Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Mental Health Crises: What Else Might Be Wrong?
0

14 posts in this topic

Anyone know of someone having a mental health crises and later it was found that they had a physical illness?  What physical illnesses/defects can mascarade for mental illness?

 

D

0

Share this post


Link to post
Share on other sites


Ads by Google:

Don't know if this qualifies as a crisis really but my son has PANS/PANDAS (autoimmune reaction to an infection) that causes anxiety/OCD as well as Tourette Syndrome overnight. He literally went to bed one night and woke up a different kid. We rushed him to the ER thinking he must have meningitis or something. It was scary.

0

Share this post


Link to post
Share on other sites

D

 

Do you mean besides celiac, righ? because that surely causes what appear to be mental health issues like depression and anxiety as many of us can attest.

 

let's see,  a few could be:

uncontrolled diabetes

endocrine and metabolic disorders

lyme disease

severe Vitamin deficiencies , like omega 3s and essential fatty acids, amino acids

anemia

a stroke, lupus, mono, and Parkinson's disease

Pain relievers, tranquilizers, birth control pills, antihistamines, muscle relaxants, and several other pharmaceuticals can mess with your head.

food additives, chemical sensitivities

heavy metal poisoning

candida albicans

hormonal imbalances

sleep deprivation

a brain injury, blow to the head, etc.

food intolerances, histamine intolerance and allergies

Pseudobulbar affect (PBA)
 

and I might add: a visit from an annoying mother-in-law could trigger total madness in some folks ...Just sayin

3

Share this post


Link to post
Share on other sites

Wowie,  I am guessing the doctors didn't check for all of that before administering their drugs.  In fact, I know they didn't.  I am not in control (It is not me) but I am going to be asking questions which I hope may help the doctors.  I happen to know the lady involved in the health crises and her one child has celiac genes both 2DQ2 and 2DQ8 genes!  I agree that celiac can make you sort of bonkers!  The one in crises also had a trigger event having not been the same since back surgery 5 or so years back.  She may have been checked for celiac, but may have low IgA and IgG.  She has had kidney problems and thyroid issues in the past.  Sigh.  She doesn't really want my ideas, but maybe my talking to the medical personnel possibly will get somewhere?  I doubt it, but I gotta try.

 

How to win friends and influence doctors without going totally bonkers yourself?  Sometimes I feel like D is trying to take on the whole medical establishment single handedly!  For this lady, I have to try.

 

Thanks for the ideas, it gives me more ideas of what questions I should ask.  I need all the amo that I can get.

0

Share this post


Link to post
Share on other sites

Wowie, I am guessing the doctors didn't check for all of that before administering their drugs. In fact, I know they didn't. I am not in control (It is not me) but I am going to be asking questions which I hope may help the doctors. I happen to know the lady involved in the health crises and her one child has celiac genes both 2DQ2 and 2DQ8 genes! I agree that celiac can make you sort of bonkers! The one in crises also had a trigger event having not been the same since back surgery 5 or so years back. She may have been checked for celiac, but may have low IgA and IgG. She has had kidney problems and thyroid issues in the past. Sigh. She doesn't really want my ideas, but maybe my talking to the medical personnel possibly will get somewhere? I doubt it, but I gotta try.

How to win friends and influence doctors without going totally bonkers yourself? Sometimes I feel like D is trying to take on the whole medical establishment single handedly! For this lady, I have to try.

Thanks for the ideas, it gives me more ideas of what questions I should ask. I need all the amo that I can get.

Just a couple of thoughts. She isn't low on IgG, but can be low on IgA. her doctors can't discuss her case with you without her permission. You might be able to make some suggestions to her or her family?
0

Share this post


Link to post
Share on other sites




Just a couple of thoughts. She isn't low on IgG, but can be low on IgA. her doctors can't discuss her case with you without her permission. You might be able to make some suggestions to her or her family?

Thanks, the nurse I talked to got clearance for me.  I just basically asked questions about what care she was getting.  I am hoping for some influence in the situation in a gentle way!

 

I did read about one person who claimed low igG, so that is what made me think of it.  My IgG level is not high, so I have been wondering.

