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Accepting My Ibs Diagnosis, Odd Symptoms That Don't "fit" Anywhere


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#1 0range

 
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Posted 31 August 2013 - 11:27 AM

Hi everyone.

The doctors' office told me today that my blood test for celiac was negative. Two of my doctors recommended me to do the test, but it looks like that wasn't the answer to what is going on. I don't have the results on me, but hope to post once I get them. At this point I've slowly begun to accept my 'undiagnosis' of IBS by my doctor, and will start a low FODMAP diet this month. A colonoscopy revealed inflammation in my colon at the site between my small and large intestine, possibly caused by a virus my body had previously. The inflammation is likely what caused my on/off rectal bleeding with joint pain and fever for 4 years but I don't know if it entirely explains the new symptoms I have developed this year. Today is my last day of antibiotics and bloating-wise I'm not doing too great! Sigh, I am hoping that once I start my round of probiotics, it will get better. I'm tempted to blame everything on my thyroid including my vertigo. Doctors say my thyroid levels are perfect. My TSH is currently at a 3.00 (0.3 - 5.00 mIU/L), T4 is 16 (9 - 23 pmol/L) and T3 is 5.0 (3.5 - 6.5 pmol/L) but I feel quite hyper if it is any lower so this is where my doctor has kept me. Is it likely my hormones are all a little off balance? Is anyone else in this boat? I'll post my symptoms here.. just wondering if doing an elimination diet would work for me to figure out if I do indeed have any food intolerances. I'm beginning to feel it is all in my head since all my reports look normal (CBC, celiac, colonoscopy, etc.). Below are symptoms that all more or less appeared this year, with the exception of Hashimoto's. I felt quite fine before my dx of Hashimoto's (just tired and had a puffy face) but it seems like my body has been wrecked by some kind of autoimmune hell! 

 

* (treated) hypothyroidism due to Hashimoto's 

* bloating

* purid gas (har XD)

* constipation with alternating watery diarrhea

* unhealthy looking stool with "corn" pieces and little black pieces (sorry, TMI!)

* tinnitus

* visual snow

* low blood pressure

* vertigo, feeling of being "off balance"

* high pulse rate

* chronic colds that last for months

* extreme brain fog

* inability to concentrate / remember

* heart palpitations

* hypoglycemia? 

* numb hand

* increased sleepiness

 

Whenever I tell doctor my symptoms, they tell me they do not fit one actual diagnosis. And that either I am too worried (a possibility of course, seeing what my body is doing!) or that I have a multitude of issues going on. I was completely healthy (i.e. symptom-free) last year so I am not sure where all of these came from! 


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Canadian undergraduate student in 3rd year, studying Psychology and Speech Communication. Hoping to go into rehabilitation sciences!  B)

  

Dx with: 

Hashimoto's thyroiditis - 22/09/12

benign paroxysmal positional vertigo (bppv) - 18/05/13

irritable bowel syndrome - 21/06/13 

HLA-DQ8 gene ~ heterozygous (moderate risk for celiac) - 29/11/13

 

-> underwent a colonoscopy on 24/08/13, showed mild focal colitis + lymphoid hyperplasia (aka inflammation) in terminal ileum


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#2 emilykay405

 
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Posted 31 August 2013 - 12:30 PM

I'm new to the Gluten Intolerance/Celiac thing. But when I read you're post, I have a few of your symptoms which are related to my Sjogren's Syndrome. Have you talked to anyone about a possible autoimmune disorder (outside of Celiac)?

 

My 'journey' started in Feb. 2012. My health was just fine outside of morbid obesity. I completed two 3 month rounds of a fitness program from Beachbody with no problems. Then over the summer I got a series of sinus infections that WOULD NOT go away. Some of them coupled with UTIs. Thankfully, I've been seeing my primary for a loooong time and he was quick to send me to an internist and eventually to a Rheumy. I was officially diagnosed with Sjogren's Syndrome in May 2013 following a positive lip biopsy.

 

The blood tests that are run for any autoimmune disease (and I think Celiac, someone else will need to chime in here...I haven't actually seen my test results but I know my GI mentioned at least one test that I knew would be positive because of the Sjogren's) are Antinuclear antibodies (ANA). A positive test for ANAs should lead a doc to do further testing but as with some blood testing, there is a chance of a false positive. For Sjogren's they look for Ro/SSA and La/SSB. The ANA test doesn't just help diagnose Sjogren's, it's also used for other autoimmune diseases, too.

