Posted 15 September 2013 - 09:32 AM
If you have dh you are celiac ---- PERIOD. You are not gluten intolerant --- you are celiac. And it certainly sounds like it's dh. Biopsy schmiopsy. If you are gluten free then no dh biopsy will come up positive -- not the first time & not the second time. Sorry. Your derm should know that. Dh also keeps presenting for 2 years (or even longer) after you have been STRICT gluten free. Also, once you begin presenting with dh then the gut issues most often "take a back seat" b/c now the celiac is presenting in your skin. This does not mean that gluten is not or will not do harm to your gut but only that the overt symptoms now present as the skin rash.
DH is extremely sensitive to the smallest amount of gluten so you need to be RABID about not getting cross contaminated.
And welcome to the board no one ever willingly wanted to be a part of!
Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012
Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.
Sept. 2013 adding back dairy in small quantities & thus trialing iodine