0

Share this post


Link to post
Share on other sites

  I happen to know the lady involved in the health crises and her one child has celiac genes both 2DQ2 and 2DQ8 genes!  I agree that celiac can make you sort of bonkers!  The one in crises also had a trigger event having not been the same since back surgery 5 or so years back.  She may have been checked for celiac, but may have low IgA and IgG.  She has had kidney problems and thyroid issues in the past.  Sigh.  She doesn't really want my ideas, but maybe my talking to the medical personnel possibly will get somewhere?

 

 

 

but "celiac genes" do not determine celiac. You know this by now.

She may have selective deficiency of IgA, but they test for that when they do the celiac panel .

Sometimes, someone becomes stressed and the body has low seratonin levels. That would also cause mental health issues.

If she does not really respond to SSRIs, which are often prescribed for depression, then perhaps it is another medical condition that is the underlying cause.

 

Good luck with talking to medical personnel. I suspect they will nod and say "uh huh" and walk away.

0

Share this post


Link to post
Share on other sites

but "celiac genes" do not determine celiac. You know this by now.

She may have selective deficiency of IgA, but they test for that when they do the celiac panel .

Sometimes, someone becomes stressed and the body has low seratonin levels. That would also cause mental health issues.

If she does not really respond to SSRIs, which are often prescribed for depression, then perhaps it is another medical condition that is the underlying cause.

 

Good luck with talking to medical personnel. I suspect they will nod and say "uh huh" and walk away.

Yeah, alas that is all true. 

0

Share this post


Link to post
Share on other sites

Yeah, alas that is all true. 

Believe me, Diana...I understand how frustrating it is to watch someone you care about go downhill and not even take any suggestions

from you about what could help. .

 

All you can do is be supportive, offer ways to help if she goes gluten-free (despite negative celiac panels) and be a friend.

 

As we often say on here, you can lead the horse to water.... 

0

Share this post


Link to post
Share on other sites

Thanks, the nurse I talked to got clearance for me.  I just basically asked questions about what care she was getting.  I am hoping for some influence in the situation in a gentle way!

 

 

 

You said this lady didn't want your help.  This nurse should be fired for talking to you about a patient's care, especially mental health issues!  As a person who worked on and with Health Information Laws for many years, I'm upset about this.  However, when your friend is better, she will be able to sue the hospital or doctor and this nurse for a lot of money.

 

 

Its possible her issues have nothing to do with Celiac - in fact, because only about 1 % of the population have Celiac, its really likely there is a different reason.

1

Share this post


Link to post
Share on other sites

http://www.doctoryourself.com/hoffer_niacin.htmln"

while this link isn't specific to this issue, if you research the doc involved you will find much of interest.

and Irish, the OP did mention a potential inciting event....and that the person involved hadn't "been right" since.

http://glutenfreeworks.com/blog/2010/06/23/niacin-vitamin-b3-deficiency-in-celiac-disease/#.UkXIqJzD_IU

interesting, according to this a lack of niacin may actually contribute to developing

 

celiac.http://lists.topica.com/lists/josepharabasz/read/message.html?sort=d&mid=1721351910

might this explain the occasional person who seems to tolerate gluten after long term healing?

0

Share this post


Link to post
Share on other sites

Believe me, Diana...I understand how frustrating it is to watch someone you care about go downhill and not even take any suggestions

from you about what could help. .

 

All you can do is be supportive, offer ways to help if she goes gluten-free (despite negative celiac panels) and be a friend.

 

As we often say on here, you can lead the horse to water.... 

Yes, again.  Been there and done that and expect to do it again.

D

0

Share this post


Link to post
Share on other sites

Wowie,  I am guessing the doctors didn't check for all of that before administering their drugs.  In fact, I know they didn't.  I am not in control (It is not me) but I am going to be asking questions which I hope may help the doctors.  I happen to know the lady involved in the health crises and her one child has celiac genes both 2DQ2 and 2DQ8 genes!  I agree that celiac can make you sort of bonkers!  The one in crises also had a trigger event having not been the same since back surgery 5 or so years back.  She may have been checked for celiac, but may have low IgA and IgG.  She has had kidney problems and thyroid issues in the past.  Sigh.  She doesn't really want my ideas, but maybe my talking to the medical personnel possibly will get somewhere?  I doubt it, but I gotta try.

