Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Just Venting (Long)
0

7 posts in this topic

Ugh, I just need to get this out there to some people who understand.  I have been gluten free for 2 years and I think that has resolved some of my issues, but I suspect that some other health issues have come to the forefront now.  I've been dealing with this off and on for about 6 months.

 

I love my GP.  She is a wonderful, kind, caring doctor.  But she's not understanding what's wrong with me.  I tell her that I'm tired all the time and can barely get up out of bed in the morning.  She wants to describe another anti-depressant for me.  I tell her that I feel like my metabolism is crawling after I get glutened, and she prescribes a stimulant for me.  She wants me to lose weight, and I do too, but I want to figure out what's going on with my body first.  There is something wrong with me and pushing another pill at me isn't going to fix it.

 

So I decided to visit a Naturopath that a friend recommended.  He has his MD but practices integrative medicine.  I called to make an appointment and their next new patient appointment isn't until April!  Yes, April.  I'm so frustrated.  There's are two other clinics in town - one with an MD on staff one one with just a naturopath - but I don't know anyone who has been to either.  And all the reviews on this first guy are awesome. 

 

Of course insurance won't pay for any of this, so it will all be out of my pocket and will likely cost $1,000 or more.  If I'm spending that much money, I want to make sure I go to someone good and that I get the help I need.  But I don't want to keep feeling like crap until April.

 

On top of all this, DS has been undergoing ADD testing for the past month.  He finally got all the testing done and we can't get into his psychologist until the end of next month.  So there's another month of school gone by without him having either medicine or a plan in place.  And the school can't finish his IEP until the doctor is done with his paperwork.  And, I'm going to get him genetically tested for the Celiac genes, but was waiting until we had to go back to the pediatrician to get him on the ADD medicine to have it cheek swab done at the same time.  I have high deductible insurance so each time I walk in her door it costs me $145, hence the need to combine stuff into one visit.  So I have to wait on that too.

 

I'm not normally a hypochondriac but I keep searching the web to find out what's wrong with me.  And I keep coming up with a variety of possible things - thyroid issues, histamine intolerance, other food intolerances, adrenal fatigue.  I want to find out which of these things are causing my issues so that I can start feeling better.

 

It's just frustrating because I feel like I'm stuck in limbo, waiting on other people.  Anyway, thanks for listening to my pity party. 

0

Share this post


Link to post
Share on other sites


Ads by Google:

rant ahoy!  lolz 

 

can you get on a waiting list?  sometimes doctors will get cancellations and you can get in earlier. 

0

Share this post


Link to post
Share on other sites

I am on the waiting list and the receptionist said they sometimes have cancellations, but she can't say for sure if they will.  If I hadn't heard such good things about this guy, I would go find someone else.  But my options are really limited and he seems like the best NP in town.

0

Share this post


Link to post
Share on other sites

maybe you will get lucky - you do have the luck of the irish going for you ;)

0

Share this post


Link to post
Share on other sites

While you're waiting at least you can test out the "other intolerances" theory. Do an elimination diet. Ditch all of the common foods that cause intolerances like corn, soy, nightshades, dairy, and whatever else you suspect. I'm not familiar with high histamine foods, but salicylates are another one that can cause problems. Get your diet down to the very basics and maybe only try one new food a month so you'll have time to see if you start feeling better.

 

I hope things improve for you soon. ((((HUGS))))

0

Share this post


Link to post
Share on other sites




Somebody posted a link for online medical tests you can order yourself without a doctors involvement a while back.  If you can find a  lab to do them for you, they might be less expensive and you wouldn't have to wait.  You could get thyroid testing done for instance.  I don't remember the lab name but someone else may.

0

Share this post


Link to post
Share on other sites

Thanks for the ideas everyone.  I didn't respond earlier because I was sick all weekend with a horrible headache.  I'm going back to basics and doing an elimination diet and keeping a food journal.  I started both a while back but the lack of energy makes it hard for me to stick to it.  I've determined I'm going to this time.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,884
    • Total Posts
      919,476
  • Topics

