Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Steroids?
0

9 posts in this topic

Has anyone taken steroids for either ongoing symptoms or for a glutening episode? If so, how long where you on them and how much?

0

Share this post


Link to post
Share on other sites


Ads by Google:

I've taken steroids not directly for celiac disease but for conditions that could be related.

 

I was on Prednisone for about 6 months for a thymbocytopenia bleeding disorder a couple of decades ago. Can't remember the doseage.

 

i currently take cortef and florinef for adrenal/energy/hormone issues and for low (postural) blood pressure. Cortef is 20MG and florinef is 0.1MG. I have no idea how long I'll be on it, but it's been a couple of months now.... And gotta say, i feel pretty good on it.  :)

0

Share this post


Link to post
Share on other sites

Thanks Nicole, I actually have 2 problems going on. I have been diagnosed celiac and gluten-free for 2 years. Over the last 3 months or so my stomach has gotten as bad as before diagnosis. D 5+times a day, almost late for work because of it, exhaustion etc. I just made an appt to see my gastro again, to ask for a follow up biopsy. I have been really careful about my diet and cc so it's not that. In addition, just last night I got my first "real" glutening(obvious glutening) It was a really stupid mistake, I picked up the wrong drink and ended up gulping a large swig of regular beer! I'm feeling awful today, stomach pains, nausea, severe exhaustion... I was on prednisolone for an allergic reaction and my dr friend told me that it had the added benefit of helping my celiac reaction because it suppresses immune response. I still have a refill left on the prescription so I was thinking about filling it and taking it for a week to help this glutening ( today is day one of my only vacation this year, I don't want to be doubled over the whole time!). Any thoughts?

0

Share this post


Link to post
Share on other sites

I don't know... i know steroid use shouldn't be done lightly, and that most need to taper off when they are done.

 

Hopefully someone else will chime in who knows more than I do.

0

Share this post


Link to post
Share on other sites

My GI doc had me start budesonide 3mg I take 3 pills each morning for 1 month, 2nd month 2 pills each morning, then 3rd month 1 pill each morning. After 3rd month I am done.   It has stopped my chronic diarrhea.   The reason I am on this is because I had chronic diarrhea since April and nothing helped.  Thank God my bowels are almost back to normal now.  

0

Share this post


Link to post
Share on other sites




Denise, thank you, good to know there may be light at the end of this tunnel! I know that I'll get over this acute glutening but it's good to hear there may be help for the constant issues too!

0

Share this post


Link to post
Share on other sites

Denise, thank you, good to know there may be light at the end of this tunnel! I know that I'll get over this acute glutening but it's good to hear there may be help for the constant issues too!

I am not saying steroid is your answer, I advised to check with your doc before starting on them,  like nvsmom stated you need to taper off of them when you take steroids.  I was on prednisone which was  a pretty strong steroid from my understanding (but I could be wrong) and it did nothing for me.  This new med is still a steroid but doc said a low one.  I don't know much about meds but all I know is after 5 straight months of chronic "D" (15-20 times day) this new med is working, FINALLY!  But I strongly suggests checking with your doc before going on them again.   

0

Share this post


Link to post
Share on other sites

Oh, I definitely will! I already have an appt with my gastro! I just feel so crummy today, I was wracking my (foggy) brain for a quick fix. I think I'm just gonna cancel my plans for this week and hang out at home to recover. I'll take a vaca next year! Luckily I was only staying with relatives so no reservations to cancel!

0

Share this post


Link to post
Share on other sites

Oh, I definitely will! I already have an appt with my gastro! I just feel so crummy today, I was wracking my (foggy) brain for a quick fix. I think I'm just gonna cancel my plans for this week and hang out at home to recover. I'll take a vaca next year! Luckily I was only staying with relatives so no reservations to cancel!

Sometimes pepto bismol helps me.  Hope you feel better soon!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,131
    • Total Posts
      919,522
  • Topics

  • Posts

    • Cyclinglady is absolutely correct, after hours of internet research the only gluten-free food available at JNB is a fast food chain called 'Nandos'. I was hoping for a bit more variety, but I'll take what I get.   
    • I'm so confused about my daughter's diagnosis.  I hope somebody can help.   My 4 year old daughter has a swollen belly, stomachaches, and lots of gas.  She does not have diarrhea or delayed growth.  Because of her symptoms and because it runs in the family (2nd degree relatives) I had her tested for celiac.   She was weak positive for TTG (IGA)  and strong positive for DGP (IGG)   TTG (IGA)  8   (0-3 neg, 4-10 weak positive, greater than 10 positive) TTG (IGG)  2   EMA: Negative DGP (IGG)  47  (0-19 negative, 20-30 weak positive, greater than 30 positive) Last week, she had her endoscopy.  The doctor found inflammation and little holes or bumps on her duodenum.  He started her on prevacid and said based on his observations, he was suspicious of celiac, but he would not be able to confirm until the biopsy came back. The biopsy showed no signs of celiac disease.  He said that he could not diagnose her with celiac without the biopsy report saying there was celiac damage.  He said he would categorize her as a potential celiac, keep her on a gluten diet and redo the endoscopy in a year or two to check for damage again.  My questions are: 1.)  If it is not celiac, something is causing her duodenum to be inflamed and have little holes or bumps on it, right?  Could it be a wheat allergy or gluten sensitivity?  What else could it be and how do they test for it?  Given her elevated celiac antibodies, how likely is it to be anything besides celiac causing the damage?  2.)  How likely are false positives for TTG and DGP?  I've heard they are pretty sensitive and specific.  Does getting two positives make false positives less likely? 3.) What have you done in this situation?  I want her to have an official diagnosis to make things easier at school and to feel confident that we are eliminating gluten permanently for a worthy reason, etc.  But, I'm having a hard time imagining keeping her on gluten and waiting for her to get more sick and have more intestinal damage just for a diagnosis.     Thanks in advance for your help.  I'm so overwhelmed and confused.  I hope someone has some insight and experience that will help clear things up for me.            
    • Yeah I actually live in Japan which is pretty similar, because Coeliac disease is rare over here so is the understanding and accommodating it. When I mention Gluten to some restaurants they think I am talking in English and they are unfamiliar with the word in Japanese.    So it seems I can write off my chances of getting some authentic Chinese gluten-free food at the airport, but at least there is a Thai restaurant in T3 so I won't starve. Its called  'Phrik Thai' for future reference. http://en-shopping.bcia.com.cn/store/739.html  
    • While in Boston I found Cheer's  Bloody Mary mix that says gluten-free on the bottle and have had no issues and  tastes pretty good 
    • I always assumed plain coffee was, but I have seen some controversy online about this. I know someone who is gluten free and only buys whole beans and grinds them herself because she doesn't trust how the grounds are processed.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,167
    • Most Online
      1,763

    Newest Member
    Cristina17
    Joined