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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Joint Pain
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38 posts in this topic

Simple question here. When I was telling my Dr. About all my problems , when we were talking possibly Celiac. He asked me If my joints hurt. I said "nope". Now almost 4 months in. My joints have started to hurt. Like walking up and down the steps and stuff. Is it a withdrawal ? Why now? After almost 4 months of being Gluten free? Just curious .. I will talk to him about this next time I see him but I was wondering if anyone knew..

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sorry w8in4dave that that's started happening  :(  About this time last year I was having bone pain and joint pain, but since going gluten free, it disappeared for me.  I've only had joint pain once since going gluten free and that was from an accidental glutening.  

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Simple question here. When I was telling my Dr. About all my problems , when we were talking possibly Celiac. He asked me If my joints hurt. I said "nope". Now almost 4 months in. My joints have started to hurt. Like walking up and down the steps and stuff. Is it a withdrawal ? Why now? After almost 4 months of being Gluten free? Just curious .. I will talk to him about this next time I see him but I was wondering if anyone knew..

Are you sure you aren't getting glutened? Intolerances?  I hope you figure it out and feel better soon.

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Did a little searching in the forum about joint pain.  I found that it could be another autoimmune disorder like lupus or RA -- maybe even Lyme Disease.  Hope this helps.

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sorry w8in4dave that that's started happening  :(  About this time last year I was having bone pain and joint pain, but since going gluten free, it disappeared for me.  I've only had joint pain once since going gluten free and that was from an accidental glutening.  

I don't think I am getting accidentally glutened, I am being extremely careful!! Just started the last few days.. Hmmmm 

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Are you sure you aren't getting glutened? Intolerances?  I hope you figure it out and feel better soon.

I think I am sure!! I mean I have been eating whole meat and fresh veggies ... Over the weekend I did have some Noodle salad I made from rice noodles .. Everything I put in it was Gluten free ... 

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Did a little searching in the forum about joint pain.  I found that it could be another autoimmune disorder like lupus or RA -- maybe even Lyme Disease.  Hope this helps.

Ohhh I see hmm Well I know my Dr. Has looked for Lupus before and It has always turned up negative, but RA? Realllly? Hmmm I guess he has never looked for that because I have never had this pain. Something to ponder on huh. I know once you have an Auto immune you will more than likely get another. Well I will just keep at the Gluten free and hope this pain goes away. I will talk to the Dr. Next time I see him... Lets just hope I am just achie lol 

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I had flare-ups of joint pain for a decade or so prior to my diagnosis. It would start with feeling flu-ish and then the joints would get very weak and sore, most likely hurting for a few months but sometimes the pain in a joint would last a few years.  When I went gluten-free, at about the 3 month mark, I had a pretty severe flare-up. My joints would give out on me and little things like using scissors became difficult again. I was pretty convinced that it was caused by lupus, but I understood that I might just be one of the unlucky few who take months to years to heal... I just didn't accept it.

 

After three more months the pain went away and I eventually saw a rheumy about RA and lupus. The doctor agreed with some of our more senior board members that it probably was lingering celiac problems. I haven't had any more major joint problems in the last 8 month so I am cautiously optimistic that they are right.

 

Anyway, the point of my rambling was to say that in my experience, new joint pains can crop up in the recovering months after going gluten-free, and it can be many months afterwards too. By all means get it checked out (just in case) but keep celiac disease in consideration and maintain your patience.

 

I hope the pain goes sooner rather than later.  :)

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TY nvsmom, Thats exactly what I was wondering!! If it could just happen!  I am a recovering gluten eater <-- Hahaha , kinda new at it so was wondering it it may just be that old Gluten in my system!! 

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Nightshades are a trigger for joint pain also.  When people go gluten-free, they often end up eating more nightshades than they had in the past.  Most gluten-free bread, pasta etc is made with various flours and often they contain potato flour.  So if you eat a lot of gluten-free baked goods etc you may have more nightshades than in the past.  Food nightshades are potatoes, tomatoes, peppers and eggplant.

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I don't eat alot of Gluten Free Baked goods. In fact I have only eaten i cupcake in 4 months. I have never been about bread. The only reason I ate the cupcake is because it was my Daughters BD cake. I am not eating anymore nightshades .. Maby a potato or two a week. I don't like peppers and eggplant so no. And I have not eaten Tomatoes yet because my garden is not up to par as of yet... So i am thinking it is not any of that!! Will keep it in mind tho :) Thanks:)

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Maybe dairy (casein) is the culprit. You could try keeping a food journal and trying an elimination diet.

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Seems yesterday and today (So far) It is gone! Like it just disappeared I had cheese last night , 1 because I was missing it, 2 because I wanted to see if I would have a reaction. So far no reaction. 

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Wow!  Glad you're feeling better.  

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Yea it was short lived! It came back. I dicided to stay away from Cheese. I havn't eaten anything eles in the way of cheeses milk dairy stuff. Mostly in my knees and elbows . pffttt! 