 

Hashimoto's is also seen with Sjogren's.

 

My symptoms at the time included major fatigue, muscle weakness/pain, joint pain, hand/arm/foot numbness and brain fog along with the sinus issues and tummy troubles. I didn't have any issues with dry mouth or dry eyes. Since then I have noticed that I don't produce tears like I used to when crying.

 

Anyway, I kind of went on a ramble, but hopefully it helps.


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#3 0range

 
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Posted 31 August 2013 - 01:22 PM

I'm new to the Gluten Intolerance/Celiac thing. But when I read you're post, I have a few of your symptoms which are related to my Sjogren's Syndrome. Have you talked to anyone about a possible autoimmune disorder (outside of Celiac)?

 

My 'journey' started in Feb. 2012. My health was just fine outside of morbid obesity. I completed two 3 month rounds of a fitness program from Beachbody with no problems. Then over the summer I got a series of sinus infections that WOULD NOT go away. Some of them coupled with UTIs. Thankfully, I've been seeing my primary for a loooong time and he was quick to send me to an internist and eventually to a Rheumy. I was officially diagnosed with Sjogren's Syndrome in May 2013 following a positive lip biopsy.

 

The blood tests that are run for any autoimmune disease (and I think Celiac, someone else will need to chime in here...I haven't actually seen my test results but I know my GI mentioned at least one test that I knew would be positive because of the Sjogren's) are Antinuclear antibodies (ANA). A positive test for ANAs should lead a doc to do further testing but as with some blood testing, there is a chance of a false positive. For Sjogren's they look for Ro/SSA and La/SSB. The ANA test doesn't just help diagnose Sjogren's, it's also used for other autoimmune diseases, too.

 

Hashimoto's is also seen with Sjogren's.

 

My symptoms at the time included major fatigue, muscle weakness/pain, joint pain, hand/arm/foot numbness and brain fog along with the sinus issues and tummy troubles. I didn't have any issues with dry mouth or dry eyes. Since then I have noticed that I don't produce tears like I used to when crying.

 

Anyway, I kind of went on a ramble, but hopefully it helps.

 

That's interesting because I've had dry eyes for quite a few months! Not a listed symptom because I thought it was thyroid related. Mouth isn't exceptionally dry, but yes, I do worry that I may have 'set off' another autoimmune disease unknowingly and doctors aren't really looking into it. My dad has Hashimoto's, along with pernicious anemia, and the latter was not diagnosed for a while. 


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Canadian undergraduate student in 3rd year, studying Psychology and Speech Communication. Hoping to go into rehabilitation sciences!  B)

  

Dx with: 

Hashimoto's thyroiditis - 22/09/12

benign paroxysmal positional vertigo (bppv) - 18/05/13

irritable bowel syndrome - 21/06/13 

HLA-DQ8 gene ~ heterozygous (moderate risk for celiac) - 29/11/13

 

-> underwent a colonoscopy on 24/08/13, showed mild focal colitis + lymphoid hyperplasia (aka inflammation) in terminal ileum


#4 bartfull

 
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Posted 31 August 2013 - 02:42 PM

You could have non-celiac gluten intolerance. With that, you won't test positive for celiac but they say the symptoms are often WORSE than for those who Do have celiac. If you try going STRICTLY gluten-free for about three months and notice an improvement, that could be an answer to at least part of your problem.

 

Another thing that comes to mind is a tick bite. There are so many tick-borne diseases now. Lyme disease is only one of them. They are hard to test for. A friend of mine got so sick they thought she was going to die and although they were pretty sure it was from a tick bite, they never did get a definitive answer. She eventually got better but it took a long time.


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gluten-free since June, 2011

Can't eat soy, corn, or foods high in salicylates.

Nightshades now seem to bother me too.

 

BUT I CAN STILL PLAY MY GUITAR AND THAT"S ALL THAT MATTERS!

 


#5 Gemini

 
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Posted 31 August 2013 - 06:48 PM

Orange......I need your attention here.  You have Celiac Disease and need to go gluten free.  I'll tell you why........I have Celiac, Sjogren's, Hashi's and Reynaud's.

