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2-3 Days For A Glutening Reaction?!


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16 replies to this topic

#1 CajunChic

 
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Posted 26 September 2013 - 01:45 PM

I knowingly ate gluten to "test" my symptoms after being gluten-free for 3 months. I started having gastro symptoms after 2 days. Then on the third day, I can't stay awake, have a horrible headache, gurgling, and just feel horrible!

Is it possible to be celiac and have such a delayed reaction?
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"Beloved, I pray that all may go well with you and that you may be in good health, as it goes well with your soul."
3 John 1:2

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#2 flowerqueen

 
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Posted 26 September 2013 - 02:06 PM

I'm not sure if that was a good idea, as even if you don't have any symptoms it is still damaging your gut if you have celiac disease. However, that can't be changed and I would say that everyone is different and no way of telling for certain how long it will last and if it can be a delayed reaction.
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Under active thyroid; diabetic; hiatus hernia; acid reflux; dairy intolerant; arthritis; sciatica due to spine degeneration; diagnosed with coeliac disease November 2011; fibromyalgia; allergic to Thyme & MSG and alcohol. Allergic to TCP antiseptic, and plasters. Taking medication for severe muscle spasms in upper back.
Despite all, remaining positive!

#3 Salax

 
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Posted 26 September 2013 - 03:52 PM

Its not uncommon to have a delay like that. Mine are 8 to 10 hours after eating something with gluten. I have seen others on the forum say it takes them a day or two. I think part of the reason, just my opinion, but is that it take time to digest and for then the body to make the antibodies (if you have those), then for them to attack healthy tissue and cause "issues". I think thats the delay reason. Now if it's an intolerance without the antibodies, maybe th reaction isn't as delayed. Again thats my theory. I hope you feel better soon. B)


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Salax
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Celiac Disease - Gluten Free since Feb 2009,
Cow Milk &  Corn free - June 2012,
Gall Bladder Failure - Removed July 2009,
Colitis, Hashimotos Disease, & Diverticulitis

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
( )_( )
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(")_(") Eat your vegetables!


#4 emilykay405

 
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Posted 26 September 2013 - 05:34 PM

It took 12 hours today. I had my first 2 pieces of true bread for breakfast this morning in a long time. I'm still on gluten because the testing hasn't been completed and my GI told me I don't have Celiac...so I thought, "Why not?" BIG mistake.


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#5 1desperateladysaved

 
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Posted 26 September 2013 - 06:51 PM

My functional medicine practitioner told me that one can react to food eaten with up to a four day delay!


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#6 ravenwoodglass

 
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Posted 27 September 2013 - 02:06 AM

My functional medicine practitioner told me that one can react to food eaten with up to a four day delay!

I agree. When my allergist put me on a strict elimination diet I was told to eat the new food 3 times a day for a week before I could add that item in as safe. My gluten reactions usually take about 3 days to appear.


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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#7 CajunChic

 
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Posted 27 September 2013 - 02:48 AM

Thanks for the responses. Hopefully this will go away soon. This has been by far the worst reaction I've had. Probably a big dose of gluten. Lesson learned, I'll NEVER test the waters again! Gluten has taken enough days of my life!!
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"Beloved, I pray that all may go well with you and that you may be in good health, as it goes well with your soul."
3 John 1:2

#8 GF Lover

 
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Posted 27 September 2013 - 02:54 AM

I'm so glad you learned your lesson.  It's just not worth risking damage and feeling so unwell. 

 

Good luck to you.

 

Colleen


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#9 IrishHeart

 
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Posted 27 September 2013 - 04:03 AM

Not sure why you tested the waters,unless you went G F just to see if it could help you and you wondered what would happn if you ate it?

....but if you have celiac disease, please do not do that ever again. The inflammatory response lasts for weeks inside your body

even if you do not have a single symptom appear.We have many members who do not seem to have gut issues, but they can tell you they feel

it in other ways ( brain fog, joint pain, hair loss,  anxiety, depression)

 

If I am accidentally glutened, and that is rare because I am very careful, I have symptoms that occur for weeks afterwards. 

They do not all come at once and they wreak havoc.


  • 2

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#10 CajunChic

 
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Posted 28 September 2013 - 07:00 PM

I believe I do have celiac, (dr. never gave me concrete dx, just said biopsy suggested celiac). I wanted to see if I really did, and what would a reaction feel like. It's 5 days later and I'm still in major pain I'm also finding that I'm dairy intolerant, which is furthering my misery. Just trying to learn my new lifestyle. Thanks for all the great advice and words of encouragement!!
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"Beloved, I pray that all may go well with you and that you may be in good health, as it goes well with your soul."
3 John 1:2

#11 GottaSki

 
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Posted 28 September 2013 - 09:29 PM

Welcome!

A couple thoughts:

Ask your doctor for written or electronic copies of your blood tests along with both the procedural AND pathology reports from your endoscocpy. If the results do not make sense to you - post them here. Your doctor's statement is not enough - Celiac Disease is completely manageable, yet with serious complications should you doubt your diagnosis in the future.

Many are intolerant of dairy until the villi in the small intestine heal....remove for several months and then try dairy again.