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Yea it was short lived! It came back. I dicided to stay away from Cheese. I havn't eaten anything eles in the way of cheeses milk dairy stuff. Mostly in my knees and elbows . pffttt! 

Hi,

 

If the joint pain is related to cheese, you may need to avoid all dairy.  Cheese is mostly dairy protein.  But milk and other dairy products often have the protein in them.  So just avoiding cheese wouldn't be enough to stop a reaction.  You might not notice a reaction with milk, but it could still be happening.

 

I had strong reactions to dairy at first when I was gluten-free.  They have changed over the years and are not so strong now.  You may find that after you have been gluten-free for 6 months to a year, that you are able to tolerate dairy better.  Or it might be a case where you need to avoid it forever.

 

There are lots of alternative dairy options these days to choose from though.   So it's not a big problem to go dairy free.

 

Kind of interesting learning new things about your body at times isn't it? :D

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Very interesting to find stuff about our bodies. Sometimes I am not happy about it!! But at least I know!! 

 

I am pretty good w/o dairy products. I will make sure I won't eat any! Pffttt ughhhhh 

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Well while you're trying to find out what is causing pain/inflamation to your joints. There's a couple of recipes I use when i have flare ups which maybe worth a try...they're yummy too!

http://www.rebootwithjoe.com/in-the-reboot-kitchen-pina-colada/

Or.. juice some apples, carrots, half a lemon and about an inch of fresh ginger (or frozen)

Or slice a piece of fresh ginger into hot water and enjoy :)

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Well while you're trying to find out what is causing pain/inflamation to your joints. There's a couple of recipes I use when i have flare ups which maybe worth a try...they're yummy too!

http://www.rebootwithjoe.com/in-the-reboot-kitchen-pina-colada/

Or.. juice some apples, carrots, half a lemon and about an inch of fresh ginger (or frozen)

Or slice a piece of fresh ginger into hot water and enjoy :)

OMG OMG OMG Thank you thank you thank you!!! I just bought me a super fancy blender!! You know the ones.. Mega price!! Yea that one!! I think I have had it 3 weeks and used it 1 time!! This is why I bought it!! I wanted to make healthy Smoothies!! Thank you so much!! I am giving you Kudos!! :) 

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OMG OMG OMG Thank you thank you thank you!!! I just bought me a super fancy blender!! You know the ones.. Mega price!! Yea that one!! I think I have had it 3 weeks and used it 1 time!! This is why I bought it!! I wanted to make healthy Smoothies!! Thank you so much!! I am giving you Kudos!! :)

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Oooo you are welcome and thank you :) . I love my bullet type smoothie maker. I have a juicer but its abit of faffing cleaning it when in a rush. Enjoy ! :) :)

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Making a list! Checking it twice!! :) 

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Joint pain was never one of my symptoms before being diagnosed.  But now (2 years later) if I accidentally get glutened (cross contamination? I never intentionally eat it) it is the first symptom to show up.  All my joints ache for a couple of days.  Has happened twice, both after eating out of the house (wedding and vacation) but sticking to gluten free foods.

 

My celiac son started complaining about not feeling well as well as joint aches and we spent MONTHS trying to figure out where he was getting gluten.  We just assumed it was gluten.  He blood tests continued to come back clear so we started looking elsewhere. Turns out he had Lyme Disease from a bit almost 12 months earlier.  Luckily I had kept a photo of the weird, circular rash he had.  

 

Cara

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Joint pain was never one of my symptoms before being diagnosed.  But now (2 years later) if I accidentally get glutened (cross contamination? I never intentionally eat it) it is the first symptom to show up.  All my joints ache for a couple of days.  Has happened twice, both after eating out of the house (wedding and vacation) but sticking to gluten free foods.

 

My celiac son started complaining about not feeling well as well as joint aches and we spent MONTHS trying to figure out where he was getting gluten.  We just assumed it was gluten.  He blood tests continued to come back clear so we started looking elsewhere. Turns out he had Lyme Disease from a bit almost 12 months earlier.  Luckily I had kept a photo of the weird, circular rash he had.  

 

Cara

TY Cara Yea I never Intentionally eat it either , but evey once in a while I see that it is in something I am soooo very used to using (second nature) then I say "ohhh I should check this" low and behold pffttt ... Like lets say last night :) I was making some pork chops and taters. Well ya know I Loveee that "Bakers Joy" it is a non stick spray..... OMG it works! But have you ever read the ingredients on that can? Well besides Gluten it has horrid stuff in there :( but yea so after 3 months ... I still am sneaking a lil bit of Gluten in .. Sad but True.  

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Are you sure you aren't getting glutened? Intolerances?  I hope you figure it out and feel better soon.

i am newly diognosed and i have bone and joint pain but like i said i am new and just trying to figure out what has gluten and what does not  maybe you got some cross contamination any tips you could give me does glutten called something else when looking at ingreadience

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