 

How to win friends and influence doctors without going totally bonkers yourself?  Sometimes I feel like D is trying to take on the whole medical establishment single handedly!  For this lady, I have to try.

 

Thanks for the ideas, it gives me more ideas of what questions I should ask.  I need all the amo that I can get.

She's lucky to have you in her corner! Sometimes meds (for depression or any med) can cause depression. So can being sick for a long time. Keeping you in my thoughts & prayers!

Healing (((hugs))),

Loey

0

Share this post


Link to post
Share on other sites

She's lucky to have you in her corner! Sometimes meds (for depression or any med) can cause depression. So can being sick for a long time. Keeping you in my thoughts & prayers!

Healing (((hugs))),

Loey

Thanks, that means a lot.

D

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,647
    • Total Posts
      918,464
  • Topics

  • Posts

    • Biopsy confirmed?
      Right, usually they do an endoscopy after a positive blood antibody test.  The biopsy confirms the antibody results.  Doing them in the reverse order doesn't hurt anything though.  Sometimes people "fail" the antibody tests but still have gut damage.  Not everybody makes the same antibodies or in the same quantities.  Anyway, you should make sure they are doing the complete celiac antibody panel, not just a ttg test. And don't worry if the celiac tests are positive for gliaden antibodies.  Going gluten-free is an adjustment to your diet. Quite a few people around here have managed to adjust successfully.  It takes some effort, but anything worthwhile does they say.
    • Celiac Night Vision
      I don't have scotomas but you might find more help on a forum dedicated to vision issues.  Here are a couple I found.  the last link is a Yahoo search for "eye forum"  There may be others found if you try a search on Google. http://www.medhelp.org/forums/Eye-Care/show/90 http://www.healthboards.com/boards/eye-vision/ https://search.yahoo.com/yhs/search?p=eye+forum&ei=UTF-8&hspart=mozilla&hsimp=yhs-003
    • Positive Biopsy, Negative Blood Tests
      BTW, all first degree relatives of celiacs are supposed to be tested for celiac every 2 years in the absence of symptoms -- immediately if symptoms present. Your kids, your parents & all siblings should be tested. And that goes for your brothers kids too.
    • Positive Biopsy, Negative Blood Tests
      I agree completely with cyclinglady! Do you even know that there is such a thing called silent celiac? No symptoms at all but the villi are damaged.  I see you joined in 2009. Why? Is that when your brother was diagnosed? IMHO you need to do a lot of research & find out just exactly what you're risking. 
    • Positive Biopsy, Negative Blood Tests
      What?  Be sure that next endoscopy tests you for lymphoma (cancer) as well!   Seriously.  You need to do some research as your knowledge of celiac disease is lacking.  Did you fail the entire celiac panel?  Or did your doctor/insurance save cash and just order the very good (but does not catch all celiacs) TTG IgA?  You have a family history, a positive biopsy, what more do you need?  You do realize that this is not about just giving up gluten, don't you?  We just had a member join this year who was told years ago that her tests were "inconclusive" and that she now has suffered with lymphoma (cancer)? Ugh!   Endoscopy in 10 years?  Who would even wait 10 years?  This isn't colon cancer and polyps!   Are you talking about a colonoscopy?  Are you even sure you had an endoscopy?   Be sure you have your bones checked too.....and forget the breath.  You might not have any teeth and implants will be out since your bones will be compromised. Sorry, if I come on strong, but when I was diagnosed I had no tummy issues.  A few months later, my bones began breaking.  I was undiagnosed for a long time because of mis-informed doctors.  At least it was not stupidity on my part.   So, I urge you to research this disease more!  Hopefully you'll ward on another autoimmune disorder by remaining gluten free.  Find what celiac blood tests were actually taken!  Even if you do not think you have celiac disease, something has caused villi damage -- like a parasite, milk, or something......even more sinister! Good luck!  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,741
    • Most Online
      1,763

    Newest Member
    Roemill
    Joined