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Joint Pain


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37 replies to this topic

#31 scrcdawn

 
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Posted 19 September 2013 - 04:15 PM

I had joint pain, dx with fibromyalgia, then went gluten free and poof, all aches,joint  pain, muscle pain disappeared. Now dx gluten intolerant. Came back this weekend, opps seems I cannot eat oats either.  Back to feeling like I did in high school, but better!!!!


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#32 w8in4dave

 
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Posted 19 September 2013 - 05:59 PM

Wonderful for you scrcdawn :) When I was DX'd I was ecstatic  that finally an answer to my problems!! I am sooooo much better than I was before I was in Gluten recovery !! :) I guess it is a learning thing here ...


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Recovering Gluten Eater 

DX'd June 17th 2013


#33 psawyer

 
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Posted 20 September 2013 - 06:00 AM

If anyone has a confirmed, verifiable case of gluten being in the anti-caking agent of a shredded cheese, please share the evidence here. I have never seen one.


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Peter
Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000.
Type 1 (autoimmune) diabetes diagnosed in March 1986
Markham, Ontario (borders on Toronto)

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#34 GottaSki

 
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Posted 20 September 2013 - 12:46 PM

If anyone has a confirmed, verifiable case of gluten being in the anti-caking agent of a shredded cheese, please share the evidence here. I have never seen one.


I researched this quite a bit and found that neither anti-caking or mold inhibitors in pre-shredded cheese contain gluten -- as Peter asked if you have found a recent source that any of these products contain gluten...please provide info.

If you are having a reaction to these products you may be sensitive to the additives....but that does not mean they contain gluten.

Try plain block cheese -- if that bothers you, the problem is likely dairy. If just the pre-shredded cheese bothers you -- it is likely the additives. Wait a few months and try cheese again.
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-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#35 w8in4dave

 
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Posted 20 September 2013 - 08:45 PM

OK so there is not Gluten in any pre shredded cheese :) Thanks everyone :) Gotta love this site! 


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Recovering Gluten Eater 

DX'd June 17th 2013


#36 eers03

 
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Posted 28 September 2013 - 04:42 AM

I had flare-ups of joint pain for a decade or so prior to my diagnosis. It would start with feeling flu-ish and then the joints would get very weak and sore, most likely hurting for a few months but sometimes the pain in a joint would last a few years.  When I went gluten-free, at about the 3 month mark, I had a pretty severe flare-up. My joints would give out on me and little things like using scissors became difficult again. I was pretty convinced that it was caused by lupus, but I understood that I might just be one of the unlucky few who take months to years to heal... I just didn't accept it.

 

After three more months the pain went away and I eventually saw a rheumy about RA and lupus. The doctor agreed with some of our more senior board members that it probably was lingering celiac problems. I haven't had any more major joint problems in the last 8 month so I am cautiously optimistic that they are right.

 

Anyway, the point of my rambling was to say that in my experience, new joint pains can crop up in the recovering months after going gluten-free, and it can be many months afterwards too. By all means get it checked out (just in case) but keep celiac disease in consideration and maintain your patience.

 

I hope the pain goes sooner rather than later.   :)

I was having an ache in what I thought was my thigh, deep.  While sitting in my car I realized that its actually in my hip joint and is most likely referring into my thigh. Two nights ago I had pain in my left big toe--like a pin prick in the end of it.  On the same drive yesterday, while clutching with my left foot for a long drive home I realized the pain is in the joint of my toe and must have been referring.

 

I had some gluten-free beer on Tuesday and have been eating plenty of nightshades and some red meat.  Wondering about Uric acid?  If I drink plenty of water and maybe go for a bicycle ride with some inclines (to sweat out some toxins) do you all think this will help some?  I go back and forth with a.) being active and making it worse or, b.) adopting the theory of "that which is in motion stays in motion."

 

Thoughts?


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Diagnosis 11/2012

#37 GottaSki

 
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Posted 28 September 2013 - 12:48 PM

I was having an ache in what I thought was my thigh, deep. While sitting in my car I realized that its actually in my hip joint and is most likely referring into my thigh. Two nights ago I had pain in my left big toe--like a pin prick in the end of it. On the same drive yesterday, while clutching with my left foot for a long drive home I realized the pain is in the joint of my toe and must have been referring.

I had some gluten-free beer on Tuesday and have been eating plenty of nightshades and some red meat. Wondering about Uric acid? If I drink plenty of water and maybe go for a bicycle ride with some inclines (to sweat out some toxins) do you all think this will help some? I go back and forth with a.) being active and making it worse or, b.) adopting the theory of "that which is in motion stays in motion."

Thoughts?


Motion is always good...but when in pain I wouldn't push the sweat factor. Consistent moderate exercise until you are feeling stronger with less pain.
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-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#38 w8in4dave

 
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Posted 29 September 2013 - 04:19 PM

If anyone has a confirmed, verifiable case of gluten being in the anti-caking agent of a shredded cheese, please share the evidence here. I have never seen one.

I have never had a problem with Pre shredded cheese, I was just told by someone eles it had Gluten in it.That was before I was Gluten free. I shred my own. I have always shredded my own for the most part. Once in a great while I buy pre shredded. But not very often. I am too cheap to buy pre shredded!! I have never had a problem with Pre shredded cheese :) 


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Recovering Gluten Eater 

DX'd June 17th 2013





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