Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Pregnancy
0

10 posts in this topic

Hi all,

 

Just been diagnosed with Celiac Disease. I've consulted two OBGYNs who have told me that if I want to get pregnant I should start trying immediately. They said that the longer I wait (and in their words "the more chronic the condition becomes"), the greater the chance of problems.

 

However, I have read online that it is recommended to wait 6 months - 2 years to allow time for the stomach to heal before trying to get pregnant. I presume to allow for better nutrient absorption.

 

Anyone have any feedback?

 

I'm 37 so time is not on my side at this point! :)

 

Thanks!

 

 

0

Share this post


Link to post
Share on other sites


Ads by Google:

http://www.cureceliacdisease.org/archives/faq/given-that-celiac-disease-is-associated-with-infertility-what-can-a-woman-with-celiac-disease-do-to-help-her-get-pregnant

 

Given that celiac disease is associated with infertility, what can a woman with celiac disease do to help her get pregnant?

A strict gluten-free diet for a few months and a good multivitamin are all a woman with celiac disease needs to be sure there’s no interference with fertility.

0

Share this post


Link to post
Share on other sites

Maybe just a few months gluten-free then try? If you feel better and any blood testing shows an improvement after 3 months, consider starting then. Unless you run into problems, 6 months is likely to be fine.

The outcomes for diagnosed celiacs are almost identical to non celiacs once they are on the gluten-free diet, and your chances of avoiding miscarriages are massively improved now you are diagnosed.

Start taking a good gluten-free multivitamin, and consider eating a good clean diet, mostly meat, dish, eggs, veg and fruit.

I had my lovelies at 39 and 37, and met lots of new moms of a similar age.

I wish you all the very best, ask lots of questions as you get used to the diet

Mw

0

Share this post


Link to post
Share on other sites

I've only been dx and gluten-free for 8 months but suspect I've had celiac for years.

My son is now 12 but before I had him I was trying to conceive for nearly two years and getting very stressed and upset. Anyway, I assumed the problem was that I was overweight so I started a wholefood only diet...obviously cutting out bread, biscuits, pasta etc too and included lots of pumpkin seeds and nuts, salads, veggies and beans. Well about 3 months later I was pregnant! so unbeknown to me at the time, maybe the cutting out gluten is what did it. I don't actually know why I started eating crap again because I felt the healthiest I'd ever been at that point.. (I'm taking alot longer to heal this time).

Good luck ... :)

Edited...you beat me to it with the wholefoods CMW! ..grrr my slow typing lol !

0

Share this post


Link to post
Share on other sites

I was mostly wheat free and Atkins when I conceived, which probably gave me just enough chance. (Pre diagnosis)

0

Share this post


Link to post
Share on other sites




This is really helpful information. I have recently been diagnosed with celiac disease. I am 28 and I think I have had celiac pretty much my whole life because the damage to my intestine was extensive. I never took the gluten free diet seriously but I am regretting it now that I want to get pregnant. I want to have my first child before 30. I am giving myself 3-4 months to let my body heal (hopefully it works).

 

I was hoping that some one can tell me if beside gluten should I be cutting out dairy products due to lactose intolerance secondary to celiac? I haven't experienced any lactose intolerance symptoms but can it cause similar damage to intestine as gluten does (if in case I do have it)? I do not want to take any chances at this time but I also am careful about not to cut out good source of some nutrition either. 

 

I will really appreciate your help.

Thanks

0

Share this post


Link to post
Share on other sites

My functional medicine nurse told me her standard plan was to cut dairy, soy, and eggs for a few months while healing.  After that, you could try a normal amount (One serving) and wait four days to see if there is reaction.

 

Substitutes for milk:  nut milk, rice milk, coconut milk I suggest to find a recipe and make your own.

 

I found coconut aminos instead of soy sauce, other than that I do without it.

 

eggs?  I am not sure.  I am able to eat them.  They were one food I didn't have antibodies to in spite of eating them daily!

 

D

0

Share this post


Link to post
Share on other sites

This is really helpful information. I have recently been diagnosed with celiac disease. I am 28 and I think I have had celiac pretty much my whole life because the damage to my intestine was extensive. I never took the gluten free diet seriously but I am regretting it now that I want to get pregnant. I want to have my first child before 30. I am giving myself 3-4 months to let my body heal (hopefully it works).

 

I was hoping that some one can tell me if beside gluten should I be cutting out dairy products due to lactose intolerance secondary to celiac? I haven't experienced any lactose intolerance symptoms but can it cause similar damage to intestine as gluten does (if in case I do have it)? I do not want to take any chances at this time but I also am careful about not to cut out good source of some nutrition either. 

 

I will really appreciate your help.

Thanks

Didn't cut out dairy. If you can digest it, don't worry about it. I don't drink milk but am more into the yogurt and hard cheeses which are lower lactose.

0

Share this post


Link to post
Share on other sites

 Thank you guys.

