Found the site doing Celiac/Gluten Intolerance research today. So glad I found it!
A little background. I'm 29 yrs old, I've had bathroom issues off and on since I was at least in high school. I can remember preempting most school days with an Imodium. Over the years I have had some issues, but nothing major. That's all changed now though.
I was diagnosed with Sjogren's Syndrome in December, 2012. Thankfully, I only had to complain about fatigue for a month or so before I was sent to an internist and then a rheumy. The Sjogren's was confirmed by a lip biopsy in May, 2013.
During this time my normally very very regular (I'm talking 2 hours after I eat I'm in the bathroom regular) bathroom habits started to go awry. On my worst days I'm going 6+ times a day and can go from constipation to diarrhea within the day. I still have near constant joint pain that's not responding to anything but Prednisone (which I refuse to continue due to side effects) and I have brain fog a few days a week.
The internist did a ton of blood work, too. My iron was/is low, however, it was determined that I have thalassemia (small red blood cells) and that caused a false positive for anemia. I'm also chronically low in Vit D, I've done two 6 week mega doses and take 1,000 IU nightly and STILL have low normal counts. Other vitamins, I'm not sure but I take B vitamins like crazy and rarely get the pick me up from them.
I saw a GI doc last week and he's ordered a colonoscopy and endoscopy. What pushed me over the edge to see the 'guts' doc (as my primary so eloquently put it) was the liquid diarrhea (if TMI, sorry) that didn't respond to OTC meds, not feeling hungry, random nights of horrible heartburn (again, doesn't respond to OTC meds) and a major upswing in abdominal pain. He did blood work and said everything was normal except for the inflammation markers. It's my understanding that any inflammation showing on blood work could be from the Sjogren's, but may also be from Celiac or other inflammatory bowel diseases.
A couple of months ago I started having "near fainting" (docs term...not mine) episodes after eating lunch, specifically after meals containing lost of gluen. The first thing my primary thought was an issue with my heart or blood clots from deep vein thrombosis making their way to my lungs. I'm betting though that there's no thrombosis and I've confirmed with an echocardiogram that my heart is good. Has anyone had near fainting or fainting issues after eating gluten? I read online that it's not necessarily a symptom, but thought I'd ask.
Ugh. So all of this has lead me to self diagnose gluten intolerance and jump through the necessary hoops to test for Celiac. I would love to dump gluten completely this instant but I'm impatiently waiting for a confirmation either way before I do.