Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Questions To Ask Dietician
0

5 posts in this topic

Hi all,

 

I'm meeting a dietician tomorrow. This will be my first meeting with a dietician since being diagnosed with Celiac. I've put together this list of questions for her, but wondered if anyone else had any suggestions for good questions to ask (or that you might like an answer to!). Here's my list! Feedback appreciated.

 

 

  • Are there any foods that are known to aid in healing of the intestinal lining in Celiacs? If not, are there any foods in particular that are generally known to aid in healing? Are there any foods known to reduce inflammation associated with Celiac Disease?
  • What nutrient and mineral deficiencies do I need to be particularly aware of and what foods should I be eating to guard against them? What about probiotics or digestive enzymes?
  • Are there any vitamin or mineral supplements you recommend?
  • We are hoping to try and have a baby in the near future. I would like to make sure my body is as healthy as possible. Given the larger-than-normal risks for nutrient deficiencies due to malabsorption from Celiac, and lack of eating fortified foods like pasta, what foods should I be increasing in my diet? Should I be considering any gluten-free supplements? If so, which do you recommend? If I become pregnant, are there any other dietary changes I should make at that time?
  • How many times a week should I be eating “safe” grains like quinoa and brown rice?
  • I understand that a large number of people with Celiac disease develop temporary lactose intolerance as a result of the damage to their stomach lining. Is this something I need to be concerned about if I don’t seem to have any symptoms? What are your recommendations in this regard? Should I be tested for this?
  • I’m concerned about weight gain. Is this something that I need to be worried about if I’m eating a healthy diet with a limited amount of processed gluten-free food? Is it likely I would gain weight just given normal nutrient absorption I would expect to experience as I start to heal?
  • I’ve read that other foods like corn and soy can have a similar effect on your body to wheat. Is this the case? If so, will I put myself at further risk if I continue to eat these foods?
  • In your experience, is there any merit to the idea of “gluten cross reactivity” with other foods? From what I understand, testing for this is highly controversial and there is little scientific evidence to back this theory.
  • In your experience, is there anything to the “rotation diet” as a mechanism to prevent additional food allergies from developing?
  • What’s your position on smoothies? Good for fast absorption, or lacking important fibre and too much sugar going too quickly into the bloodstream?
  • How do you feel about oats (certified gluten-free) and other grains in early stages of healing from Celiac?
  • Is being hungry often a symptom of malabsorption?

 

 

 

1

Share this post


Link to post
Share on other sites


Ads by Google:

that seems like a good list, josie - i am curious as to how many answers you will get from him/her.  i was recommended to a dietician/nutritionist but it was going to be like 3 weeks before i could get in for an appointment.  i had to feed myself in between that time and then the day before my appt, they postponed it!  by that time, i was already here and learned on the way.....  so, i cancelled the appointment.  but i am still curious!  let us know what they say/how well versed they are in regards to celiac :)  good luck!

0

Share this post


Link to post
Share on other sites

that seems like a good list, josie - i am curious as to how many answers you will get from him/her.  i was recommended to a dietician/nutritionist but it was going to be like 3 weeks before i could get in for an appointment.  i had to feed myself in between that time and then the day before my appt, they postponed it!  by that time, i was already here and learned on the way.....  so, i cancelled the appointment.  but i am still curious!  let us know what they say/how well versed they are in regards to celiac :)  good luck!

 

Thanks. She's one of my country's leading dieticians with a specialty in Celiac Disease, so I'm hopeful she'll be knowledgeable.

0

Share this post


Link to post
Share on other sites

Thanks. She's one of my country's leading dieticians with a specialty in Celiac Disease, so I'm hopeful she'll be knowledgeable.

Oh, that sounds interesting.  Let us know how it goes.

 

D

0

Share this post


Link to post
Share on other sites

My first question would be ~ How many celiacs have you counseled.  You said she specializes so you may be ahead of the ball game there.  My experience was being handed a stack of papers from the internet. 

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,595
    • Total Posts
      918,302
  • Topics

  • Posts

    • Oat Flour making me sick?
      Hi CeliacMommaX2, 'Yes, you must treat oats like wheat in a situation where gluten free oats cause the same response. I would also not use pots or pans for your daughter, that you have cooked oats in, as there is always a chance that there are traces left in the pans after washing up.  It's better safe than sorry. 
    • In Dire Need Of Help
      Alex the good news is you have found a great site with useful information and warm support! You need to work with your doctor to get a diagnosis but there are plenty here who have had similar experiences: http://www.celiac.com/gluten-free/search/?&q=panic%20attack so it sounds like your on the right lines   Take heart that you have probably found the cause now rather than later.  Follow CyclingLady's excellent advice above and go for celiac screening asap. For tests to work you need to be eating gluten for some time. That is a scary prospect when you've finally experienced some relief but it's for a limited time period, you can get support here along the way and if you choose to you can go gluten-free at the end and get relief whatever the results.  Once you're done testing and off the gluten you will be in a much better position to nail the lifestyle. That may mean some pre-planning, maybe taking a backpack with some gluten-free snacks with you, at least until you find the places you can reliably eat at. There are apps and sites that can help and probably local support groups in NYC as well: https://www.google.co.uk/?ion=1&espv=2#q=new%20york%20gluten%20free%20restaurants With research you'll also get to know what fast food options are viable, what readily available candy bars are ok etc. I can eat Mcdonalds fries for instance, which can come in handy if I'm away from my kitchen or supplies. Most starbucks or equivalents will have at least a gluten-free snack bar. So although a pain in the arse, it's doable and the health payoffs MORE than make up for the hassle.  Good luck! 
    • to biopsy or not?
      I ordered the cookbook the same day you recommended it.  I am SO excited!  I actually cried looking through the book!  I honestly don't believe I am good at all in the kitchen.  I am lucky enough to have a husband who cooks everything when he's home.  The only thing I felt skilled at in the kitchen was baking.  I made all of my kids' birthday cakes for the last 8 years.  I was sad thinking that we wouldn't have anything good for a birthday cake.  I mean, I've tried gluten free cake from a box, but it was just ok.  It wasn't amazing the way a homemade cake can be.  So now I have hope.  Hope that maybe my non-celiac kids will enjoy a birthday cake still.  My daughter (the most-likely-to-be-celiac one) never really ate birthday cake to begin with.   So this summer is her birthday and we will find out if it's good!  Thank you for the recommendation!!!   Janis
    • antibiotic for my 6 year old- could it have gluten?
      It is probably fine.  Very few meds actually have gluten.   shows as gluten-free on this list  http://www.glutenfreedrugs.com/list.htm
    • antibiotic for my 6 year old- could it have gluten?
      My 6 year old just got prescribed an antibiotic (keflex) and is the liquid pink stuff they give kids.  I just realized I didn't ask if it was gluten free when I picked it up from the pharmacy!  Anyone know if I should be concerned?  Does that pink stuff have gluten?
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,697
    • Most Online
      1,763

    Newest Member
    deandrade
    Joined