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Inconclusive Results - Does This Mean I Do Or Do Not Have Celiac?

test results diagnosis celiac doctors

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#1 mydearmartha

 
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Posted 09 September 2013 - 05:35 AM

I have been tested twice in the past two and a half years for Celiac Disease - once when I first visited a GI and again after having a baby. Both times my test results came back inconclusive. I have been gluten-free 100% since this past test because it makes me feel so much better. I know that there is non-Celiac gluten intolerance, and maybe I fall into that category. But what if I do have Celiac and those rare times when I get glutened are really harming my body? My GI told me that there are 16 or so markers to test for but that they could only test for two. Is that true?


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#2 kareng

 
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Posted 09 September 2013 - 05:41 AM

Get a copy of the tests that were run.  I'm not sure what he means by 16 markers.  There are a couple of blood tests, and endoscopy with a biopsy and response to diet.  Maybe he is one of the many that don't know anything about Celiac?

 

http://www.curecelia...guide/diagnosis


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#3 nvsmom

 
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Posted 09 September 2013 - 07:02 AM

The usual tests are:

  • tTG IgA and tTG IgG
  • DGP IgA and DGP IgG
  • EMA IgA
  • total serum IgA (a control test)
  • AGA IgA and AGA IgG (older and less reliable tests)
  • endoscopic biopsy

There are a few older tests (reticulin IgA?) that can look for celiac disease but they are very rarely used anymore.

 

Bring us your results, and normal ranges, and we can help you interpret them.

 

Welcome to the board.


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#4 Mum in Norway

 
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Posted 09 September 2013 - 10:36 AM

If he said 'markers', that sounds to me like he meens genetic markes? I know they test for two different genetic markers that most people with celiac (and quite a few others) have, maybe he thinks/knows that there are more markers that celiacs' have in common, but they can not test fro them?


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#5 mydearmartha

 
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Posted 10 September 2013 - 12:56 PM

Thanks, y'all! I don't think I ever received the test results from my GI, so I've requested copies of all of my records and I'm waiting for those to come back to me. I'll let y'all know what I find.


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