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Celiac Disease And Pancreatitis


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#1 jlenmd

 
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Posted 29 August 2013 - 09:40 AM

My 9 year old daughter has celiac disease and recurrent pancreatitis , first diagnosed 3 years ago.  She has been on a gluten free diet and her episodes of pancreatitis are somewhat less frequent .  Her GI specialist has been recommending ERCP with pancreatic duct sphincterotomy and stent placement.  Mt wife and I fear going down this surgical road.  We are looking for similar cases to see what are the best treatments, to find the right "template" .  I am a physician and it is very frustrating due to the lack of literature and case reports for patients with both celiac disease and pancreatitis.  If anyone has a child with these 2 problems or is a young adult with these 2 problems PLEASE contact me at Jlenmd@comcast.net. to share any info you may have to help us find the correct path to take for treatment for our daughter.  THANK YOU

 


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#2 katejam

 
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Posted 29 August 2013 - 07:36 PM

Hi, I sent you an email. Good luck!
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