  • Posts

    • I'm actually scared to go to the doctor and could use some advice
      Hello Elle Among this online community you are not alone in either your symptoms or how you feel about visiting the doctor.  I for one understand the anxiety that you are going through, my own weird nerve stuff and other puzzling symptoms have had me really scared at times.   So much you are going through could very well be gluten related, it really could.   But if it isn't, in the end it is worth trying to find out what it is going on so you can get the treatment you deserve. After all, it could have a really simple, treatable explanation, once the doctors know what it is. I remember reading on another website something that has helped me with my own health anxiety - if one can summon up the courage to go and see the doctor, one should pat oneself on the back and be proud of oneself for doing the right thing.  I'm not terribly keen on the idea of being a proud person - but I think it was meant in the best sense, and it is always good to do the right thing, even if one does it afraid!  It always makes me feel that bit stronger when I'm in the waiting room at the doctors! There is lots of great advice above.  Do take it and make sure you come back if you need further support. There are some fantastic people here to help.        
    • I'm actually scared to go to the doctor and could use some advice
      Hi Elle......do you think you would have better luck obtaining a full Celiac panel from your GP or a gastro doc?  You really need to be tested for Celiac because of all your symptoms.  Many other people probably thought they were dying of some horrible disease because they had so many symptoms that docs ignored.  Very common problem for us.  Plus, your Mom has had "IBS" all her life.  I should add that IBS is not a diagnosis.  No one needs to be told their bowel is irritated......they already know that.  This is where the medical establishment, no matter where you live in this world, fail us.  They need to find the root cause and there always is one.  You also do not need to have any gastro issues to be a Celiac but you do have some, along with all your symptoms mentioned.  Anxiety is a huge problem with Celiac Disease and for many, it goes away just fine on the gluten-free diet, without need of meds...which should always be a last resort measure.  I have never had an anxiety problem in my entire life until after I was diagnosed with Celiac.  I may have had it but with all the other numerous symptoms I had, the anxiety may have gotten buried somewhere.  But guess what? On the extremely rare occasion when I am glutened or cc'd, I get major anxiety for about 4 days and then its gone. B12 is a water soluble vitamin so whatever you don't use, it exits the body in your urine.  It is pretty damn hard to overdose on the stuff.  I take a B vitamin everyday, very high quality ones and my B12 is usually in the high 600 range.  Optimally, it should be between 650-800 so yours was abysmal pre-supplementation.  Absorption can also be affected by PPI's.  You did notice improvement with the tingling sensation and fatigue once your levels were way up so take notice of that. My biggest advice is to get your mother and you tested for celiac, with a FULL PANEL. Then you'll have to wait and see what that shows. You could always trial a gluten-free diet if all testing is complete and the results were either negative or inconclusive. That sometimes happens with people, especially if they have Celiac's other cousin......non-celiac gluten intolerance.  This would be the best route to go with regards to your anxiety, unless it becomes disabling and you need meds, short term. Make sure you tell them that anxiety is a HUGE symptom of Celiac and it is not normal for younger people to have extreme anxiety like that, for no reason. Good luck to you and please call and make the appointment. I understand your fear....I hate doctors and it's pure mistrust. But sometimes you have to address a problem head on.    
    • newbie diagnosed mom - testing 8 yr old now
      good to know. I am not going for a biopsy. I do not have health insurance, i know i know please no political comments. My children do. My husband and I don't right now. If we lived in another state, we would have coverage. I just made an appt to do a full blood panel for my daughter this week. I would rather find some confirmation for her through a blood test, i feel a scope is too invasive for a child. 
    • Did Jennifer Esposito Leave Town Amid $43 Million Gluten-Free Bakery Lawsuit?
      With a major lawsuit pending, recent reports put the former "Blue Bloods" star in Denmark. View the full article
    • I'm actually scared to go to the doctor and could use some advice
      Well, if I were you, I would go see your doctor and talk to him/her about all this.  Tell your doctor about your anxiety. When I finally did, my doctor prescribed a low dose of an anti-anxiety med and it has made a world of difference in my life.   About the whole thing with the B12 and the weird symptoms . Keep taking the B12 in the meantime to see if that helps again. But talk about it anyway.  If you want a celiac test, ask for the panel to be done. Your doctor may or may not want to send you to a GI for that. Remind him your mom is being tested. You do not have to wait for her results.  Work with your doctor if possible and if not, maybe find a doctor you can work with. If all you end up needing is b12, that's a good thing. If you end up needing more help, starting with your doctor and a heart to heart Talk will have you going in the right direction.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,928
    • Most Online
      1,763

    Newest Member
    Timea
    Joined