Symptoms Disappeared After 3 Years

2 posts in this topic

So I have been gluten intolerant for about the past three years now but only strictly gluten-free for a year. The other day I was given Rudi's brand bread and was told it was gluten free. I assumed it must be because of the brand and the fact that it was frozen but never actually closely checked. I ate it for a few days worth of sandwiches and later found out it WASN'T gluten free. I was confused because I had no symptoms?? Since then I've drank beer and had bread successfully!! It's been a few months since I've been accidentally "glutened" because I'm extremely careful and suffered from severe, almost instant reaction of nausea so I'm not sure when exactly my reaction stopped.

Has anyone had this happen before? It's crazy to me that such intense symptoms can just disappear. Two months ago I received a specialized acupuncture treatment that targeted my allergy. According to the doctor, I would be fully cured after a single session. I thought he was full of it and never tested to see if it worked, maybe that's what did it?

It feels like a miracle to not have any sickness after remembering the long, horrible days spent in bed after such small amounts of gluten, like accidentally eating something with caramel coloring or when somebody used my toaster.

At least now my body can (at least temporarily) tolerate a gluten diet so I can finally get a successful celiac test.


Share this post

Link to post
Share on other sites

Ads by Google:

Welcome to the board.


In some, symptoms tend to grow over time as the level of autoantibodies increases and the amount of damage and inflammation grows. Hopefully your gluten challenge won't be too difficult for you. The average gluten challenge tends to be about two months with about two slices of bread (or equivalent) per day.


Just as an aside, celiac disease and non-celiac gluten intolerance (NCGI) are not allergies. Celiac is an autoimmune disorder, and I don't think they've quite figured out what NCGI is yet, but I would guess it's AI related too.


Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Forum Statistics

    • Total Topics
    • Total Posts
  • Topics

  • Posts

    • Seeing as the flu shot will stimulate your immune system, it stands to reason that it could make symptoms flare.  I have never had a flu shot because I am low risk for catching it.  Now, I am nervous to try having one in case the above happens. I am not against vaccines, either, but I have never had the flu and just do not want a flare of symptoms......which can happen at any stage of recovery. I have been under stress for awhile after a few deaths in my family and sure enough, for the first time in 11 years, I have been having some subtle symptoms again and I have not been glutened at all. The docs tell me this is completely normal for those with AI diseases.  Trying to keep the immune system calm and happy can be challenging at times!
    • There's a gluten sniffing dog?????????????  I WANT ONE!  That way, as a service dog, I could take the pup into a restaurant and not be kicked out.  I have always marveled how in Europe, you see some dogs in cafes, sitting besides their owners while they eat. But having a dog to sniff out gluten is just so cool!
    • So, if this supposed damage cannot be seen under a microscope, how does Dr. Fine state with any amount of credibility that the damage is there?  He also needs to distinguish between NCGI and actual Celiac Disease because there is a huge difference. Regardless of what he claims, it is a well established fact that only in Celiac Disease is there villi damage. I am in no way dismissing the very severe symptoms of some with NCGI or its existence as an illness but people without Celiac do not usually have anemia, malabsorption and the resultant vitamin/mineral deficiencies. Their villi do not curl up and die. If there were damage done to a person with NCGI, then if on biopsy, the doctor hits a sweet spot, they would be able to see the damage under microscopic exam. I am also in no way defending the mainstream medical establishment because they certainly nearly killed me with their ignorance.  I know no doctor was looking for Celiac 30 years ago when I was sick but I presented with classic Celiac and they still got it wrong. So, I do hear you on that point but in today's world, we do understand Celiac much better and what Dr. Ford comes out with does not match known science. The problem we have is finding a sure fire way of diagnosing people before their guts are totally trashed.  I am sure testing will become much better and more sensitive for people in the early stages of the disease. I have a very open mind on medical issues and my doctor is a functional medicine MD. They have helped me more than most. But if Dr. Fine wants to be taken seriously, he needs to publish his findings for review by others in the medical field. He should be working with the current medical establishment to enlighten them if he has discovered things they haven't. But when he makes statements like the one I quoted, its hard to take him seriously. BTW....I encourage anyone who becomes ill from eating gluten to be tested for Celiac and if that cannot be proved, then by all means go strictly gluten-free. I know there are people who fall through the cracks but when someone states they need to be gluten-free for health reasons, I believe them!  You don't have to have a diagnosis to want to improve your health with a dietary change.  I am glad your husband has become well on the diet!  That really is the bottom line......  
    • I'm going to hope for a gluten-sniffing dog!  Funny, my 5th grader's science project was about cancer sniffing dogs.  During her presentation, she used our labrador to demonstrate.  She trained our dog to identify food masking as "cancer cells".  It was hilarious!  Our dog actually did it!   Anyway, I can't agree more with Gemini about the TTG measuring dietary compliance.  I continue to test negative to the TTG.   I think the DGP should be included in helping to determine dietary compliance.   Finally, I was saddened to hear that Dr. Fasano's recent research showed that some 20% of children are not experiencing intestinal healing.  We know from other studies that some 2/3 of  adult celiac patients never heal.  It is disheartening!  More post-diagnosis research and better tools to manage celiac disease are desperately needed.  
    • The flu vaccines can also be a bit of a gamble with what strains they put in each year. I've been OK with them generally but one year I had a really bad reaction to it and ended up feeling like someone was shoving razor blades down my throat for the best part of a week 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
    • Most Online

    Newest Member
    Carolyn Clark