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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Questions To Ask Dietician
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Hi all,

 

I'm meeting a dietician tomorrow. This will be my first meeting with a dietician since being diagnosed with Celiac. I've put together this list of questions for her, but wondered if anyone else had any suggestions for good questions to ask (or that you might like an answer to!). Here's my list! Feedback appreciated.

 

 

  • Are there any foods that are known to aid in healing of the intestinal lining in Celiacs? If not, are there any foods in particular that are generally known to aid in healing? Are there any foods known to reduce inflammation associated with Celiac Disease?
  • What nutrient and mineral deficiencies do I need to be particularly aware of and what foods should I be eating to guard against them? What about probiotics or digestive enzymes?
  • Are there any vitamin or mineral supplements you recommend?
  • We are hoping to try and have a baby in the near future. I would like to make sure my body is as healthy as possible. Given the larger-than-normal risks for nutrient deficiencies due to malabsorption from Celiac, and lack of eating fortified foods like pasta, what foods should I be increasing in my diet? Should I be considering any gluten-free supplements? If so, which do you recommend? If I become pregnant, are there any other dietary changes I should make at that time?
  • How many times a week should I be eating “safe” grains like quinoa and brown rice?
  • I understand that a large number of people with Celiac disease develop temporary lactose intolerance as a result of the damage to their stomach lining. Is this something I need to be concerned about if I don’t seem to have any symptoms? What are your recommendations in this regard? Should I be tested for this?
  • I’m concerned about weight gain. Is this something that I need to be worried about if I’m eating a healthy diet with a limited amount of processed gluten-free food? Is it likely I would gain weight just given normal nutrient absorption I would expect to experience as I start to heal?
  • I’ve read that other foods like corn and soy can have a similar effect on your body to wheat. Is this the case? If so, will I put myself at further risk if I continue to eat these foods?
  • In your experience, is there any merit to the idea of “gluten cross reactivity” with other foods? From what I understand, testing for this is highly controversial and there is little scientific evidence to back this theory.
  • In your experience, is there anything to the “rotation diet” as a mechanism to prevent additional food allergies from developing?
  • What’s your position on smoothies? Good for fast absorption, or lacking important fibre and too much sugar going too quickly into the bloodstream?
  • How do you feel about oats (certified gluten-free) and other grains in early stages of healing from Celiac?
  • Is being hungry often a symptom of malabsorption?

 

 

 

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that seems like a good list, josie - i am curious as to how many answers you will get from him/her.  i was recommended to a dietician/nutritionist but it was going to be like 3 weeks before i could get in for an appointment.  i had to feed myself in between that time and then the day before my appt, they postponed it!  by that time, i was already here and learned on the way.....  so, i cancelled the appointment.  but i am still curious!  let us know what they say/how well versed they are in regards to celiac :)  good luck!

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that seems like a good list, josie - i am curious as to how many answers you will get from him/her.  i was recommended to a dietician/nutritionist but it was going to be like 3 weeks before i could get in for an appointment.  i had to feed myself in between that time and then the day before my appt, they postponed it!  by that time, i was already here and learned on the way.....  so, i cancelled the appointment.  but i am still curious!  let us know what they say/how well versed they are in regards to celiac :)  good luck!

 

Thanks. She's one of my country's leading dieticians with a specialty in Celiac Disease, so I'm hopeful she'll be knowledgeable.

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Thanks. She's one of my country's leading dieticians with a specialty in Celiac Disease, so I'm hopeful she'll be knowledgeable.

Oh, that sounds interesting.  Let us know how it goes.

 

D

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My first question would be ~ How many celiacs have you counseled.  You said she specializes so you may be ahead of the ball game there.  My experience was being handed a stack of papers from the internet. 

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    • Will my doctor test me? So many symptoms...
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    • Weird Reaction
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    • Will my doctor test me? So many symptoms...
      Welcome, @iwillmoveamountain! Of course you are not wrong to pursue getting testing for celiac. My advice is to drop that doctor and find a new one, preferably one who is celiac savvy, and who will listen to you and test you for the disease.  
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