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Am I Going Crazy?


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23 replies to this topic

#16 Pegleg84

 
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Posted 25 September 2013 - 08:14 AM

Yep, it really does sound like something (likely gluten) is sneaking in somewhere. It just takes a tiny bit. Give your hub/kids a good lecture on keeping things gluten free (so mommy doesn't get more crazy! that's a good enough threat)

I'm going through a bit of a rough patch myself right now, just up and down, emotional out of the blue, nothing serious, but I put it down to a: something I ate, and b: change of season. Kind of depressing.

Anyway, aside from finding and eradicating the culprit, if being alone makes it worse, then you'll have to find a good distraction. Go for a walk, plan to do the shopping, go out for coffee, sit around with a good book or a good movie. I need my alone time, but sometimes getting out is the best thing.

I've been there, and you're not alone. But you'll get on top of it.


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~ Be a light unto yourself. ~ - The Buddha

- Gluten-free since March 2009 (not officially diagnosed, but most likely Celiac). Symptoms have greatly improved or disappeared since.
- Soy intolerant. Dairy free (likely casein intolerant). Problems with eggs, quinoa, brown rice

- mild gastritis seen on endoscopy Oct 2012. Not sure if healed or not.
- Family members with Celiac: Mother, sister, aunt on mother's side, aunt and uncle on father's side, more being diagnosed every year.


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#17 anti-soprano

 
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Posted 25 September 2013 - 07:29 PM

Dear Jen,
I sincerely hope these symptoms are merely being caused by gluten that is making it into your diet uninvited. However, if you don't find a source of CC quickly, please go directly to the doctor in case this has nothing at all to do with gluten. My husband has had some serious issues with his brain and I have seen many neurologists with him. Your list of symptoms (mood changes, speech difficulties, short term memory loss, trouble concentrating) are alarming to me. It's true that these things can occur with gluten exposure. In fact, one of my main symptoms is anxiety during a glutening. But not every health issue we encounter will be caused by gluten, although it will always be more likely. Please see a doc if you can't figure it out sooner rather than later.
All my best,
Shellie
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#18 anti-soprano

 
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Posted 25 September 2013 - 07:33 PM

Just reread another of your posts: slurred speech, clumsy, migraines. I don't mean to alarm you, but Please get to a doctor. Sirens are going off for me...
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#19 IrishHeart

 
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Posted 26 September 2013 - 04:37 AM

Slurred speech and migraines, brain fog and loss of motor coordination surely sounds like gluten ataxia to me.

 

If you already had those symptoms before diagnosis, it would make sense they are still lingering.

but increased symptoms mean something else may be going on (or possibly, you are not gluten free enough--meaning gluten is sneaking in somehow)  This is entirely possible living with gluten eaters who may not be very careful.

 

However, it may not just be low doses of CC, but rather, something else going on. 

You should see a doctor to be checked out when your insurance is in place.

 

You may have to lay the down the law about how food is prepared in your kitchen and that your area is safe from contamination, otherwide, this

may continue.

 

I know how bad this makes you feel because I lived it myself for 3 years before DX --and it is not fun at all.-- :( But if it is related to gluten exposure, these symptoms may very well resolve shortly. .


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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#20 anti-soprano

 
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Posted 26 September 2013 - 08:28 AM

Slurred speech and migraines, brain fog and loss of motor coordination surely sounds like gluten ataxia to me.

 

If you already had those symptoms before diagnosis, it would make sense they are still lingering.

but increased symptoms mean something else may be going on (or possibly, you are not gluten free enough--meaning gluten is sneaking in somehow)  This is entirely possible living with gluten eaters who may not be very careful.

 

However, it may not just be low doses of CC, but rather, something else going on. 

You should see a doctor to be checked out when your insurance is in place.

 

You may have to lay the down the law about how food is prepared in your kitchen and that your area is safe from contamination, otherwide, this

may continue.

 

I know how bad this makes you feel because I lived it myself for 3 years before DX --and it is not fun at all.-- :( But if it is related to gluten exposure, these symptoms may very well resolve shortly. .

IH-

Thanks for tempering my alarmist reaction!  I agree that these symptoms are not as concerning if Jen has already experienced them as part of her gluten reaction.  It would worry me more if they are new and she did not have them as part of her reaction before going gluten free.

Shellie


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#21 IrishHeart

 
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Posted 26 September 2013 - 08:53 AM

IH-

Thanks for tempering my alarmist reaction!  I agree that these symptoms are not as concerning if Jen has already experienced them as part of her gluten reaction.  It would worry me more if they are new and she did not have them as part of her reaction before going gluten free.

Shellie

I did not think your reaction was alarmist in any way, hon :) Not at all! I think it made great  sense.

and I think we said just about the same thing, really. In any case, I think she may need a second opinion--not just ours--if it continues

(after she has gluten-proofed her kitchen one more time)


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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#22 ragtag

 
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Posted 26 September 2013 - 12:46 PM

I'm currently struggling with a lot of the same issues: numbness, tingling, brain fog, feeling uncoordinated... feeling worse after being on the diet for almost 5 months. My last TTG test was negative, and my household is gluten free, so I suspect that my issues are not due to continued gluten exposure (at least not in quantities high enough to affect those antibodies). I'm currently looking for a neurologist that is versed in gluten issues. I found this on the U of C Celiac Center FAQ, and thought it might be of interest in this discussion:

 

http://www.curecelia...r-almost-a-year

 

Is it possible to have peripheral neurological symptoms develop after being a on a gluten free diet for almost a year?

Unfortunately, yes. Neurological signs/symptoms may appear even after the diet is started, and in some cases may not be influenced by the diet because they’ve been brewing in your body for quite a long time.


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#23 GFinDC

 
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Posted 27 September 2013 - 06:19 AM

Hi Jen,  I hope you feel better soon.  I suggest you do re-check everything for possible gluten cc.  But it may be time to look at other possible food intolerances also.  Things like soy, MSG, caffeine, food colorings etc.  Can you switch to an all whole foods diet for a while?  Leave out anything processed for a couple weeks and see if it helps.  A whole foods diet definitely won't hurt you, and may help.


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Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul

#24 Pegleg84

 
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Posted 27 September 2013 - 09:05 AM

yeah, if I was going to point at another food that could cause these problems, it would be soy. Soy makes me super brain-foggy and anxious. Not a good time.

But as Irish Heart said, if you didn't have these problems before gluten-free, and you're sure no gluten is getting in anywhere, best to talk to your doctor when you can and make sure nothing more serious is going on.


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~ Be a light unto yourself. ~ - The Buddha

- Gluten-free since March 2009 (not officially diagnosed, but most likely Celiac). Symptoms have greatly improved or disappeared since.
- Soy intolerant. Dairy free (likely casein intolerant). Problems with eggs, quinoa, brown rice

- mild gastritis seen on endoscopy Oct 2012. Not sure if healed or not.
- Family members with Celiac: Mother, sister, aunt on mother's side, aunt and uncle on father's side, more being diagnosed every year.





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