These all can come with un-diagnosed Celiac Disease.  Your immune system will continue to look for things to attack when you are eating gluten and shouldn't be. It all boils down to inflammation, which you know is one of your problems.  The words in your post that jumped out at me......IBS, irritated colon seen on colonoscopy, vertigo, bloating, Hashi's, brain fog.  I mean, do I really need to go on?   ;)

 

Some people never trip an antibody test and there are a number of reasons why that can happen. It would be extremely helpful if you could post your Celiac panel results. You are now in the Doctor Hell Hole where they will treat you for every little symptom you have when all of these are most likely caused by Celiac and will go away if you go strictly gluten-free.  Your TSH is a little high but if you feel hyper when they up your thyroid dose, then I wouldn't increase it BUT....did they try a tiny increase or a bigger increase?

 

Did they not do an endoscopy on you?  You could ask for one or just go gluten-free, for a dietary trial.  Either way, you sound like a screaming Celiac to me and may continue to develop other AI problems if you keep eating gluten. Trust me, you don't want that to happen!  I am doing fine for someone with 4 AI diseases but I have been gluten-free for 8 years so healing has happened and my immune system is much calmer these days. I'm sorry you were unable to get the "official diagnosis"

from the AMA but the time has come for you to take control of things and know that your problems are very common to Celiac and having Hashi's really ups the chances of you having Celiac. Plus, your father's 2 illnesses are also strongly linked to Celiac.  Sometimes the diagnosis comes from many little clues and not from a diagnostic test.  And this cute little name.......Benign Paroxysimal Positional Vertigo.......is Celiac vertigo.  I had it so bad, I used to have to sit on the floor and hold onto something I was so dizzy.  It all went away after being gluten-free for a bit and has never come back.  I didn't need a doctor's help, either!   :)

 

I would forget the FODMAP diet and concentrate on going gluten-free for now.  Don't take any antibiotics unless you really need them for a serious infection because they will further mess your gut up.  And you know what doctors also do that is really annoying...they blame everything on a virus.  That's what they say when they don't know what's going on.

 

Don't forget to take probiotics too!  Good luck and let me know if you have any questions.


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#6 cyclinglady

 
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Posted 31 August 2013 - 07:19 PM

I agree with Gemini (and the others)!  Go gluten free and keep a food diary to help identify food intolerances.  When I had "IBS" (it's just a dumping diagnosis), I found out that my intestinal symptoms went away when I identified my food intolerances and recovered from being on antibiotics for two years! It was at that time that I was diagnosed with Hashi's.   For all I know, I may have had celiac disease back then or at least an intolerance to it.  I could have prevented all the damage to my bones!

 

My husband's been gluten-free for 12 years.  No formal diagnosis.  Ask him if he'll ever go back to gluten.


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Non-functioning Gall bladder Removal Surgery 2005
Diagnosed via Blood Test and Endoscopy: March 2013
Hashimoto's Thyroiditis -- Stable 2014
Anemia -- Resolved
Fractures (vertebrae): June 2013
Osteopenia/osteoporosis -- June 2013
Allergies and Food Intolerances
Diabetes -- January 2014




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#7 Celiac Mindwarp

 
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Posted 31 August 2013 - 11:15 PM

There are lots of symptoms there which do tie in with celiac or non celiac gluten intolerance. You might want to request an endoscopy, to see if there is any damage. Trying gluten-free for several months seems well worth a shot. Lots of us here are ncgi or self diagnosed and have turned our health around. FWIW I don't think this is in your head ( though gluten can affect you mentally in terms of anxiety, depression etc., and the vertigo).

Some of us uncover other food intolerances along the way, and dairy is common to begin with, though many people can reintroduce it later.

It can be helpful to start with healthy, unprocessed foods, and save gluten-free products for occasional treats. Meat, fish, fruit and veg, eggs.

Ask lots of questions, let us know how you get on.
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- Symptoms from 2001, maybe before. Across 20+ years, these have included, vomiting, D, migraines, headaches, recurrent miscarriage, inflammation problems (failure to heal from injuries) brain fog, anxiety and more!
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein Posted Image

#8 IrishHeart

 
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Posted 01 September 2013 - 04:56 AM

ORANGE said:
Whenever I tell doctor my symptoms, they tell me they do not fit one actual diagnosis. 

 

Yup, they do... Celiac.

 

Orange,

I had every single one of  the symptoms you listed, plus a couple dozen more.

I was even treated for supposed Hashi's for 2 years and that was not the issue at all.

Sure, my thyroid was malfunctioning & I had classic symptoms

but they are also  celiac symptoms (hair loss, edema, feeling cold) that have resolved off gluten.

Vertigo? oh man, that drove me insane. (still get it If I get hit by accidental cc)

I was told for years I had "IBS" (know what we call that on here? doctor speak for I Be Stumped)

I would write more, but all the others have already said it all.

