Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

What Tests I Do Have Done On 1 Year Old?
0

6 posts in this topic

Hi!

My baby is about to turn 1, tomorrow we have his appointment. He has had gluten for a month (I am celiac). He has had no visible signs of celiac and enjoying oats and puffed wheat often. For baby one I wanted the genetics test but was told he should be on gluten for a month then get tested for a reaction of the gluten (I can't remember the test names). However this doesn't tell me if he could get celiac in the future.

Anyway, would love to know what others recommend I should or shouldn't get the baby tested for with his 1 year blood work. Are there any resources available I could show his doctor? Their doctor is happy to read extra information etc.

Thanks. Typed with a 2 year old grabbing phone, sorry about mistakes.

0

Share this post


Link to post
Share on other sites


Ads by Google:

The tests for children are the same as for adults.  And, your right, if they are negative, you would have to keep testing throughout childhood.   If, however,  you choose to bring him up gluten free, the child would need to eat gluten before testing just like you have.  

 

Colleen 

0

Share this post


Link to post
Share on other sites

Gluten does not need to be consumed for the GENETIC test.  That can be done at any time.  All the rest need to be while on gluten. It's highly debated how much and for how long.  If the tests are negative, it is recommended they they be retested every 3 years OR if they become symptomatic. 

0

Share this post


Link to post
Share on other sites

We test our kids yearly.  They have run the celiac panel test on them each year.  We started around a year and a half and have done it every fall since my oldest was little.  Two are positive so far, two are not.  My husband is the Celiac, I am not.  I have allowed kids at home with me to have gluten when my husband was at work and when my oldest was at school, once he tested positive.  We now no longer allow gluten in the house, because the two youngest are at school and will have it there (school provides snack).  If they are going to test positive, that's enough exposure.  Once they go to K and bring their own snacks, we will send them to school with an occasional gluten snack to keep it in their systems to see what happens.  We really wonder how many will eventually have it.  I'm betting 3/4.

0

Share this post


Link to post
Share on other sites

We now no longer allow gluten in the house, because the two youngest are at school and will have it there (school provides snack).  If they are going to test positive, that's enough exposure.  

 

Can you provide references for this statement?  I have never seen anything concert on how much or for how long.  Standard recommendation I've seen tossed around here is a slice of bread daily for 2-3 months prior to testing.  

 

I'm surprised your insurance covers testing yearly. They usually follow recommendations from the Docs who say every 3 years.

0

Share this post


Link to post
Share on other sites




I've never heard of insurance companies refusing to pay, but this is my first time on a celiac board. Mine has never questioned it, so I assumed it was typical. My husbands gastro recommended we do this and our ped and pediatric gastro have agreed, so this is just how we have always done it. We have always had them eat gluten until they test positive, because out feeling is it keeps it in their systems which would trigger the response. Again, this isn't anything we've read it's just what we were recommended so we've done it this way. I have no reason to purposely keep my non celiac kids gluten-free, so if they have gluten at school or other places, I'm fine with it. Tey don't have it in our house. We waited over a year for our first two and then introduced the second two just prior to six months, based on new information we had read. Wee shall see if that changes anything. I don't believe it will. I honesty believe if you are going to get it, you're going to get it. My husband feels huge guilt about this, but it is what it is. It could be so much worse.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,352
    • Total Posts
      920,502
  • Topics

  • Posts

    • This is EXACTLY what happens to me. It has twice now and both times was after both glutening episodes but once it was the day after and the other time it was a week and a half. So I'm still not sure if it's related or strange bug bites...

      Did they stop happening when she stopped being glutened? Did you decide they were definitely related? I'm really confused by this and would love to know whether to insecticide my house or....
    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
    • I was tested for the full panel, I believe. I had normal values for t-transglutaminase (ttg) igg,t-transglutaminase (ttg) iga, deamidated gliadin abs igg, deamidated gliadin abs iga, and immunoglobulin a qn serum.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,416
    • Most Online
      1,763

    Newest Member
    djs2117
    Joined