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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Help Behaviour Problems
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5 posts in this topic

Hi

 

My daughter now 9 years was diagnosed with coeliac when she was 18 months old. She has a severe case and we are always extremely careful as she reacts badly to any amount of gluten.

 

Anyway about 4 weeks ago she went to a pizza party and the parents informed me where they were getting it from and the gluten free option was available anyway it turns out they didn't order correction and when she got home she was so sick, she has never eaten that much gluten before (or since she was diagnosed).

 

Her behaviour was appauling, after then she just couldn't compromise with anyone and would get so upset and 'crazy' about strange things. Anyway two weeks later my mum gave her the wrong biscuit by mistake and luckily she only had one bite (she didn't like it) and it was very low gluten, but when I picked her up from dancing that night she was vomitting all over the steps (at that point is when I checked what she ate and figured out she ate the wrong thing).

 

Anyway this was two weeks ago now and her behaviour is still really bad. She is the oldest of 4 kids and when her behaviour goes bad I Find it is carried down to the others. I am finding it really hard to cope with this.  

 

I know she has just had a spot of really bad luck and she usually will have no gluten at all, but I just wanted to know if other kids go like this when they have gluten?? Is there anything that helps them recover from the gluten?

 

Thanks

 

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Oh goodness! Poor thing. Hope she's feeling better soon. Wish I knew something to ease the symptoms. :(

 

My little guy when he gets glutened.....first he starts getting weepy. You know, the whole my brother looked at me when I didn't want him to and the sky is blue today and I got my favorite treat but not at the right time and now all I can do is cry, kind of weepy. It's good fun....really. :/

 

Then his stomach starts to hurt. Which causes more weepiness.

 

Then he gets ANGRY. And with angry comes sassy. Then the extra trips to the bathroom start. :/ Oy.

 

So, in a nutshell, yes. I see behavior symptoms with ingesting gluten. I think they're almost worse than the sickness symptoms. Except *I* personally hate being sick like that so I wouldn't wish it on anyone.

Hopefully, it's all out of her system soon. Maybe after this episode is over, sit her down and talk to her about her behavior when she eats gluten. I don't think she has full control over it but it may help if you point it out and how it made you feel. Maybe if she knows about it she can attempt to stave it off a bit. Or maybe start a system in which once you say a key word or tell her straight up she needs to go spend some alone time....maybe that would help? I know it's harder when the younger ones start acting up because their eldest sibling (leader) is acting up. Hugs!

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My 4 year old grandson ate a hotdog and that night , his dad asked him to pick his clothes up. My grandson went ballistic! He started screaming and yelling and was then sent to bed. He screamed for hrs. My daughter then realized the hotdog had gluten in it. So what do you do? It wasn't his fault? But do you condone the bad behavior because it was an accidental Glutening? He knows better than to talk to his dad like that. What do you do? 

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My son will have physical symptoms for a couple of day, but unfortunately, the behavior can last a month.  Tantrums at the drop of a hat (socks don't fit right, legos won't stay together, backpack zipper not fast enough, etc. etc.)  

 

It doesn't happen often (2X in 2 years) but it is horrible.  I talked to his doctor about what to do when he is older.  (handling an 8 year old tantrum is doable, but what happens when he is 15 and 150 pounds?)  She suggested a therapist to help him learn some coping techniques, but I don't know if we are wasting her time.  For the most part, he is a delightful kid, so it is weird to be going to a behaviorist once a month. Also, he doesn't really think rationally when he is "glutened" so I'm not sure he will try anything he has learned.  We also can't really "test" to see if it is helpful, because he is so good with his diet.

 

I imagine there will be more opportunities to make mistakes when he is a teenager and eating more of his meals away from home.

 

Behavior problems are the #1 symptom of celiac in young children.

 

Cara

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It is so hard when it affects children! My 4yo Grand some just had a birthday party. His mom is very good and makes everything Gluten Free. It is so wonderful now go over there and not have to worry about Gluten. Also they come over here and not worry about Gluten. 

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    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
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      I have not. I'll talk to my doctor about it
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