Maybe your blood work was negative , but it does not necessarily mean you do not have celiac or that you are not just

a 'celiac-in-bloom".

Ask for a biopsy while you are still on gluten if you want to be sure, but then, go G F no matter what and see if you do not feel better.

I am guessing you will.

best wishes. 


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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#9 GFinDC

 
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Posted 01 September 2013 - 07:10 AM

You got some great advice already 0range.  They should have done an endoscopy at the same time as the colonoscopy.  But if they didn't, it is not too late to get one done.  Doctors don't know everything, and they don't have a perfectly reliable test protocol for celiac disease yet.  But you can test yourself for free.  Do the gluten-free diet for 6 months and see if it helps your symptoms.

 

The possible inflammation/virus near the junction of the small intestine and large intestine could be an indicator of Crohn's disease.  But it could be something else too.

 

Some starting the gluten-free diet tips for the first 6 months:

Get tested before starting the gluten-free diet.
Get your vitamin/mineral levels tested also.
Don't eat in restaurants
Eat only whole foods not processed foods.
Eat only food you cook yourself, think simple foods, not gourmet meals.
Take probiotics.
Take gluten-free vitamins.
Take digestive enzymes.
Avoid dairy.
Avoid sugars and starchy foods.
Avoid alcohol.
Watch out for cross contamination.

Helpful threads:

FAQ Celiac com
http://www.celiac.co...celiac-disease/

Newbie Info 101
http://www.celiac.co...ewbie-info-101/

 

NCGI stuff:

 

Non-celiac wheat sensitivity article
http://www.celiac.co...ists/Page1.html

Innate immune response in AI diseases
http://www.celiac.co...uals/Page1.html


  • 0
Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul

#10 nvsmom

 
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Posted 01 September 2013 - 08:40 AM

Ditto the others, it sounds like celiac disease to me, and it looks like it started you into the world of hashi's and probably other autoimmune issues.

 

I too had many of your symptoms, and a few you didn't list, and they were all celiac disease and hashi's related. I also have a AI thombocytopenia that I don't doubt was triggered by untreated celiac disease. Go gluten-free, give it a good 6 months... many of us get worse before we get better so don't just give the diet a couple of months, give it half a year at least. I felt worse at 3 months gluten-free than I did before going gluten-free, but I feel healthy now, after another year has gone by.  :)

 

Your TSH is pretty high for hyper symptoms - that surprises me.  How are your free t4 and free T3? Those give a MUCH more accurate picture of what hormones are available for use than the inferior T4 and T3 would. Normally those with hashis seem to feel their best when TSH is near a 1, and when free T4 and free T3 are in the 50-75% range of your lab's normal reference range, but this does vary from person to person so a TSH of 3 might be good for you. For me, I feel good with a TSH of 0.01, and a free T3 near the 75% point of my lab's range; when my TSH is a 3, I feel very hypo.

 

You might want to get your vitamin and nutrient levels checked too. some of your symptoms can be caused by low vitamin levels. The usual culprits are low B's (B12,6,2), D, A, iron, ferritin, potassium, magnesium, copper, zinc... I think I'm missing one... Anyway, you might be low in one or two but there is no way to check unless you check them all. Right now, the doctors' darlings are B12 and D but that's not always low for everyone; for example, my B12 exceeded the upper limit but my vitamin A is my low one.


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Celiac - June, 2012
Hypothyroid - August, 2012

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#11 0range

 
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Posted 01 September 2013 - 10:49 AM

Thank you so much for the replies everyone! I hope to reply everyone individually once I get to the computer.

 

My dad has intestinal metaplasia in his stomach after years of gut issues starting in childhood. We are just monitoring it at this time. Is there a connection between metaplasia and celiac? I don't think he has gotten the testing done or had samples taken from his small intestine.


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Canadian undergraduate student in 3rd year, studying Psychology and Speech Communication. Hoping to go into rehabilitation sciences!  B)

  

Dx with: 

Hashimoto's thyroiditis - 22/09/12

benign paroxysmal positional vertigo (bppv) - 18/05/13

irritable bowel syndrome - 21/06/13 

HLA-DQ8 gene ~ heterozygous (moderate risk for celiac) - 29/11/13

 

-> underwent a colonoscopy on 24/08/13, showed mild focal colitis + lymphoid hyperplasia (aka inflammation) in terminal ileum


#12 0range

 
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Posted 01 September 2013 - 11:06 AM

Ditto the others, it sounds like celiac disease to me, and it looks like it started you into the world of hashi's and probably other autoimmune issues.

