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Other Food Intolerances / Allergies?
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Hi all,

 

I've recently been diagnosed with Celiac and am basically a sponge for knowledge at the moment! Sorry for yet another question!

 

I keep reading about other food intolerances and allergies in people with Celiac disease. Are these issues that were present before Celiac or because of Celiac? In other words, is there a higher likelihood of developing some new, additional issues with food that I've never had before?

 

Also, how do you know if you have a food intolerance or allergy? I know I'm allergic to shellfish because I have had reactions in the past and had a test at the allergist. But how would I know what to get a test for, if I don't have any reactions to other foods?

 

If there is a higher likelihood of other food issues with Celiac, is there anything I can do to prevent them or reduce my chances of developing these issues?

 

My Celiac seems to be largely "silent" aside from acid reflux controlled by medication - so I really don't know when I'm having a reaction.

 

Help! Thanks.

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An allergy is more along the lines of hives/swelling and the like. An intolerance can sometimes cause stomach issues, joint pain, headaches, and so on.

 

There really isn't anything you can do to prevent them. For example, i am intolerant to sweet potatoes and onions. I am allergic to tomatoes and possibly green beans.

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The things we are MOST likely to be intolerant to are soy, oats (even gluten-free oats), corn, and nightshades. Some of us also have trouble with eggs and nuts.

 

I don't know if avoiding these things while you are healing might prevent problems or not, but you could be our guinea pig! :lol: (sorry).

 

I discovered my corn intolerance quite soon after going gluten-free when I made a big batch of gluten-free cornbread. I have often wondered, if I hadn't done that would the intolerance never have reared its ugly head? I don't know.

 

The thing is, there is no reliable testing available for intolerances. The only way to really tell is to keep a food and symptom diary. If you are already eating all of these things without symptoms, I wouldn't worry about it. LOTS of celiacs never develop other intolerances. But if you DO find yourself having symptoms of something being wrong, you could drop all of these foods until you feel better, then add back one a week until you find the one that's hurting you.

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The things we are MOST likely to be intolerant to are soy, oats (even gluten-free oats), corn, and nightshades. Some of us also have trouble with eggs and nuts.

 

I don't know if avoiding these things while you are healing might prevent problems or not, but you could be our guinea pig! :lol: (sorry).

 

I discovered my corn intolerance quite soon after going gluten-free when I made a big batch of gluten-free cornbread. I have often wondered, if I hadn't done that would the intolerance never have reared its ugly head? I don't know.

 

The thing is, there is no reliable testing available for intolerances. The only way to really tell is to keep a food and symptom diary. If you are already eating all of these things without symptoms, I wouldn't worry about it. LOTS of celiacs never develop other intolerances. But if you DO find yourself having symptoms of something being wrong, you could drop all of these foods until you feel better, then add back one a week until you find the one that's hurting you.

And to add to this dairy.....evil dairy....lol :P

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I knew I was forgetting something. :huh:

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Shoot, I do that all the time :D (so many intolerances, so little time...and memory to remember all of them..lol)

 

I knew I was forgetting something. :huh:

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I have been questioning celiac disease treatment for some time as I was diagnosed with an antibody count of over 800. I think 10 is supposed to be high? Maybe someone can confirm that.

 

Since going onto the prescribed treatment of 100% gluten-free I have encountered a multitude of food intolerences - oats, all dairy, eggs, soya, pears, grapes etc. I have to ask why? I do not believe in coincidences of this magnitude but I cannot find any evidence of any research into celiac disease "treatment" - only a plethora of celiac disease "Diagnosis" research projects.

 

I am interested in hearing from any celiac disease sufferer if they have encoutered similar intolerences.

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I went glutenfree in 2004 and about two years ago I started to get kidney pain every once in a while. Just last month during the course of an important audition I frantically tried to get rid of the bags under my eyes with make up, which didn't work. I suck at makeup. So I came to conclusion, that it must be some kind of allergy. I went entirely dairy free about a month ago and today I drank a hot cocoa and ate a Nutella bread, and wouldn't you think... brain fog, extreme fatigue, and kidney pain a few minutes after eating it. :(

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Oh, and another symptom I forgot about until it hit me right now. It's not really asthma, but more like a "one-single-lung-cramp-every-20-minutes-or-so"-thing. It's really annoying.

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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