need more sleep and maybe a little extra food. Combined with the fact that you may not be eating the same nutrients, fiber, etc.....you have a reason to be tired.

0

Share this post


Link to post
Share on other sites

OMG Yea I am 3 months in and I had some gluten free Mac and cheese yesterday .... It hit me like a rock!! Right away !! , , then this morning Ohhh geeze!! Not good! , and boom a feather could of hit me and I'd of been knocked down .. It took me a while to figure it out but dang gone it!! I will try to remember not to eat gluten free mac and cheese for what ever time they say.. Thats all I did and boom hit me like a rick! Arrrrggg!! Still paying for it ! pffttt!!

What does the gluten-free Mac n cheese do to you? Is it the cheese or the fact that its processed? Month 1 for me was just whole foods but then I started introducing gluten-free packaged foods and bam! Almost right back where I was except the pain. My husband noticed I am more "sluggish" after eating gluten-free foods and I get bloated too

0

Share this post


Link to post
Share on other sites

What does the gluten-free Mac n cheese do to you? Is it the cheese or the fact that its processed? Month 1 for me was just whole foods but then I started introducing gluten-free packaged foods and bam! Almost right back where I was except the pain. My husband noticed I am more "sluggish" after eating gluten-free foods and I get bloated too

I think it is because of the lactose , I can only guess , Other than that I have noooo Idea!! I have been so very careful and checking everything. I have had some Gluten free noodles, but this is the 1st time I have had a Gluten free Mac and cheese product It was by "Annes" I believe. had a lil bunny on it. But I have been Lactose Free and Gluten Free for 3 months and it didn't dawn on me till today what it "MIGHT" of been ... because alot of Celiacs need to be Lactose free . for a while anyway? Not sure how long/

0

Share this post


Link to post
Share on other sites

Yeah I haven't been as careful with the lactose as I should be. It's so hard to give up so much

0

Share this post


Link to post
Share on other sites

Give yourself some downtime whenever you can.  Your body really is working hard.

 

D

0

Share this post


Link to post
Share on other sites

I probably need to be taking in more calories than I am currently right now. I take in roughly 1400-1600 calories and I strength train 5x/week for an hour to hour and a half. I cut the cardio completely as I am too exhausted to do it.  I'm probably doing too much. But I enjoy the training aspect too much to completely cut it for now. I don't lift heavy anymore, just light to moderate weight and high reps. 

 

I agree with everyone about the lactose intolerance - it's probably the worst part of this whole adaptation for me. I love cottage cheese and greek yogurt. I cut it out but I miss it terribly.

0

Share this post


Link to post
Share on other sites

oh, yeah, and if you drink alcohol, be aware that your tolerance may change.  i am more of a 'cheap date' now, lolz, and if i drink chardonnay, i better have bail $$$   :lol:

I definitely don't have a tolerance for alcohol at all just because I've abstained for almost a year as it is. Adding this to it I think I'd have a sip and be just silly. haha

0

Share this post


Link to post
Share on other sites

Wow!! You work out alot!! I don't know how you have the energy!! I try and go for a walk every day. Sometimes it is exhausting!! I cannot  even think about working out!! I am glad someone has some energy!! But really I don't know how you do it!! 

0

Share this post


Link to post
Share on other sites

Yeah... I love it. I would love to compete in body building so I have that added enthusiasm that most people don't have. But I have felt the energy just ooze out of me and this week especially has been hard. My workouts last an hour max and I am just spent.

0

Share this post


Link to post
Share on other sites

You need more calories.  If you are strength training and only consuming 1400-1600 calories, that is most likely not adequate.  If you are Celiac, you are not absorbing everything you need from a nutrient perspective already, then you burn the rest up on exercise...  Additionally, have you drastically reduced your carb intake?  Hopefully not if you are active.  You'll need those carbs.  I inadvertently cut my carbs drastically.  When I went gluten free, I mistakenly was eating an Atkins-esque diet without meaning to.  I didn't know the right way to cut out gluten and ended up not getting carbs.  I eventually started experiencing Ketosis.  Bad stuff.  I dropped to 137 lbs and I'm 5'11.

 

I started eating 2800-3000 calories per day and stopped working out altogether to get my weight up.  7-8 months later, I'm checking in at 172 and have finally started biking and went for a run last night.  Anyhow, when my caloric intake was down along with my weight, I was tired, anxious, and depressed.

 

You may not be in the same boat as I was but you are working out much harder than I was and you aren't getting enough calories in my opinion but then again, I don't know what your fitness/health goals are...

