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How To Reduce My Chances Of Related Health Problems And Disorders


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3 replies to this topic

#1 JosieToo

 
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Posted 01 September 2013 - 07:30 PM

Hi all,

 

New to the forum. Recently got biopsy results back that show "3B" damage and am waiting for a blood test to confirm the diagnosis. In the meantime, I've gone gluten-free.

 

One of the concerns I have is that there appears (from the little research I've had time to do) to be a strong correlation between celiac disease and other conditions (lymphoma, diabetes, etc.).

 

Assuming I'm eating gluten-free and my gut heals, would I not be back to having the same risk factors as any other healthy person?

 

If my assumption is incorrect, what things can I do to reduce my risk of these other conditions? I am slender, eat a well-balanced diet (always have, just now without gluten) and exercise regularly - but the thought of developing diabetes, for example, terrifies me!

 

Thanks!


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#2 shadowicewolf

 
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Posted 01 September 2013 - 08:00 PM

The only time, from what i understand, that such conditions surface do to the connection to celiac is if someone is not following the diet. Outside of that, you have the same risk as everyone else.


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#3 ravenwoodglass

 
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Posted 02 September 2013 - 02:19 AM

Try not to worry too much about it. Many of us were undiagnosed for decades and never developed other problems. After 5 years your chance of developing a celiac related cancer go down to the same as the non celiac population from what I understand. However once someone has any autoimmune disease the chances of having another eventually is there. Don't lose sleep over it but if you should develop symptoms of something like thyroid disease, as one example, have your doctor check things out.


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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#4 JosieToo

 
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Posted 02 September 2013 - 06:25 AM

Thanks guys! Still a little scary but I'll focus my energy on continuing to be active, sticking to a gluten-free diet and living an otherwise healthy lifestyle. Hopefully I can stave off any further conditions. Good to know that most are related to un-diagnosed or un-treated Celiac.


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