 

I too had many of your symptoms, and a few you didn't list, and they were all celiac disease and hashi's related. I also have a AI thombocytopenia that I don't doubt was triggered by untreated celiac disease. Go gluten-free, give it a good 6 months... many of us get worse before we get better so don't just give the diet a couple of months, give it half a year at least. I felt worse at 3 months gluten-free than I did before going gluten-free, but I feel healthy now, after another year has gone by.  :)

 

Your TSH is pretty high for hyper symptoms - that surprises me.  How are your free t4 and free T3? Those give a MUCH more accurate picture of what hormones are available for use than the inferior T4 and T3 would. Normally those with hashis seem to feel their best when TSH is near a 1, and when free T4 and free T3 are in the 50-75% range of your lab's normal reference range, but this does vary from person to person so a TSH of 3 might be good for you. For me, I feel good with a TSH of 0.01, and a free T3 near the 75% point of my lab's range; when my TSH is a 3, I feel very hypo.

 

You might want to get your vitamin and nutrient levels checked too. some of your symptoms can be caused by low vitamin levels. The usual culprits are low B's (B12,6,2), D, A, iron, ferritin, potassium, magnesium, copper, zinc... I think I'm missing one... Anyway, you might be low in one or two but there is no way to check unless you check them all. Right now, the doctors' darlings are B12 and D but that's not always low for everyone; for example, my B12 exceeded the upper limit but my vitamin A is my low one.

 

Thanks so much nvsmom! Yes I'm a strange one! Even when my TSH was >100 I didn't realize something was "seriously" wrong. I was just sleeping 12 hours a day, and gaining some weight on my cheeks.. but I thought that was just me being a university student! Some people told me that if their TSH is even slightly above the maximum lab range, they are not able to function. Maybe my body was used to it? Before that I was TSH 10 for quite a long time as well. I usually get very hyper when I am around 1: arm weakness, blurry vision, etc.

My free T3 and T4 are: 

FT4 is 16 (9 - 23 pmol/L) and FT3 is 5.0 (3.5 - 6.5 pmol/L)

 

What is thombocytopenia? I hope it has been treated! My doctor finally decided to run a Vitamin D test. I get my B12 checked yearly (it is smack in the middle of the range) but not much else. Are family doctors able to run vitamin/nutrient tests in Canada, or would we go through another route? Which part of Canada are you in? I'm in Southwestern Ontario ^_^


  • 0

Canadian undergraduate student in 3rd year, studying Psychology and Speech Communication. Hoping to go into rehabilitation sciences!  B)

  

Dx with: 

Hashimoto's thyroiditis - 22/09/12

benign paroxysmal positional vertigo (bppv) - 18/05/13

irritable bowel syndrome - 21/06/13 

HLA-DQ8 gene ~ heterozygous (moderate risk for celiac) - 29/11/13

 

-> underwent a colonoscopy on 24/08/13, showed mild focal colitis + lymphoid hyperplasia (aka inflammation) in terminal ileum


#13 0range

 
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Posted 01 September 2013 - 11:11 AM

You got some great advice already 0range.  They should have done an endoscopy at the same time as the colonoscopy.  But if they didn't, it is not too late to get one done.  Doctors don't know everything, and they don't have a perfectly reliable test protocol for celiac disease yet.  But you can test yourself for free.  Do the gluten-free diet for 6 months and see if it helps your symptoms.

 

The possible inflammation/virus near the junction of the small intestine and large intestine could be an indicator of Crohn's disease.  But it could be something else too.

 

Some starting the gluten-free diet tips for the first 6 months:

Get tested before starting the gluten-free diet.
Get your vitamin/mineral levels tested also.
Don't eat in restaurants
Eat only whole foods not processed foods.
Eat only food you cook yourself, think simple foods, not gourmet meals.
Take probiotics.
Take gluten-free vitamins.
Take digestive enzymes.
Avoid dairy.
Avoid sugars and starchy foods.
Avoid alcohol.
Watch out for cross contamination.

Helpful threads:

FAQ Celiac com
http://www.celiac.co...celiac-disease/

Newbie Info 101
http://www.celiac.co...ewbie-info-101/

 

NCGI stuff:

 

Non-celiac wheat sensitivity articlehttp://www.celiac.co...ists/Page1.html

Innate immune response in AI diseases
http://www.celiac.co...uals/Page1.html

 

Thank you so much for all the resources - greatly appreciated! :wub:  Yes I wish they did :( but I think most doctors are of the opinion that if your blood test is not positive, there is no need to get it done - so I was only able to get the colonoscopy procedure. I had some signs of IBD, minus the abdominal pain (blood in stool, with fever and joint pain) but my large bowel looked perfectly healthy - minus that small inflammation at that site. They biopsied that location for IBD but it did not show that, fortunately.