0

Share this post


Link to post
Share on other sites

Thanks for your reply Eers. I eat about 120-160 grams of carbs per day so I know I'm not going to the ketotic route. I figured I was probably too low on the calorie scale as everything is just going right through me with the D and all. I posed this question to my doctor via online message and she has not gotten back to me yet. I don't want to drastically increase my calories at once (plus I'm not that hungry - hitting my goal for the day is difficult right now). I'll likely increase it by 100 calories or so a week and get to a happy place. I don't think I'd ever give up working out. It's therapy for me.

 

My goal is to compete in bodybuilding at some point so I'd like not to gain a lot right now as I'm trying to do a cut but I realize that may not be feasible right now in my life. Sigh.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,343
    • Total Posts
      920,485
  • Topics

  • Posts

    • Here's what the Klondike Bar makers say on the FAQ page of their website (August 2016): Are your products gluten free? Nope. They are not. We have not validated for gluten free. We do not operate allergen-free manufacturing sites, however we do have allergen management programs in all our facilities. The intent of these programs is to avoid unintentional cross-contamination of allergens between products. Our product labels adhere to the FDA’s strict regulations regarding declaration of ingredients and allergens. We do not use the terms “Natural” or “Artificial Flavorings” to hide the existence of any allergens. RECIPES CAN CHANGE. We strongly recommend that allergic consumers refer to ingredient declarations EVERY TIME they purchase processed foods.
    • I tried the iodine test but couldn't leave it on very long because it itched too much. I left it on maybe 30 minutes lol. Did anyone try it and have the same response??
    • Had my scope today. Dr said my esophagus is damaged and stomach inflamed. Waiting on biopsy results. Taking protonic and flagyl and he said to go ahead and try cutting gluten out to see if that helps. Thanks for the feedback everyone! 
    • Welcome to the club you never wanted to join! The good thing about this club is that you don't have to take any pills, get radiation or chemo, or stick yourself with a needle every day. Things could be much worse than this. Does your brother live close? If so he could go to your same savvy doc. That would be great! Also what about your mom?
    • Hi There! I am Aly and I have suffered seriously for about 4 years with an huge increase in symptoms. I just recently started a gluten free diet a few months ago and I am sure I make mistakes because I feel it when I do. Your symptoms are a lot like mine and after many blood tests and visits to Neurologist still no answers. They diagnosed with relapse/remission MS for all these years and now say its not that. It's Auto-immune but no answers. They never tested me for Celiac's but A friend suggested I try going gluten free. Here are my symptoms below.  See if you relate or if anyone can relate. Heat Sensitivity, Nerves jumping in face and eyes, sometimes pain and redness around the skin of eyes, kinda pinkish.... occasional trimmers coupled with loss of coordination and balance along with in and out slurred speech, a other varying waves of relapse include Extreme fatigue and a huge fog comes over me. I can't sit up or stand without getting dizzy and feel like passing out. For a few days of the relapse It's just bed rest. The other parts are off and on having to use cane. Up and down, symptoms change but eventually the waves grow dim and I go back to being normal for a while. Things seem to get exacerbated when I do to much like go more than 4 -5 hours without taking a break and resting, lifting anything to heavy...so it seems to be straining things lead me to relapse. I used to be go go go...on the run but life has changed and I find that although I am eating gluten free and being careful not to relapse, I entered another a month ago and I am having to get IV steroid infusion tomorrow to break the cycle of this one. Just when I think I am beginning to feel better and go do something I go right back down. Its seems Gabapentin, Baclofen, and LOTS of rest only get me where I need to be again. It's frustrating. I wanted to share as well so that we can combine forces to get some answers! I have decided to go to a Allergy Clinic of sorts to try and get tested for environmental and food allergies. I am sorry you do not have funding for care. See if there is local clinic that can at least run some preliminary blood work on you. I am not sure if you can see one now in your state being 17 but there is usually a 211 or a 311 line in most cities that will give you the list of places you can go for free or on sliding scale. See if they will run any allergy panels as well. I have found that we have to be proactive in our own care because sometimes there is no simple answer and the more we talk one another with the research sometimes we do on own, we find out more than 4 years of going to a doctor could ever tell you. Thanks for all your input here. I look forward to being a member and helping where I can! I will send updates as I get them. Blessings to you all! Aly
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,414
    • Most Online
      1,763

    Newest Member
    Vic40
    Joined