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Am I Going Crazy?


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23 replies to this topic

#1 Jen85

 
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Posted 23 September 2013 - 01:59 PM

Hey everyone-

 

I am starting to feel like I am seriously going crazy? I have been diagnosed with celiac disease a year ago and after some struggle I  seem to be doing great with my gluten free diet now. It is so nice not to go through a day without feeling sick to my stomach anymore. BUT i am having some other issues and I'm hoping someone can give me some advice on if this has something to do with having celiac or if I'm going crazy. I am 27 years old I just got married we have three kids. My life is not overly stressful. I think I live a pretty happy life. But I will cry at the drop of a dime if someone looks at me wrong somedays? I am OVERLY emotional, I am starting to stutter when I speak to people I don't know or if I am nervous about something. I can remember things that happened 3 years ago but have a hard time remembering conversations i had 2 days ago and its getting progressively worse. I just feel like I am off and I can't explain it to anyone with out sounding like a mental case. Does anyone else suffer from any of these symptoms, Please Help


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#2 bartfull

 
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Posted 23 September 2013 - 02:28 PM

Have you had your vitamin levels checked? If you have deficiencies, that could be the problem. B12 in particular, can be a problem. Even if you eat right and take a multi, it's hard for us to absorb enough. They make sublingual tablets that really help.


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gluten-free since June, 2011

Can't eat soy, corn, or foods high in salicylates.

Nightshades now seem to bother me too.

 

BUT I CAN STILL PLAY MY GUITAR AND THAT"S ALL THAT MATTERS!

 


#3 w8in4dave

 
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Posted 23 September 2013 - 05:20 PM

Make sure they are Gluten free!! I bought some the other day. Looked just like the ones I had at home and pffttt they say Contains Wheat Pffttt !! So I have a friend I can give them to :) 


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DX'd June 17th 2013


#4 Jen85

 
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Posted 24 September 2013 - 08:25 AM

I take B12, K, D, calcium and Iron and they are all gluten free. It is getting so frustrating. I feel like I am in a constant fog. I am ready to quit my job. Not having a good memory is making it difficult to get my job done at this point. I am runnign to the bathroom multiple times a day to hide the fact that I am in tears. I was never like that before. My husband can send me a simple text that says I love you and I am tearing up. It is frustrating becasue after the fact I'm like that was really stupid and get mad that Im letting things get to me like this. And the stuttering is getting embarrassing I notice I am starting to become the Shy girl because of it. THAT IS NOT ME. I'm out going and loud and fun. What happened??? GRRRRR


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#5 Pegleg84

 
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Posted 24 September 2013 - 08:27 AM

For me, anxiety with no reason is always a sign that either I got glutened, or something else is off. It was one of my more serious symptoms before going gluten free. Thankfully, I only have a real "attack" maybe once a year or so. That's a big change from once a month and feeling iffy all the time.

Anyway, B12 definitely helps, and Vitamin D (especially in the winter), but get your levels checked out before supplementing, and talk to your doctor about the right dosage. We Celiacs tend to need a slightly higher dosage because we don't absorb things as easily, but also don't want to overdo it.

It's always a good idea to check around for hidden gluten, and, of course, maybe have a good talk with someone you trust to make sure there's nothing emotionally that could be contributing to it. I know what it feel like to be stressed/anxious about something in particular, and expecially what it's like to be anxious for no reason at all. There's a difference.

 

Anyway, no, you're not crazy. Look into what your body is missing/getting too much of, and hopefully it'll all straighten out.

Cheers


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~ Be a light unto yourself. ~ - The Buddha

- Gluten-free since March 2009 (not officially diagnosed, but most likely Celiac). Symptoms have greatly improved or disappeared since.
- Soy intolerant. Dairy free (likely casein intolerant). Problems with eggs, quinoa, brown rice

- mild gastritis seen on endoscopy Oct 2012. Not sure if healed or not.
- Family members with Celiac: Mother, sister, aunt on mother's side, aunt and uncle on father's side, more being diagnosed every year.


#6 Pegleg84

 
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Posted 24 September 2013 - 08:30 AM

Sorry, Jen, I was typing at the same time.

It's also possible that you could be developing another intolerance. Are you having symptoms other than the anxiety and brain fog? As I said, check everywhere possible for hidden gluten, but also think about things like dairy, soy, etc. Anxiety SUCKS, and when you can't pin it to something it's even worse.


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~ Be a light unto yourself. ~ - The Buddha

- Gluten-free since March 2009 (not officially diagnosed, but most likely Celiac). Symptoms have greatly improved or disappeared since.
- Soy intolerant. Dairy free (likely casein intolerant). Problems with eggs, quinoa, brown rice

- mild gastritis seen on endoscopy Oct 2012. Not sure if healed or not.
- Family members with Celiac: Mother, sister, aunt on mother's side, aunt and uncle on father's side, more being diagnosed every year.