  • 0

Canadian undergraduate student in 3rd year, studying Psychology and Speech Communication. Hoping to go into rehabilitation sciences!  B)

  

Dx with: 

Hashimoto's thyroiditis - 22/09/12

benign paroxysmal positional vertigo (bppv) - 18/05/13

irritable bowel syndrome - 21/06/13 

HLA-DQ8 gene ~ heterozygous (moderate risk for celiac) - 29/11/13

 

-> underwent a colonoscopy on 24/08/13, showed mild focal colitis + lymphoid hyperplasia (aka inflammation) in terminal ileum


#14 nvsmom

 
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Posted 02 September 2013 - 07:28 AM

Thanks so much nvsmom! Yes I'm a strange one! Even when my TSH was >100 I didn't realize something was "seriously" wrong. I was just sleeping 12 hours a day, and gaining some weight on my cheeks.. but I thought that was just me being a university student! Some people told me that if their TSH is even slightly above the maximum lab range, they are not able to function. Maybe my body was used to it? Before that I was TSH 10 for quite a long time as well. I usually get very hyper when I am around 1: arm weakness, blurry vision, etc.
My free T3 and T4 are: 
FT4 is 16 (9 - 23 pmol/L) and FT3 is 5.0 (3.5 - 6.5 pmol/L)
 
What is thombocytopenia? I hope it has been treated! My doctor finally decided to run a Vitamin D test. I get my B12 checked yearly (it is smack in the middle of the range) but not much else. Are family doctors able to run vitamin/nutrient tests in Canada, or would we go through another route? Which part of Canada are you in? I'm in Southwestern Ontario ^_^


I didn't realize that was your free T's, they look pretty good. I can understand why you are feeling fine. :). I felt hypo when my TSH was high and the same hypo when it was in the normal range... It was almost like a switch was pulled- I felt hypo until I suddenly didn't with no shades of grey.

My TSH never hit 100 though! Wow!

The thrombocytopenia is a clotting problem, it my case it was where the body attacks the platelets. It isn't very common, and it is under control... Thanks for asking. :)

And yes, your doctor should be able to order the tests, at least they can in Alberta, it's just that they often stop at D and B12, as you know. LOL
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#15 0range

 
0range

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Posted 02 September 2013 - 10:04 AM

I didn't realize that was your free T's, they look pretty good. I can understand why you are feeling fine. :). I felt hypo when my TSH was high and the same hypo when it was in the normal range... It was almost like a switch was pulled- I felt hypo until I suddenly didn't with no shades of grey.

My TSH never hit 100 though! Wow!

The thrombocytopenia is a clotting problem, it my case it was where the body attacks the platelets. It isn't very common, and it is under control... Thanks for asking. :)

And yes, your doctor should be able to order the tests, at least they can in Alberta, it's just that they often stop at D and B12, as you know. LOL

 

Thanks so much. I'm guessing it isn't normally done? Unless they suspect absorption issues such as celiac? Just got my Vit D result back.. am deficient but I think so are most Canadians XD

 

Here are my celiac test results (reference range in brackets):

 

Ttg-IgA: 3 u/mL. Negative. (0 - 3: negative, 4 - 10: weak positive, >10: positive)

Immunoglobulin A: 193 mg/dL (91 - 414 mg/dL)

 

Is it worth doing another blood test in a year or more, if the symptoms persist? For some reason I feel strongly about having a "positive" result before going 100% gluten-free... is that too demanding? I can eat gluten-free, but doubt I would be very serious about cross contamination without a diagnosis? 


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Canadian undergraduate student in 3rd year, studying Psychology and Speech Communication. Hoping to go into rehabilitation sciences!  B)

  

Dx with: 

Hashimoto's thyroiditis - 22/09/12

benign paroxysmal positional vertigo (bppv) - 18/05/13

irritable bowel syndrome - 21/06/13 

HLA-DQ8 gene ~ heterozygous (moderate risk for celiac) - 29/11/13

 

-> underwent a colonoscopy on 24/08/13, showed mild focal colitis + lymphoid hyperplasia (aka inflammation) in terminal ileum





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