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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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My 14 1/2 year old daughter has severe celiac (was diagnosed almost 2 years ago with an anti tissue transglutaminase of >250 with normal range less than 20) She was really sick needless to say. At barely 13, she weighed only 74lbs (the doctors felt she was merely growth delayed...I had her to two Endocinologists). She was tiny, hadn't matured, and we found out finally through labs she was horribly anemic with a serum ferritin level of nearly 0. It was not good. We took her immediately to a Pediatric Gastroenterologist at that time and she suspected either Ulcerative Colitis (as I have it) or Crohn's Disease with an active bleed. She decided to throw in a Celiac panel for the heck of it. Imagine our surprise? I had never heard of it. Let me further enlighten y'all....we are of Irish descent (hmmm), my son has Asperger's, we won't discuss the ADD in the family (too numerous), my mother has chronic "IBS" as does my grown daughter..... So did I (along with my U.C.....poorly managed with meds, I might add). Turns out I was diagnosed by blood test and bx this year too with Celiac disease. I am doing well on the gluten-free diet. But back to my daughter... We started her on the gluten-free diet and also Ferlecet (sp?) infusions for her anemia. Turns out she also has Alpha Thaalasemia. After 8 infusions, she did great. She has gained weight and is now 100 lbs and looks healthy. Her CBC looks great. Whats the problem? I took her in last week for a follow up anti-tissue transglutaminase and it came back yesterday at 39...still abnormal. So she's having indiscretions. We are 100% gluten-free here at home. I have talked to her about health complications til I'm blue in the face (as I am under treatment for osteoporosis at 44 for untreated Celiac) and that's a minor problem in comparison to others i.e. cancer, etc... I think I sound like a broken record. We go to see the G.I. next week and my daughter really likes her. And I know she's sick of the disease too and frustated. I've thought about getting involved with bringing "Making Tracks for Celiac's" to our hometown and getting her involved too. I know she gets fed up with people not knowing about it and having to explain it to people over and over and over.....like the cafeteria ladies and what designated oil is and isn't...and would they puh-lease stop putting rolls on her plate!! I know how she feels....probably about the same way when at work when they offer you cookies and you say "Oh, I can't have that." and they say, "Oh, take just one." <sigh> It's just easier to say you're allergic and save yourself the time. Anyway, anyone have any suggestions for a frustrated teenage Celiac and a tired Celiac parent? Thanks for the ear and the shoulder......

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I'm 13 and my e-mail is flagbabyds@aol.com and i was dx w/ celiac disease when i was 20 mnths so if she has any ?'s she can e-mail me

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    • Anyone done commercial testing?
      Thanks @LauraTX, @squirmingitch had recommended them before, and finally I've just joined up. I'll see about collaborating with them. 
    • Glutening symptoms five days to a week after consumption?
      Me too Missy.   Four days.  It has made sorting this out very difficult to say the least.
    • does your diet have to be like a perfection?
      First ~ Re-introducing gluten after so many years is an "old" thing.  I am 6 years diagnosed and I was originally told that  same thing by my Dr.  At the time my doctor was not  terribly familiar with Celiac and started doing research right along with me.  After she did more research on the (then) current studies she changed that to a "never eat gluten again!"  What happens, with some people (note I say "some"), is that once your gut does heal you enter into what can be called the "honeymoon" period.  Your gut is healed and you can consume gluten without feeling physically sick.  But...  and this is the biggy should you be one of those who can tolerate it.....  eventually you will get sick again.  And all during the time you were happily munching on gluten and not feeling physically sick the damage to your insides was still going on.  So... only you can answer if it is worth it or not.  I say no!! Second ~ I am 6 years gluten free.  I can count the number of times I have consumed gluten, each time was a total accident.   So, to your question on consistency, I would say it has been six years. And third ~ As for perfecting the diet, well, that can have several answers.  Yes, like most everyone, I struggled greatly in the beginning to learn what gluten was and where it hides.  My feeling of perfection came after about 3 years when I discovered the Paleo diet and went pretty strict Paleo.  That is when it became a very simple thing and my health improved dramaticly.  Personally, I would grab a Paleo book, see how simple g.f. can be.  Read about the effects wheat can have on everyone (not just those with celiac) and I think you will have an easier time of it.  Good luck to you.  !!  
    • Suspect Celiac, no medical access, options?
      Hi everyone, I'm new here!  So, I'll just give the short version first, and we can go from there.   I'm a 46 year old man who has had mysterious health issues my whole life, but only recently began to suspect dietary causes.  I am now quite sure that most of my issues for the last 40 years have been related to wheat, and now I am reacting to at least one form of Corn as well, as best I can tell on my own here.   I'm part of the US demographic that has fallen between the cracks in the medical system, and I have never felt like I had the luxury of medical help.  This is something I intend to work through in the coming months, as it's obvious to me I need some help here.  That said, I've read enough to know I would like to initiate the testing procedure.   Has anyone had any experience with using a walk-in clinic or the like to take the samples and handle the transfer to the labs to get the testing done?  I am imagining I could just walk in and get blood taken and instruct them which labs and what tests and be done with it, but.....?  I dunno, maybe it won't work that way.  At any rate, it's going to be a long, difficult process for me to figure out regular health care, and in the meantime, I'd like to figure out what's killing me here!    Any advice is welcome!
    • Gluten challenge. Random reactions of gluten sensitivity (brain fog)
      hi all, I have brain fog and I suspect that is due to gluten sensitivity.  When I became aware of those symptoms in the past, I did an elimination diet, and gluten introduction  seemed to correlate with the perceived brain fog Then, I was off gluten for a year, but because it is self-diagnosed it is not always easy to explain it and remain 100% gluten free when, for example, travelling or invited to someone's house for dinner. So, I thought I wanted to get to the bottom of this and check for celiac decease first. I have been doing a gluten challenge for the last 4 weeks, and my symptoms are very strange. Sometimes, I eat a slice of cake or a croissant and I can be tired and foggy for the whole day.  Strangely,  there are other times where i can eat bread or a full pizza and have no symptoms at all. Beer is strange, sometimes it affects me, sometimes it does not at all... I am not sensitive to Pasta so far... I am very confused. I thought that maybe it was because the consumed gluten quantity but there does not seem to be any correlation at all. Sometimes, I think that it has to be something else (not the gluten) that is causing those reactions. I cannot understand the random reaction to gluten.  Does anybody have a similar experience or an insight or what could be going on? Thanks!!!    
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