#7 Jen85

 
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Posted 24 September 2013 - 08:43 AM

I will check around maybe I am missing something....The only symptoms I am experienceing right now. Is extreme fatigue which i have just grown to be used to, the crazy emotions, the stuttering and slurring speach, clumsy, the brain fog, and i guess i have been getting migranes lately just the past couple of days tho. You know it's one thing that i notice it but when my husband comes to me and says i think there is something wrong your emotions are a little out of control it really bothers me. He is the sweetest man and would do anything for me to make me feel better but he is worried which of course makes me even more emotional lol. UGH this is getting over whelming


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#8 notme!

 
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Posted 24 September 2013 - 09:00 AM

sounds like you are still getting gluten from somewhere?  maybe not every day, but just enough to keep you messed up.  before i was diagnosed, i would just fall down.  for no reason.  or just drop stuff, my muscles were out of my control.  and gluten makes me sad and crazy....... 

 

that being said:  sweetie, have you gone to the doctor in case you really do need some help?  i would look around and find somebody who understands that gluten can affect your nervous system.   how much "me" time do you get?  can you get some time alone when you feel down and maybe take a walk in the woods or something?  it sounds like you have a wonderful husband who loves you lots :)  so, maybe some ;);)  - you know, get some - can't hurt and it boosts all your good chemicals in your brain :) 

 

i hope you feel better ((((HUGS)))))


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arlene

misdiagnosed for 25 years!
just as i was getting my affairs in order to die of malnutrition...
gluten free 7/2010
blood test negative
celiac confirmed by endoscopy 9/2010

 

only YOU can prevent forest fires - smokey t. bear

 

have a nice day :)

Celiac.com - Celiac Disease Board Moderator


#9 cyclinglady

 
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Posted 24 September 2013 - 09:07 AM

I'm adding my two cents -- I think you're getting a small amount of gluten.  How's your daughter doing?  Is she having symptoms too?  


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#10 Jen85

 
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Posted 24 September 2013 - 09:24 AM

sounds like you are still getting gluten from somewhere?  maybe not every day, but just enough to keep you messed up.  before i was diagnosed, i would just fall down.  for no reason.  or just drop stuff, my muscles were out of my control.  and gluten makes me sad and crazy....... 

 

that being said:  sweetie, have you gone to the doctor in case you really do need some help?  i would look around and find somebody who understands that gluten can affect your nervous system.   how much "me" time do you get?  can you get some time alone when you feel down and maybe take a walk in the woods or something?  it sounds like you have a wonderful husband who loves you lots :)  so, maybe some ;);)  - you know, get some - can't hurt and it boosts all your good chemicals in your brain :)

 

i hope you feel better ((((HUGS)))))

 

 

I haven't been to the doctors because my husband currently started a new job and we unfortuanately are waiting for insurance to kick in. When I get time alone is the worst because that's when I become a complete basket case lol. It is now hunting season so my husband is gone a little bit more and every other weekends  our kids go to their other parents so I am all alone every other saturday for most of the day which i thought would be great ...ummmm NO. I get upset with my husband about not spending time with me. I make plans and then back out on my friends because I am too tired or just don't feel like it. My husband spends pretty much all of his time outside of work with me except for this one day every other week. SO he deserves it. This is his hobby and its what makes him happy. Sometimes i feel like when I am all emotional it's like a complete out of body experience but then i'll snap out of it and be fine and happy and in a great mood. I really dont get it. I know i sound crazy when i talk about it but i don't feel crazy i just feel like there is something off and i cant figure out how to fix it.


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#11 Jen85

 
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Posted 24 September 2013 - 09:29 AM

I'm adding my two cents -- I think you're getting a small amount of gluten.  How's your daughter doing?  Is she having symptoms too?  

 

 

My daughter gets a lot of stomach aches and she has psorasis...but i had her blood work done and they found nothing. Now at my house pretty much every one eats gluten free with out realizing it because i do the cooking...unless they go and make themselves a sandwich or something. I do not make them eat gluten free but if they are eating what i am cooking its gluten free whether they realize it or not. But at her dad's its all kinds of bread and pasta and i feel that there is an issue there but my ex doesnt believe it but thats a whole other issue lol.


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#12 bartfull

 
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Posted 24 September 2013 - 10:58 AM

It could be something as simple as one of the family "double dipping" in the mayo or what have you, when they make a sandwich. They might not want to mention it because they don't think it would hurt, and "Mom's already emotional enough". Or it could be kissing your husband after he eats a sandwich. Or the kids after they have been eating gluten.

 

And psoriasis IS a symptom of celiac. I know. I have it, and after going gluten-free it went away. It comes back if I've been glutened.


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gluten-free since June, 2011

Can't eat soy, corn, or foods high in salicylates.

