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Corneal Ulcers Anyone?
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6 posts in this topic

Has anyone else wondered if they are prone to corneal ulcers due to the autoimmune response to gluten? I try to stay on a gluten-free diet but am having crazy symptoms still when I eat certain foods. I literally have had a few ulcers in the past from contacts but since going gluten-free, I get them every couple weeks. I've tried four brands of the most breathable contacts and nothing helps? Could this be because I'm getting cross contaminated somewhere in my diet?

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I can't believe your eye doc is letting you wear any contacts if you are getting ulcers that often! You need to go to an actual eye MD! Maybe get tested for Sjorgen's,too. That is an autoimmune disorder often found with Celiac, that gives you dry eyes as one of the symptoms. I have very dry eyes and use the best daily dry eye contacts and you are still supposed to use wetting drops with them. Do you?

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Karen's right.  You need to see an ophthalmologist, ASAP.  Perhaps, some punctal plugs will help with dryness if other possible problems are ruled out.  In the meantime wear your glasses!

 

Here's a dumb question.....how old is your contact cleaning solution/case?  

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I can't believe your eye doc is letting you wear any contacts if you are getting ulcers that often! You need to go to an actual eye MD! Maybe get tested for Sjorgen's,too. That is an autoimmune disorder often found with Celiac, that gives you dry eyes as one of the symptoms. I have very dry eyes and use the best daily dry eye contacts and you are still supposed to use wetting drops with them. Do you?

I second this advice!  You need to be tested for Sjogren's because ulcers can happen from extreme dry eye.  I have Sjogren's but have never worn contacts and do everything possible to avoid eye irritation so never developed ulcers.  Ditch the contacts if this is happening and go back to wearing glasses.  Glasses are fashionable now!  Make sure you see an ophthalmologist for these problems.

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Turns out I'm allergic to the plastic composition in some contacts. Bizarre. Anyways, one I did a three week trial and error with 8-10 different brands, I found one that's perfect. So crazy.

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Wow! When I posted earlier,  I remembered that one of my co-workers (not a bright one) had contact issues and the problem was her old and long-expired cleaning solution.  When I saw your posting today, I recalled trying some new contacts and I couldn't keep them in my eyes for more than a hour or so.  My doc told me these particular new silicone based contacts were supposed to be super comfortable, but not for me.   I joked that maybe women should be required to try the silicone based contacts prior to breast implants! :lol:

 

I'm glad you were able to resolve your contact issues.  I'd hate to give up my contacts!  

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    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
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