Hang in there :)
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-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#12 flowerqueen

 
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Posted 30 September 2013 - 05:27 AM

Not sure why you tested the waters,unless you went G F just to see if it could help you and you wondered what would happn if you ate it?

....but if you have celiac disease, please do not do that ever again. The inflammatory response lasts for weeks inside your body

even if you do not have a single symptom appear.We have many members who do not seem to have gut issues, but they can tell you they feel

it in other ways ( brain fog, joint pain, hair loss,  anxiety, depression)

 

If I am accidentally glutened, and that is rare because I am very careful, I have symptoms that occur for weeks afterwards. 

They do not all come at once and they wreak havoc.

Would you mind me asking how long your symptoms last, and what they are?  I think I have accidentally been glutened, and have felt ill for nearly 2 weeks now and still don't know the cause.  I am very strict and cautious and don't know how it has happened.  (Currently doing a food journal). 


  • 0
Under active thyroid; diabetic; hiatus hernia; acid reflux; dairy intolerant; arthritis; sciatica due to spine degeneration; diagnosed with coeliac disease November 2011; fibromyalgia; allergic to Thyme & MSG and alcohol. Allergic to TCP antiseptic, and plasters. Taking medication for severe muscle spasms in upper back.
Despite all, remaining positive!

#13 IrishHeart

 
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Posted 30 September 2013 - 12:44 PM

Would you mind me asking how long your symptoms last, and what they are?  I think I have accidentally been glutened, and have felt ill for nearly 2 weeks now and still don't know the cause.  I am very strict and cautious and don't know how it has happened.  (Currently doing a food journal). 

 

They range from abdominal cramping to bouts of C and D to headaches.

I have flagging fatigue, yet I cannot sleep.

I incur some hair loss, little red oozey sores on my face and scalp may erupt, and I feel very foggy brained, listless and

ill (like I have the flu) yet, I am also "antsy".  I am uncharacterstically grouchy and somewhat jittery and I cannot sit still. I second guess myself (did I shut the stove off?--go check 4 times) and I feel, in general just "not myself". I also feel like I have been injected with air--bloated with a side of puffball. ugh.

Pretty much what life was like before DX--only on a much smaller scale.

 

It's not peasant, but I have to say, the longer I am gluten-free, the lesser the amount of symptoms and the shorter the duration.

So, that's a good thing!

 

We may never know where the CC comes from. And for awhile, I thought I was getting glutened regularly (even though it was highly unlikely) 

but it turned out, I had other food intolerances at play. Once I dumped/limited those foods, I stopped feeling like crap on a regular basis.


  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#14 answerseeker

 
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Posted 30 September 2013 - 01:25 PM

Would you mind me asking how long your symptoms last, and what they are? I think I have accidentally been glutened, and have felt ill for nearly 2 weeks now and still don't know the cause. I am very strict and cautious and don't know how it has happened. (Currently doing a food journal).


The cramping usually shows up the next day for me. The first day of cramping is off and on all day long. It varies between rib cage pain, stabbing pain, and a soarness like I was punched in the gut. Brain fog, insomnia, grumpy, a rash will appear on my stomach and ankles 2-3 days after. Then my asthma will act up and stay that way for about a week.
  • 0

Lori age 40

 

GERD diagnosed Feb 2012

acute adult onset asthma diagnosed April 2012

celiac diagnosis July 2013

osteopenia Sept 2013

Dysautonomia: POTS (autonomic nervous system dysfunction)

DQ2 Gene


#15 flowerqueen

 
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Posted 30 September 2013 - 01:46 PM

They range from abdominal cramping to bouts of C and D to headaches.
I have flagging fatigue, yet I cannot sleep.
I incur some hair loss, little red oozey sores on my face and scalp may erupt, and I feel very foggy brained, listless and
ill (like I have the flu) yet, I am also "antsy".  I am uncharacterstically grouchy and somewhat jittery and I cannot sit still. I second guess myself (did I shut the stove off?--go check 4 times) and I feel, in general just "not myself". I also feel like I have been injected with air--bloated with a side of puffball. ugh.
Pretty much what life was like before DX--only on a much smaller scale.
 
It's not peasant, but I have to say, the longer I am gluten-free, the lesser the amount of symptoms and the shorter the duration.
So, that's a good thing!
 
We may never know where the CC comes from. And for awhile, I thought I was getting glutened regularly (even though it was highly unlikely) 
but it turned out, I had other food intolerances at play. Once I dumped/limited those foods, I stopped feeling like crap on a regular basis.


It's really odd how everyone has different symptoms with it. At the moment, the stomach cramps have gone, but I feel like my lower intestines are throbbing - presumably as it moves down the digestive tract(?) I have started to think that I may now have more food intolerances than I had before though. I looked at the Paleo diet, but am holding off at the moment, as I feel there's so much I can't eat already
  • 0
Under active thyroid; diabetic; hiatus hernia; acid reflux; dairy intolerant; arthritis; sciatica due to spine degeneration; diagnosed with coeliac disease November 2011; fibromyalgia; allergic to Thyme & MSG and alcohol. Allergic to TCP antiseptic, and plasters. Taking medication for severe muscle spasms in upper back.
Despite all, remaining positive!




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