Nightshades now seem to bother me too.

 

BUT I CAN STILL PLAY MY GUITAR AND THAT"S ALL THAT MATTERS!

 


#13 Jen85

 
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Posted 24 September 2013 - 11:25 AM

It could be something as simple as one of the family "double dipping" in the mayo or what have you, when they make a sandwich. They might not want to mention it because they don't think it would hurt, and "Mom's already emotional enough". Or it could be kissing your husband after he eats a sandwich. Or the kids after they have been eating gluten.

 

And psoriasis IS a symptom of celiac. I know. I have it, and after going gluten-free it went away. It comes back if I've been glutened.

Well now i will have to investigate farther because whatever it is i need to find it and get rid of it. Thanks for all the advice. I have the psorasis too...i know she will eventually diagnosed with celiac but of course when the blood work came back negative her doctor and dad both just looked at me like i was crazy.


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#14 notme!

 
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Posted 24 September 2013 - 11:59 AM

I haven't been to the doctors because my husband currently started a new job and we unfortuanately are waiting for insurance to kick in. When I get time alone is the worst because that's when I become a complete basket case lol. It is now hunting season so my husband is gone a little bit more and every other weekends  our kids go to their other parents so I am all alone every other saturday for most of the day which i thought would be great ...ummmm NO. I get upset with my husband about not spending time with me. I make plans and then back out on my friends because I am too tired or just don't feel like it. My husband spends pretty much all of his time outside of work with me except for this one day every other week. SO he deserves it. This is his hobby and its what makes him happy. Sometimes i feel like when I am all emotional it's like a complete out of body experience but then i'll snap out of it and be fine and happy and in a great mood. I really dont get it. I know i sound crazy when i talk about it but i don't feel crazy i just feel like there is something off and i cant figure out how to fix it.

i likes my alone time - maybe because my house is like grand central.  i got a few things done this morning, but at 2 i go and pick up the grandkid, 2:20 my neighbor comes over to borrow a drill, which involves txtng husband (where is your drilll) climbing up in carriage house rafters to retrieve said drill, figuring out how to unlock the safety thingy, annnnd (this is the longest part) listening to her latest story about her youngest.  so then she leaves, and my sil arrives....... it's 330 and i am just now eating my lunch lolz

 

i am married to a hunter, too - for years YEARS! i would start a huge fight with him before he went hunting.  why?  i finally figured it out:  he spent sooooo much time and effort (and forethought!) getting ready.  i mean, this is a guy who can't decide what he wants for dinner and here he is, WEEKS beforehand, making lists and sub-lists, he does his own reloading so his bullets are *perfect* - FIVE DAYS before he is slated to go his bags are packed precisely.  drove me nuts but worse was it was a major stresser to our marriage.  we had a huge fight, a huge talk, and i was out of line.  you are right, he works hard and he deserves to go enjoy something he is obviously passionate about.  i was just jealous that he could feel that strongly about something that didn't involve me.  so, now we say a prayer (i still miss him because he gets zero cell service where he hunts) and every year he has been fortunate enough to get venison to fill the freezer.  i still do the wah poor me's, but i wait until he's gone LOLZ

 

and i feel for you about your daughter - at least you have a say because you're in a position of authority.  my grandson would probably benefit from a gluten free diet, but they had him tested (i don't even know what test :( ) and it came back negative.  so:  the end.  i can keep him gluten free when he is here because i have him during the week so they can work, but when he goes back to them he will be glutened and all is for naught. 

 

keep a food journal and write down everything that passes your lips!  even the kissing and such.  have you changed your shampoos/personal care items?  lip gloss and the like.   new cutting boards for the kitchen, wooden spoons, etc.  

 

i had a very hard time learning not to lick my fingers.......  <_<   dumbest thing ever.  but it was keeping me sick and i did it so absent mindedly that i hardly remembered doing it.


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arlene

misdiagnosed for 25 years!
just as i was getting my affairs in order to die of malnutrition...
gluten free 7/2010
blood test negative
celiac confirmed by endoscopy 9/2010

 

only YOU can prevent forest fires - smokey t. bear

 

have a nice day :)

Celiac.com - Celiac Disease Board Moderator


#15 notme!

 
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Posted 24 September 2013 - 12:02 PM

oh, and hand sanitizer is not your friend - use soap & water.  that was a stumbling point for me, too.  hand sanitizer won't get rid of gluten, just makes it really germ-free gluten :)  you have to wash it off :)


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arlene

misdiagnosed for 25 years!
just as i was getting my affairs in order to die of malnutrition...
gluten free 7/2010
blood test negative
celiac confirmed by endoscopy 9/2010

 

only YOU can prevent forest fires - smokey t. bear

 

have a nice day :)

Celiac.com - Celiac Disease Board Moderator





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