Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

How Many Times Did Your Kid Test Neg Before Pos?
0

6 posts in this topic

My oldest had his first test at 18 months and then had three additional negative tests (yearly) before testing positive at 5 1/2.  My daughter tested negative three times before testing positive last week at 4 1/2.  My two littlest have so far tested negative three times, so I guess we are just waiting to see now!

 

Did/does anyone else test yearly?  My oldest had unusual symptoms, so we didn't figure out what was going on quickly.  My daughter, though, had the same symptoms her big brother had, so we just knew and expected her test to be positive.  So far, the younger two have no symptoms, but we keep wondering and waiting.

0

Share this post


Link to post
Share on other sites


Ads by Google:

I haven't tested my daughter yet.  Have you read any of the "The Patent Celiac" blogs on this forum?  They are written by Jebby who's a Pediatrician and has four small children.   Here's one about testing:

 

http://www.celiac.com/gluten-free/blog/1038/entry-1849-should-your-kids-be-screened-for-celiac-disease/

 

Read them all!  

0

Share this post


Link to post
Share on other sites

I haven't.  I've never heard of her before.  I read the testing one just now.  My kids had none of those symptoms (they presented rather unusually and with my first, we didn't even realize they were symptoms for months.  My second had the same, so we knew).  My husband is, though, so that's why we do it yearly.

0

Share this post


Link to post
Share on other sites

None.  She tested positive straight up but was 7 before I realised what was wrong.  Before that I had people telling me that it was my fault she was sick all the time.  My mum was not very nice about it, telling me that even though I thought the house was clean, it can't be cleaned good enough (I hired a professional cleaner for a $400 bond clean a number of times thinking I sucked at cleaning but she still got sick) so because the focus was always on what I must be doing wrong, it took a while to see that it was something else.

0

Share this post


Link to post
Share on other sites

My three boys tested negative last year (doctors would only do the tTG IgA) but because I have celiac disease, and two of my boys have some pretty obvious symptoms, we made our house gluten-free anyway. I'm glad I did because they are doing MUCH better now even though they never tested positive.

 

I'm of the opinion that if celiac disease is in the family, and someone has symptoms, then why wait to go gluten-free? The gluten-free diet can't hurt a child and often forces us parents to feed our children better because of the high cost (and sugar content) of gluten-free substitute foods.

 

Just my opinion though.  :)

0

Share this post


Link to post
Share on other sites




My two youngest tested negative, as did I. We had only been eating one slice of bread a day though for 2 weeks, so not sure if that was why, but my 6 year old came back very positive on that. With my youngest two, they also have low IgA, so we were told that a negative Celiacs test could be false because their low IgA could mess the test up. Stool tests have shown that they both have very bad guts, and some of the results with my youngest at 18 months, were indicative of Celiacs. The whole house is gluten-free, it just seems the responsible thing to do.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,688
    • Total Posts
      921,756
  • Topics

  • Posts

    • Do you mean something like a protein powder you could mix up?  A lot of them in the US seem to be gluten free.  Maybe just go to your local store and read all the labels?
    • Yeah I ended up allergic to corn, olives, sesame, whey, and peanuts and intolerant to dairy, soy, yeast, enzyme issues with breaking down meats, and egg yolks, along with extreme bloat with any kind of carbs/sugars in moderate amounts. And very adverse reactions to certain artificial sweeteners. So your not alone in all the other issues cropping up, it happens as our bodies adjust.  I eat a bunch of stir frys with veggies, egg whites, plenty of  avocados, and toasted and raw forms of almonds, coconut, cashews, walnuts, hemp seeds, pumpkin seeds, flax seeds, sancha inchi seeds, chia seeds, and sunflower seeds in all forms including making them into butters, spreads, and incorporating them into sauces.   Most meals are forms of soups, omelettes, and stir frys. I do the seeds and nuts on rotation same with my veggies and snack on fruits in small amounts along with some homemade baked goods I make for markets. I do suggest a rotation of foods, my dietician said I need to rotate my foods to prevent more issues, making sure I am off one one for at least 7-14 days at a time completely. I find changing up the spices and rotating my cuisine base works well. I also make puddings, and protein shakes along with nut/seed milks, and different bases and extract flavorings to get my random cravings Taken care of. Guess take what you can from this and and see how it can help you,    As to the tinging, I ended up with both B vitamin and magnesium deficiency issues, the magnesium one caused a fire like tingling in my arms, legs and back, along with muscle pain. Ended up on a doctors best powder form of it so I can dose it out right, and found epsom salt bathes helped.  
    • Hi, I've gained so much knowledge on this forum over the past few months, which I am so thankful for. I can see how much hell people are going through with this disease and it's so lovely to see how much support and advice people give to others on here. I'd like a little bit of reassurance and advice myself from anyone that can help. I've been gluten free for six months. Two weeks after going gluten free I realised I also had a problem with corn so cut out processed food. Over the following weeks and months I continually had problems with food; fruit, dairy, a lot of vegetables, nuts, soya....it's basically dwindled down to just eating potatoes (not white potatoes), cucumber, lettuce, small amounts of red onion, spring onion, sprouts and beetroot. There may be more things I could be okay with but to be honest I'm too scared to try.  Is this all normal? Am I an extreme case? I've been taking some digestive enzymes and probiotics for about six weeks, my acid reflux has dramatically decreased but I always have a lot of loud noises going on in my guts, I'm guessing this is the probiotics working.  I've lost nearly 3st in weight since this started - which I'm not complaining about as I was overweight due to thyroid problems. I've had loads of blood tests done recently, all organs are working 'great' according to my doctor, the only thing they've picked up on is ketones, I seem to be having a glucose problem, which might explain my exhaustion and weight loss. I also have permanent numbness and sometimes tingling in one of my legs and sometimes hands and one shoulder, I thought it could have vitamin B12 deficiency but that's okay according to blood tests. I would be greatful for any replies. Thanks for reading.
    • Hi everyone, I am doing job in restaurant at evening 5 to 12 during working hours no time to do a dinner. I'm thinking to make a shake but don't know the gluten free vitamin or supplement brand which one is good for me and easily available in Berlin Germany to make me fit cause last one week i feel weak. I'm 28 year old. Sincerely
    • Hey there just wanted to warn anyone that has other allergies- these crackers may not be a good choice! I'm mildly sensitive to MSG- I only react if there's a giant amount like in Chinese food or Ramen noodles, etc.  I literally have a to eat TONS of a the offending food before reacting.  Anyway, I was excited to try these Trader Joes pumpkin crackers, kept hearing about them on the radio .... and they're gluten free!  (I have Hashi's).  I ate about 3/4 of the box last night. Woke up this morning with a red itchy face and nasal congestion, headache, anxiety. Hallmark symptoms for me of high MSG intake. (It does say yeast extract on the side but it's pretty far down the list). So if you're sensitive.... stay away! Apparently these particular crackers are loaded with it. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,690
    • Most Online
      3,093

    Newest Member
    lastcowgirl26
    Joined