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Celiac And Miscarriages

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I was diagnosed with Celiac Disease six or seven years ago.  I've never followed the diet for more than week at a time.

I am now 25 years old and have been in a committed relationship for two years.

About 3 months ago I found out I was pregnant.  My boyfriend and I were shocked.  We weren't trying to get pregnant.  I was actually quite devastated.  Financially we were not ready for a baby.  But as time went on we began increasingly excited.

I went and had a "professional" pregnancy test done by my primary care physician, who was the one who diagnosed me with Celiac, and he never said one thing about sticking to the Gluten Free diet to have a successful, healthy pregnancy/baby.  He was also aware that I was not following the gluten-free diet.

On August 28th my boyfriend, mother and I went for my first OBGYN appointment and ultra sound.  The doctor had informed me that I had miscarried around the 6 week mark (I was supposed to be 10+ weeks at that point). I had even asked her if it was my fault that I had miscarried because of not following the gluten-free diet and she had said no.

A week or so ago I saw something on the web about woman with untreated Celiac's having a higher percentage of miscarriages or infertility.   


Has anyone else had problems with this?  I don't know why my doctor or the OBGYN wouldn't have said anything to me.  If I had known that the untreated Celiac could cause a miscarriage I would have stuck to the diet like it was my job.  If anyone could add some input that'd be great.  I've been driving myself crazy the last few weeks about this.


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I'm sorry you lost the baby but I am going to blunt.


This applies to you as you are the "undiagnosed" Celiac.  In this case, they assume that a diagnosed Celiac would be following the gluten-free diet.




I am going to say that I think  you are not ready to have a baby.  Until you are able to take care of your basic health needs, how can you take care of another person's needs?  Educate yourself about your disease.  It has very real health risks going untreated.


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I have experienced a miscarriage.  Sorry, for your loss and I wish you and yours wellness in the future.


I have sent you a pm about it and would be willing to share experiences if you care to after that.




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Yep, I've lost babies also.

I am so sorry for your loss. No matter how you might have felt when you first found out you were pregnant, it is clear by your post that that baby was already loved. Take care and be gentle on yourself now as you heal. 


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  I had to think about this post all afternoon before I answered you.


I am so very sorry you lost your baby.  :(

That is a tragedy and a sadness that is beyond description.

I know.  lost 5 because of undiagnosed celiac.


But that was 20 years ago, when I did not know I had celiac.
You know you have celiac.

was not DXEd until my 50's after I became so ill, so debilitated and stricken with

pain and suffering dozens of symptoms that I was dying. I was grateful to know what I had
and how to treat it so I could stay alive.
Really... a G F diet? that's it! wow.


You state you have been diagnosed with celiac for many years so, honestly, hon you should have been following the diet religiously all this time..

 I am just speechless, which is impossible for me (as many members on here will attest).


I do not know where to start, but I will try:


(1) you absolutely need to be G F every single day or suffer the myriad of consequences that accompany undiagnosed or untreated celiac. 

Lymphoma, lupus, rheumatoid arthritis, anemia,  various autoimmune diseases. osteoporosis....

infertility and miscarriages. There are so many more--!!

please, READ the information that Karen has posted for you.


(2) you are telling us that the doctor who diagnosed you with Celiac you did not tell you to follow a strict G F diet?
This is strange and confusing ---as it is the only treatment for C D.


(3) you are the only one who can control the symptoms of celiac. Start educating yourself on the G F diet, what celiac disease
is and the  appropriate follow up care you should have.



WHAT CELIAC IS. If what you say about your PCP and GYN is true, they are clueless.


(5)Read this book:


Real Life With Celiac Disease by Melinda Dennis and Daniel Leffler.


This disease is nothing to mess with.


You need to change your life right now, hon.

Here is the Newbie 101 thread for "newly" diagnosed celiacs. Get started ASAP


I wish you all the best. Heal and be well.  Maybe you should wait a year or so to get your body straightened out

before getting pregnant again..

This will give you the best chance for healthy babies in the future.


