Sorry for that rant and Sorry this is long.
A little disappointed in my GI doctor and who knows maybe he's right with everything he said but it just didn’t sound right and then again I’m no expert.
We discussed all my symptoms and he reviewed my blood tests results. He explained that just because I have the genes does not mean I have celiac disease, which I already knew. Then, he said you must have 3 things to get diagnosed with celiac disease: 1) symptoms, 2) positive blood tests, and 3) positive biopsy. He said since I didn't have a positive blood test, then he doesn't think celiac is my issue and started discussing fibromyalgia and crohn’s disease. Kept pushing those even when I explained that when I ate low carb, I had NO ISSUES… NONE. Now correct me if I’m wrong because I know nothing about crohns disease or fibromyalgia but would eliminating carbs correct crohn’s or fibromyalgia?
Fibromyalgia - really?? I don’t think so. My back hurts because I have bulging discs and degenerative disc disease and my knees hurts because I have too much weight on them and my patella’s sit too high (both my children have the same issue and must wear braces for sports). He wouldn’t listen to those reasons.
Crohn’s Disease – not sure. After looking it up in the internet, I have some of the symptoms but not many. Mainly abdominal pain and cramping.
He has set me up with an upper and lower GI and told me if both of those didn't find anything then it's probably just IBS. Told me I was probably lactose intolerant and how to do a self test on that. We discussed the possibility of a vitamin D deficiency and told he to have it checked the next time I had blood tests done. I asked what other vitamins I should check and he said none. Vitamin D was the one he thought I was low on.
Am I crazy? Should I be concerned or not? I feel like because my blood tests were negative, he has already made up his mind that I don’t have celiac even if the biopsy come back positive.