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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Oral Contraceptive
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4 posts in this topic

     I am reseraching to see if Gildess FE 1-20 is gluten free. I called the manufacturer today because at the bottom of the inactive ingredients is a word "Alpha-tocopherol" and when I looked it up it's made from WHEAT GERM! Well the lady from that company did not have it listed as such and they also dont test for trace amounts like that.

       SO what I want to know is where is there research proof of Gluten Free oral conctraceptives? My daughter is on them for very painful cycles and started it about a months 1/2 ago and she's had terrible celiac symptoms ever since. Now, I did not think to look up wheat in this until yesterday.............du me!

Looking for guideance please.

Thank you.

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The Canadian Celiac Association lists tocopherols as a safe ingredient in food, without concern as to the source. They are highly refined and contain no gluten.

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When I called the manufacturer on that one, I couldn't tell if I could trust it or not - so I decided to use one that was on the glutenfreedrugs.com page.  I use either Junel FE or microgestin (I think that is the brand) and have had no issues with either.  

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Hi Hapy,

I just posted a new topic in this area, check it out and I hope it helps you :)  I started it as a reply to this but I thought it would be better off as its own thing.

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    • Sjogren's, Celiac, or both?
      Well, you do not HAVE to get tested, but since Celiac Disease is genetic and you have kiddos, you should seriously consider the pros and cons. Take for instance, my hubby.  He went gluten-free over 15 years ago per the very poor advice of his GP and my allergist.  "Try giving up wheat and see how you feel."  Well, it worked.  No more sinus infections, feeling achy like he had the flu, etc.  He seriously struggled the first year without a proper diagnosis, but eventually good health became more important than rye bread.  Twelve years later, I was anemic (well I have been all my life)  and went for a routine colonsocopy because all my friends were getting them (the perks of the over 50 club).  During my GI consult he recommended getting scoped at both ends because he suspected celiac disease.  I could not believe it!  But blood tests and my biopsies proved that I had celiac disease.   Hubby will be the first to say that I have had more medical, family and friend support with a formal diagnosis.  He refuses to do a gluten challenge.  His mom was diagnosed with MS and literally died from malnutrition, so we suspect she had celiac disease.  He definitely has a problem with gluten.   Thankfully, my dx has allowed for my daughter to be tested every few years (even without symptoms).  She does not have celiac disease or any other autoimmune disorder yet.  I say yet, because the gene pool for AI issues is huge on both sides.  Good news is that cancer is rare but you never know.   So, this is a decision you will have to make.  An endoscopy requires a much shorter challenge.  Something to consider.  Gene testing too will help rule out celiac disease and might be the first thing to consider as you do not have to be on gluten for that.   I wish you well! 
    • Sjogren's, Celiac, or both?
      Everything you listed above very well could be Celiac Disease and not Sjogren's, but people with one autoimmune disease are at a higher risk of getting another one.  Your GP clearly is working with old knowledge in regard to Celiac Disease. There are probably more people who suffer from constipation from Celiac than loose stools. I know for me I never had diarrhea at all, but I was backed up something fierce.  I also had swollen joints, headaches, abdominal pain, memory issues, high liver enzymes, fatigue and general cloudy head.  Not many of these are symptoms an uninformed Doctor would think to associate with Celiac.  You really have to show up prepared to be your own advocate, tell the doctor that according to many of the GI specialists who work with Celiacs (see University of Chicago's celiac disease Center) these are all symptoms that warrant a proper workup for celiac disease.  It took me 6 months, two biopsies and an unneeded surgery to get diagnosed and that isn't as bad as some. 
    • Can treatment for Giardia reverse active Celiac
      So interesting!  Please keep us posted!  
    • Pre Biopsy gluten intake
      Here is a link that will tell you what each of the major celiac disease centers recommend. I reference this site because the woman writing it is a doctor herself who has celiac disease and is also a member of this site. She's done the research for us & put it all together in one post: http://www.thepatientceliac.com/2014/07/06/hope-for-a-less-challenging-gluten-challenge/
    • Sjogren's, Celiac, or both?
      Thanks for the input! cyclinglady - I've been trying not to be mad at my GP for ruling out Celiac at a time when I didn't know any better, but now I'm PO'd! Going back on gluten is going to suck. I was accidentally exposed last week, and I didn't go to the bathroom for two days, had my first headache in months, and wanted to sleep all day. Eight to 12 weeks sounds awful! I wish she would have done that test when she was taking blood by the pint for all sorts of stuff I didn't have. Blerg. ravenu5 - Thanks for sharing about your constipation. I didn't know how normal it was to not have diarrhea. But my constipation was also basically untreatable by normal means. I used to laugh when people suggested prunes. I could have probably eaten them by the bucket (though the most I ever tried at once was a dozen or so). I was so shocked when I started going to the bathroom regularly after eliminating gluten. The last time going to the bathroom wasn't an issue for me was when I was a kid! Gemini - It's nice to hear from someone else with Sjogren's! I haven't met anyone else in real life with Sjogren's, and I've never posted on a forum before. And thank you for being sorry about my miscarriage. It super-duper sucked. The miscarriage drove me to a third rheumatologist because I felt like I needed to know what was wrong with me. With two healthy, full-term pregnancies in the last five years and no history of problems, my risk of miscarriage was low, and I felt like the timing (all these new symptoms and the miscarriage) probably wasn't a coincidence. (But my kids have been a huge comfort. My youngest turned a year old the day after the miscarriage, and I feel so terrible for anyone who has to go through a miscarriage without a baby to cuddle. I don't know how it's done!) The first two rheumatologists I went to after my positive ANA and SSA said I didn't have Sjogren's! (Is there a space on this forum for doctor rants?) Anyway, Thank you so much for sharing with me. It's really nice to hear other voices on these things.  
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      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
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