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    • I understand. Poor thing, made doubly rough because 13 is a really hard age even in the best of times. OK, at 13 she should show the damage in the biopsies. I didn't know if she was 2 or 3 yrs. old & in those cases sometimes they just plain haven't lived long enough to be damaged where the biopsies pick it up - it can be so patchy then.  Gosh, I'm really feeling for her & you both and I so want to say take her off gluten the moment the endoscopy is over but I'm afraid to say that b/c I've seen some pretty weird things go on that you would never expect. Docs can be so uninformed! Please let us know how things turn out & send your daughter some hugs from me and tell her I believe her. Please let her know that most of us had been told by doctors they think it's all in our heads, didn't believe us, blew us off so we know exactly how she feels. Remind her her pedi believes her & he's been more helpful than the GI has.  Press the GI for 6-8 biopsies but a bare minimum of 6.  {{{{{{{{{{{{{{{{{{{{{{HUGS}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}
    • I have seen articles linking celiac to Barretts and esophagitis.  I've actually been subtly hinting to my boyfriend to get tested for celiac as well because he has some strange Autoimmune arthritis as well as Barrett's  and some white spots on brain MRI Not MS). One of the articles I read on Celiac and Barrett's actually suggested that most of the patient did not have actual acid reflux symptoms. Not sure if you ever did antibody testing for celiac, but sounds like you certainly want to avoid gluten. 
    • Ahh good point! She is 13 and has been miserable for over two years. It started with chronic hives. We have been to a dermatologist, and a allergist and they brushed it off to her seasonal allergies and now she has joint pain,bloating,constipation,fatigue,headaches just all around miserable. I just want answers quick. she is getting depressed and says she hates her life cause she doesn't think anyone believes her. It's heart breaking . I hope we get answer soon. Thanks for the advice I will keep her on gluten. She is just miserable and I figured the sooner she is off gluten the sooner she will feel better. 
    • Welllllllll, in this particular case it would be best to keep her on gluten until the results come back. The reason I say this is b/c this GI seems whacky. There's a chance you may need to go to a different GI & have the endoscopy redone. I was going to say get a new GI but since the endoscopy is on Monday then I would go forth with it rather than waiting the time it would take to get a new GI & schedule an endoscopy. This GI seems set that it's not celiac & when they get that in their brain it's usually pretty darn hard for them to admit they were wrong. My concern is that she won't take enough biopsies from the right places b/c she's either dumb about how many & where or letting her personal (already formed) opinion influence what she will do. The problem is that you can't be there in the OR with them standing on the GI's shoulders making her do the right thing. Not knowing your daughters age, the other concern is that there may not be "enough" damage just yet, it may be patchy, etc..... that with the mindset this doc has, she will poo poo the dx.  Let me say that it would be a travesty & wholly awful IF you had to put your daughter through another endoscopy but we know how very important it is for her to have an official, dyed in the wool dx. So I'm just trying to think down the line & prevent problems before they come up. I mean, this doc may not even take any biopsies. That sounds insane I realize, but really, it happens more often than you would think. I can't tell you the number of times we've had people come on here after having an endoscopy for celiac where the doc didn't take any biopsies b/c the doc is so stupid as to think they can see the damage & doesn't realize there MUST be biopsies! If you take her off gluten & heaven forbid, you have to end up putting her back on it to get further testing then chances are she's going to get much, much sicker when she's put back on gluten. That most often happens with us and I'm talking about radically sick. See, I'm basing all my thinking on the fact that despite ALL the positive celiac blood work, this dimwit doc doesn't think it's celiac & instead it's all related to the constipation. That is just so far out there, it's NUTS! She's flying in the face of hard evidence! Every test you listed was positive. I can't even begin to understand how this GI comes to her insane conclusion. THAT'S why I am so concerned. 
    • Thanks for your reply. That's what my husband and I thought too. She has a ton of symptoms that's fit celiac. Also I was going to start her gluten free diet after her biopsy on Monday cause the dr said the results take two weeks. Is there a reason I should keep her eating gluten until we get the results? Thanks for your help.
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