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How Can I Find A Good Doctor In Colorado?
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Hello. This is my first post on celiac.com. After having 10 years of digestive problems that were repeatedly misdiagnosed as either acid reflux or IBS, I had a basic blood test come back positive for celiac. The upper GI biopsies came back negative. Because of this, my doctor gave me a diagnosis of "mildly gluten-sensitive" and told me to just avoid gluten. The problem is, I suspect I'm having cross reactions with other foods (proteins that my body is mistaking for gluten) and have yet to feel much symptom relief under the gluten-free diet after a month. I recently switched jobs and lost my health insurance, but I will be looking to see what is available under Obamacare once the health care exchanges open in October.

 

As I compare options, I'd like to know if anyone knows of a good doctor who knows about gluten issues and celiac issues and is competent in treating individuals with this problem. My experience thus far dealing with both general practitioners and GI doctors has been frustrating. I understand that gluten problems are a relatively new and little understood area of medicine, but I am getting tired of paying $50 copays to doctors who seem to know even less than I do about celiac. I'd also really love to find a doctor who might be able to help me heal my gut enough to where I might eventually be able to eat some of the foods that I'm intolerant of right now (I know, gluten's out forever, but I really, really don't want to have to give up coffee for the rest of my life). If anyone knows a good doctor anywhere along the Colorado Front Range area, I'd really, really appreciate knowing about him or her. Thank you all.

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You might have a hard time finding a legit doctor that will help you with " cross- re activities" as that isn't really scientifically backed up at this point.

http://www.cureceliacdisease.org/archives/faq/whats-with-all-the-talk-about-certain-types-of-food-causing-cross-reactivity

It can take a year or more to get better from Celiac. You might want to cut dairy, if you haven't, as that is hard to digest with damaged villi. Maybe make sure you are really gluten-free for a few months and see how it goes. It is possible there are other health issues or even other foods you are intolerant to.

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Where are you in Colorado? I had no idea I have celiac until I was diagnosed last October by a naturopath in Boulder. She is really great, has been gluten free herself for 20 years and deals with a lot of patients with celiac and gluten intolerance. She also works with an MD in the office, so if you needed prescriptions or something, they can take care of that too.

 

If you like, you can message me and I'll give you her contact info. :-)

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I'm curious if anyone has a good GI doctor in or around the Denver Metro area? If so, I am in need of one. I've been gluten free for 3 years (never tested for celiac just knew my hand rash went away with not eating gluten).  After two rounds of antibiotics last Feb I developed a white appearance towards the back of my tongue that did not clear with Diflucan or Nystatin, so was ruled to be "hairy tongue." A few months after I started to have extreme bloating and diarrhea after very small amounts of dairy. I've seen a GI doctor, but after 1 visit and no tests was told I have IBS and should take fiber.  I stopped dairy last week and symptoms are gone. Not sure why I suddenly can't tolerate dairy and part of me thinks, great what will be next. I would love to have a provider that could help me make sense of all this. 

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    • It only takes a minute to make a difference. Celiac disease has been overshadowed by the gluten-free diet fad. Getting diagnosed and staying healthy is no piece of cake – those of us who have celiac disease struggle to stay healthy. We need better. We need to be understood. We need a cure. View the full article
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    • Advil (ibuprofen) is gluten-free, but can be a stomach irritant, especially if taken on an empty stomach. That said, I will also place my bet on the garlic and onions. As Raven said, eating more than once a day may also help. An empty stomach is likely to be an irritable stomach.
    • Another link: http://naldc.nal.usda.gov/download/7351/PDF
    • Thanks for posting.  I know it is difficult to talk about these sorts of things even on a webforum.  It is good thing for people to be aware though about celiac disease and that it can cause mental problems.  Gluten can cause brain damage and it can cause anxiety. If the brain does heal it may take a long time. I know that gluten can cause anxiety and obsessive thoughts.  My experience has been similar to your experience. When I first quit eating gluten I had a similar constant loop and strong negative feelings. There are lots of people on this forum who get anxiety when they eat gluten. Some people also experience gluten withdrawl where they experience anxiety after giving up gluten. It can take a long time for the body to heal and for obsessive thoughts to go away.
       It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety.  I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten.  Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful.  I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor.  I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot.  This is also something that you should talk to a doctor about first. https://www.researchgate.net/profile/Martin_Mahoney2/publication/7426926_St._John's_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies.  Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills)  very well, and do better on an activated form of vitamin b. I take:
      1 activated vitamin b12 daily
      1 activated vitamin b6 every once in a while. 1 regular vitamin b multivitamin
      1 magnesium pill every day.
      St Johns Wort daily.
      1 zinc vitamin daily
      I drink lots of Chamomile tea and decaf coffee. I avoid most caffeine. 
      I think each of these helps lower my anxiety level.  I eat fruit with every meal. Canned fruit from walmart is cheap and good for you. I eat salad and and vegetables and avoid dairy.  I eat frozen fish often as it has healthy proteins. Eating healthy is very important. I eat potatoes and rice. http://www.livestrong.com/article/454179-what-is-methyl-b12/ I avoid eating soy sauce, soy, cheese, aged meats and fermented foods (I do drink certain types of alcohol in moderate amounts.) These foods contain lots of Tyramine. I might (or might not) have "monoaine oxidase deficiency" and if so high Tyramine foods should be avoided.  I thought I might have problems with elevated ammonia in my blood, but I am not convinced of that anymore. I limited my consumption of meat for a while as well as dairy but I am not sure if i helped.  I have heard that Celiac disease can effect other organs besides the brain and those organs can have an effect on the brain.  My current diet is working so I am going to stick with it for now. I try not to worry about things that are outside of my control. Be patient as it took me a long time to recover.  Let me know if you have any questions. There is a lot of information on this site and people who are willing to help.
       
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