 

I don't think I have intolerance to dairy but I did't have severe symptoms from gluten either (just constipation, fatigue & poor sleep at times- but I thought it was due to low iron levels as I wasn't diagnosed at the time). So I can't help but worry about dairy either. I just don't want it to cause swelling in intestine and lead to poor absorption of nutrients causing all my hard work with the gluten free diet to go in vain. I will definitely try your suggestions.

 

I am also looking into getting injections for iron as my body is taking longer to absorb iron in tablet form. Any suggestion if injection is a good way to go?

 

Thanks

0

Share this post


Link to post
Share on other sites

I would take a multivitamin with folic acid and give yourself some time to heal first. I've never heard of celiac disease getting worse on a gluten free diet. A few months gluten-free would go a long way health-wise.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,367
    • Total Posts
      920,556
  • Topics

  • Posts

    • This easy to make bean dip makes a great addisiton to any good munching session. Goes gret with salsa and gluten-free beer. View the full article
    • Good grief!  :o. I'm so sorry, I wish there was something I could do or say to help you.  I agree with the NP, your primary needs to be requesting copies of your records from the other doctors, as well as the records and lab reports from your hospital stay.  They are supposed to work together as a team, not just individually out in left field.
    • Just a quick one to say I got a diagnosis of celiac disease today. I know in the past it's been helpful for me to know the outcome for other folk, so thought I would update. The moral of this story is even with a VERY borderline blood test it's worth persisting. thanks for all the help Sue 
    • Our own resident gluten-free expert is Suzie Davies. Suzie has been dedicated to gluten-free products since she was diagnosed with celiac disease ... View the full article
    • Well, I am stressed to the max. I just spent 3 days in the hospital with D and stomach pain, dizziness, chest pain, generally unwell. Then another trip to the ER on top of that. My protein was low and my RBC and hemoglobin dropped below normal in 3 days. Not terribly low, but below normal. I also had metabolic acidosis which still confuses me. I usually eat every 2-3 hours despite it causing pain to keep my energy up and was unable to eat that frequently in the hospital. I usually carry protein with me and had been taking liquid iron which I stopped a few weeks ago because my new endo is not a fan of iron supplements. As soon as I got home from the hospital I started with my protein drinks and blackstrap molasses for iron.  I now have bilateral mild pleural effusions and a nodule on my left lung, which hopefully is nothing, but was not there on a CT back in March. In addition, my left adrenal gland, which also appeared normal in March, is calcified and the report indicates this is most likely due to a previous bleed or infection. My colon appears tortuous (whatever that means) and we are waiting on colon/endo biopsies. I have been gluten-free since March except for cc so expect the biopsies to again be negative.  My primary care is useless. I am in the process of getting a new one I will see on the 7th but need the current one to fill out FMLA paperwork because I both physically and mentally need time to recover. I will have to go off of payroll for 2 weeks but I think I need to. I called the primary's office today to discuss the hospital tests which she does NOT have yet and to ask if we should/could start a low dose of prednisone because my body is attacking itself. My thyroid on ultrasound is also abnormal though my bloodwork thus far is normal. But it hurts on that side. The only reason the ultrasound was ordered is because I asked for it in the first place. The only reason I have started seeing an endocrinologist is because I found one myself. Anyway...I broke down in tears on the phone eith her today and she told me I was having a "manic episode". I have no history of mania. I only recently started taking xanax to help me cope with the stress of being sick. I was not sick until I did this stupid gluten challenge over the winter. My mother was in town and spoke with the doctor on the phone as well who was trying to get my mom to take me to a psych hospital. She also threatened to send the police to check on me. My mother assured her I was in no danger and we hung up the phone in complete shock. Admittedly, I was in tears when I called her and probably sounded like a fucking mess. But I believe I referenced the dropping iron, protein, fluid near lungs, enlarged thyroid and attacked adrenal gland then literally said "my body is attacking itself and I need help" to which she said, "I think you are manic". Lovely. If I was a mess before that phone call it was 10x worse when we hung up.  Anyway, this is the first night it has been extremely difficult to sleep. I admit my thoughts about my odd symptoms keep me up often recently. I mean, who the hell bleeds from or gets an infected adrenal gland?! I am sure it was another time I begged my primary for help. On a side not, the NP at the ER told me the primary should be putting these pieces together and communicating with my other doctors better. He then stated that he used to go to the same practice but left because the practice got too big and like a business. So I got some validation from that chat.  A melatonin or a .25 xanax usually does the trick for me to sleep but I am so disturbed about my interaction today, stressed at my health, stressed that my ex has our son so much because I am always sick (bless him for coming through), stressed that I have to go back to this awful doctor because I will need the FMLA paperwork before I see the new doc on the 7th.  8 months ago, I took a multivitamin when I remembered it and that was it.  End rant. Maybe now that it is off my chest I can finally sleep. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,443
    • Most Online
      1,763

    Newest Member
    Richard Green
    Joined